| Lichen sclerosis |
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| Re: Lichen sclerosis | From prettykitty [Log on to view profile] | on 2007-12-21 |
Thank you so much Sarita.
Love and Strength back to you.
xo | | |
| Re: Lichen sclerosis | From girilal [Log on to view profile] | on 2007-12-22 |
Also try the free remedy mentioned in the thread:
http://www.abchomeopathy.com/forum2.php/59236/1
Second: Lycopodium and Phosphorous will also work on some dimension.
http://www.abchomeopathy.com/forum2.php/123430/ | | |
| Re: Lichen sclerosis | From sbecket4 [Log on to view profile] | on 2008-02-04 |
Hi! I'm 40 and have suffered with LS all over my body for many years now.
I was missdiagnosed for several years, as Ring Worm. Go figure.
I have read that several of you find that the Cortizone creams burn. This may be because of what base they are in. ie: Urea is a great smooth base to use on body spots, but it burns like crazy on the vaginal area.
Best of luck to you all. | | |
| Re: Lichen sclerosis | From shalimar [Log on to view profile] | on 2008-03-08 |
Hi,
I'm new to this forum - it's wonderful to find out one is not alone.
My history with LS is:
1983 - 1st symptoms, after extreme stress including single-handedly nursing my mother through terminal cancer. I was probably particularly vulnerable in that I'd had 4th degree tears from my vagina to rectum delivering a 10 lb. baby and have had multiple repair surgeries (I'm very tiny and should have had a C-section).
Getting diagnosed – 1980’s examined by the head ob/gyn at a teaching hospital in Canada. No diagnosis, just a group of med. students peering at me in the stirrups. A dr. at another teaching hospital biopsied me and diagnosed kraurosis vulvar (apparently a former name for it) and told me I was "disgusting" to have "let myself get in that condition." May/07 - Finally, I had LS confirmed during the worst flareup ever.
I am a self-confessed health nut. For decades I've juiced and eaten strictly organically, taken my supplements, worked out regularly (I never eat sweets or sugar - the best thing to eliminate for candida). And I take probiotics.
I began studying holistic medicine in '69 and have been a professional for many years and I agree with belustudio (2007-01-21). I believe candida is really the common denominator. I can trace my entire history with LS and other autoimmune conditions from which I suffer to systemic candida (I was overtreated with antibiotics throughout my entire childhood and had a horrible sugary diet). When the candida worsens, so do my conditions.
I've so far held off steroid treatment for LS (suffered quite severe side effects when I used it once in the past). While it works well for many, and I may try it in the future, I'm very sensitive to medications and I'd like to try to deal with my autoimmune conditions naturally if I can. To that end, I've visited a homeopath/md in NY who's been treating my candida homeopathically and nutritionally and I'm about to try beta glucans (the one that's apparently the original formula) and tea tree oil.
My fingers are crossed for all who are afflicted with this condition. It's cost me a few good men.
If anything dramatic occurs, I will post it. | This thread continues beneath the following ad.
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| Re: Lichen sclerosis | From LadyL [Log on to view profile] | on 2008-04-02 |
Hi All
Can I just say that finding this site has made me feel so much better. Not that all of you are dealing with this but now at least I feel not so alone.
My story is a VERY VERY DISTURBING ONE. Seven years ago I was out on the town ran into some acquaintances. I was drugged and raped. About two weeks later I went to the Dr's and everything checked out OK. I was so upset to begin with I just couldn't bring myself and waited.
After going to the Dr's several days later I woke up w/a serious case of molloscum. My Doctor burned all of that off. It was horrifying for me. I had never had intercourse w/out a condom and had only been w/one serious boyfriend prior to this.
From this point out my vagina and anus had drastically changed. I had chronic.. VERY chronic itching. I developed lesions here and there that did not test out as herpes. I believe it was from the itching. I later had a blood test that showed I did have HSV 2 and I later had a DNA test which showed I have a dangerous strain of HPV. I have had biopsies because my Dr. saw that I had some papilli.
In the meantime I had to tell boyfriends etc. about all of these problems that I had this chronic itching and pain constantly. Lets just say I sent at least one boyfriend running for the hills.
