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als...help! | From Amolina208 [Log on to view profile] | on 2005-11-01 |
| 1 replies | 1119 views |
Hello,
Im actually writing this for my grandfather, who was diagnosed with ALS several years ago. Since that time, he's been to various different doctors and has been on all different kinds of medication, but to no avail. nothing has helped his condition.
He can no longer talk, barely walks even with a walker, and has trouble even with the simplest tasks, such as writing. His nervous system seems to be deteriorating..I just happened to find this forum, and wanted to know if anyone could help. If there was anything that could improve his state of being...He just sits in a chair all day, everyday, mostly because he cannot do anything else. Any suggestions would be very much appreiciated...
Thankyou! |
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| Re: als...help! | From walkin [Log on to view profile] | on 2005-11-02 |
The problem is fairly serious as below...
Extra-motor change in MND
Cognitive change can and does occur in between 33–50% of patients. A small proportion exhibit a form of frontotemporal dementia characterised by behavioural abnormalities such as disinhibition, apathy, and personality changes. A small proportion of patients may also suffer from an aphasia, which causes difficulty in naming specific objects. A larger proportion (up to 50%) suffer from a milder version of cognitive change which primarily affects what is known as executive function. Briefly, this is the ability of an individual to initiate, inhibit, sustain, and switch attention and is involved in the organisation of complex tasks down to smaller components. Often patients with such changes find themselves unable to do the family finances or drive a car. Depression is surprisingly rare in MND (around 5–20%) relative to the frequency with which it is found in other, less severe, neurological disorders e.g. ~50% in multiple sclerosis and Parkinson's disease, ~20% in Epilepsy. Depression does not necessarily increase as the symptoms progress, and in fact many patients report being happy with their quality of life despite profound disability. This may reflect the use of coping strategies such as reevaluating what is important in life.
Although traditionally thought only to affect the motor system, sensory abnormalities are not necessarily absent, with some patients finding altered sensation to touch and heat, found in around 10% of patients. Patients with a predominantly upper motor neurone syndrome, and particularly PLS, often report an enhanced startle reflex to loud noises.
What may help is Aurum met 6x twice a day for three weeks and wait or a further 3 weeks to judge result.
I am away for a week.
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