I did meet the man of my dreams. Got married, started my own business, am building a new home and am living happily ever after (accept for my chronic itching of course).
I have horrible constipation and frequent urination like you wouldnt believe. I think when I pass away I will have spent at least 40 percent of my awake life trying to have a BM or peeing (isn't that wonderful).
My Dr... basically wrote the book on Vulvadynia. I am lucky enough to live in MA where it is possible to actually find a good Dr. Excuse my bitterness. But I literally went to over 10 Dr's in the area. The last Dr. I went to screamed at me "there is nothing wrong w/you!!! this is probably in your head because of what happened to you" she then sent me to my current Dr.
After being diagnosed with Vulvadynia (actually LS) I was prescribed some steroid cream. But about a week later my Father was hit w/a 20,000 lb crane and was left paralyzed from the shoulders down. I took off to Atlanta, GA w/my Mother where he fought for four months to stay alive. My wedding was six months after his accident. Lets just say that under this amount of stress truck loads of cream wouldn't have helped.
I was so freaked out I just couldn't bring myself to go back to my Dr. NOTHING was working!!! The strange thing is my Nana was so incredibly stressed when my Father got hurt she also developed Vulvadynia (I believe LS - fyi it is hereditary).
Last month I decided to give it another go. I went back to my wonderful Dr. who prescribed a different cream for me. Guess what it has been working like a charm! I have felt almost normal. I can even have normal intercourse again! I spoke to my Dr. on the phone yesterday and told her that my quality of life has improved 90 percent. I am using betamethasone dipropionate once or twice a day. After a couple months of this I am going to try to get pregnant. After all I have been through I am incredibly nervous as you might imagine. But I have to try!
My whole point in telling this story is that I worry about those of you out there who do not know what you have. This can affect your psyche in such a horrible disturbing way. You always feel like there is something wrong with you and you can never have a normal relationship or life. You can! If your Dr. is blowing off your systems walk right out of there and move onto the next. I just wish I had gone back to my Dr. sooner. Even with all of my problems I have still managed to find happiness and you can too. I feel for anyone suffering from this. It nearly destroyed me. You are not alone and you ARE NOT crazy by any means. This is a real problem that should be accepted by the medical community and be in main stream medicine.
I wish you ALL of the best. | | |
| Re: Lichen sclerosis | From LadyL [Log on to view profile] | on 2008-04-02 |
TO: shalimar
I just wanted to say that I totally feel for your story.
It reminded me somewhat of mine. W/Dr's looking at you like you are nuts or something.
I just wanted to mention that I kind of feel the opposite about the candida.
I think that LS causes candida. I had never had a yeast infection or anything like that until I had LS for awhile. They say that if you wear tight pants that it can cause an LS flare up. I believe that the LS makes you more prone to moisture because of the itching etc you get infections a lot easier. I don't know if this makes sense it just seems to be what happened to me.
Just a thought! | | |
| Re: Lichen sclerosis | From shalimar [Log on to view profile] | on 2008-04-03 |
Thanks for your comment, LadyL. I am so glad that you have found a solution that works for you and that your life is so wonderfully improved.
I just wanted to clarify something; my candida reference was not to a vaginal yeast infection, but to systemic candida which is very insidious, can go undetected for decades, and settles in organs and tissues, weakening the immune system and wreaking incredible havoc. It can be the cause of, and has been linked to, a host of problems, like eczema, MCS, allergies, IBS, prolapsed mitral valve, tinnitus, and autoimmune conditions.
On another note, EFT (Emotional Freedom Technique) is a helpful method for dealing with not only the physical but the attendant emotional/traumatic issues as well | | |
| Re: Lichen sclerosis | From saritalove [Log on to view profile] | on 2008-04-03 |
Hi Shalimar,
Thanks for drawing attention the mental/emotional aspect of healing. I've had good experiences with EFT, and some neutral ones too, and was VERY impressed recently with two sessions of TFT - thought field therapy - which EFT is a descendant of. In my experience - and I wouldn't generalise from it -it was more effective and really got into all the nooks and crannies.
I had emotional trauma around the first time I had sex, and I treated myself mentally as if I'd been raped, and psycholgically victimised myself. I avoided penetration for a couple of years afterwards and guess what, the next time there was pain and rigidity. Previously, I should say, I had a really juicy alive sexuality (first orgasm when I was 5 years old!). To me - and I"m only speaking about me - there is no coincidence between the mental/emotional issues and the later showing up of physical issues. In my book, the mind - conscious AND subconscious - rules the body.
By the way, Linda did you have any luck sourcing Beta Glucans in the UK?
Right now I am treating underlying vaginal candida, and have finally weaned myself of my sugar addiction - yay! so now something can start to happen which was being blocked by binging before (and all the guilt that went with it).
I am also having good results with Vaginol tea tree cream - I think it's by Thursday Plantation. Good to get one formulated for that area as it's purer.
And I"m noticing that when I have a twinge, or a tingle - I've always just thought a stressful thought. Anyone else notice this?
Also, I find it hard distinguishing low-level candida symptoms from LS. I know the occasional labial tingles are LS ... but the twinges i get in my vulva... which sometimes shoot up my vagina... anyone recognise that as LS? If not, it's my friend Candida :-).
Also, as I'm in Australia at the moment I'm playing with sunning my labia!!! for a short time, natch, and I can't say if it's doing anything or not as my symptoms are super-mild at the moment - I'm mainly aware of it when I try to have sex; I get sore. (ok, the last time was in hot tub, where clearly there would have been ZERO lubrication, so I can't really say for sure I'd have been sore on dry land!) The sun thing, by the way, is because a certain kind of UV is used as a treatment for LS.
i also definitely feel better for wearing no knickers and sticking to skirts. Helps me feel more womanly too!
For those of you with anal symptoms, the vaginol cream is also really great when wiping that sensitive skin. | | |
| Re: Lichen sclerosis | From caroco [Log on to view profile] | on 2008-07-03 |
Hi,
I have managed to control my lichen sclerosis with 4,000 mg of vitamin C. I noticed (by mistake) it was taking away the itch. I stopped taking the vitamin C and the itch came back. If I don't take enough vitamin C the symptoms come back too. I then went online to see if there were other people who had success with this and I did find a few who communicated that this had worked for them. It doesn't hurt to try - to see if it works for you.
Also, I went to a naturopathic doctor who informed me that people with lichen usually suffer from very low levels of vitamin D. I had my blood checked and found very low levels of vitamin D. So it wouldn't hurt to get your vitamin D levels checked too. I also supplement with vitamin D - but it is the vitamin C that made the difference and keeps this thing in check. Good luck!
Caro | | |
| Re: Lichen sclerosis | From caroco [Log on to view profile] | on 2008-07-03 |
Hi,
I have managed to control my lichen sclerosis with 4,000 mg of vitamin C. I noticed (by mistake) it was taking away the itch. I stopped taking the vitamin C and the itch came back. If I don't take enough vitamin C the symptoms come back too. I then went online to see if there were other people who had success with this and I did find a few who communicated that this had worked for them. It doesn't hurt to try - to see if it works for you.
Also, I went to a naturopathic doctor who informed me that people with lichen usually suffer from very low levels of vitamin D. I had my blood checked and found very low levels of vitamin D. So it wouldn't hurt to get your vitamin D levels checked too. I also supplement with vitamin D - but it is the vitamin C that made the difference and keeps this thing in check. Good luck! | | |
| Re: Lichen sclerosis | From saritalove [Log on to view profile] | on 2008-07-03 |
Hi Caroco,
Thank you, that's really helpful and probably a bit of a message to me as I was talking with my mother just now about Vitamin D. I read a huge study a couple of years ago where it's anti-cancer effects were found to be huge. Deficiency is very common and the recommended daily amount is now 100iu - quite high. Sunscreen and sunglasses block it. Deficiency is also associated with pain in the body. Thanks for the nudge!
As for the Vit C connection... interesting...
I think alkalising the body is also very important, so would think it would help to take a buffered, alkaline version (not the cheapo stuff). Easier on the stomach too (and would make pee less acidic). I will drink more lemon juice (in water!) and add a Vit C supplement.
Thanks for the inspirations,
love Sarita | | |
| Re: Lichen sclerosis | From saritalove [Log on to view profile] | on 2008-07-03 |
Whoops, make that 1000iu, not 100iu, for the Vit D rda! |
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