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Metachromatic Leucodystrophy

Dear Doctors,

DOCTOR, you cannot imagine how much I am upset about the illness of my three daughters and am still trying to find out the possibilities for treatment. I hereby submit the following for your sympathtic considerations:

(1) My daughter named SHEIBA UMAIR, 20 years old.

Birth History : Born after a normal full term pregnancy
Developmental History: Crawling, Sitting, walking and speaking at normal age
Schooling : Started to go to the school at the age of 3 1/2 years

Start of the Disease: at the age of 5 years

- Started to walk on the sideways of her feet
- Involuntarily urine and stool
- Indifference

PRESENT CONDITION

- Lying on the bed
- Involuntarily urine and stool
- Speech loss
- Convulsions
- Face expressions - normal
- General health - good

(2) My daughter named WARDAH UMAIR, 15 years old.

Birth History : Born after a normal full term pregnancy
Developmental History: Crawling, Sitting, walking and speaking at normal age
Schooling : Started to go to the school at the age of 3 1/2 years

Start of the Disease: at the age of 5 1/2 years

- Started to walk on her tip toes (pigion toeing)
- Involuntarily urine and stool
- Indifference
- Loss of standing and walking

PRESENT CONDITION

Gradually started to improve hereself at the age 7 years.

- can stand and walk with little help
- understanding and memory - very good
- speech - normal
- control on urine and stool 80% has come back
- feeding by parents
- gneral health - very good
- face expressions - normal

Apparently looks normal but little backward from her age.

(3) My daughter named SARA UMAIR, 12 years old.

Birth History : Born after a normal full term pregnancy
Developmental History: Crawling, Sitting, walking and speaking at normal age
Schooling : Started to go to the school at the age of 3 1/2 years

Start of the Disease: at the age of 5 years

- knees started to go backward while standing or walking
- Involuntarily urine and stool
- Indifference
- loss of standing and walking

PRESENT CONDITION

- Hyperactive
- Cannot stand or walk
- Can sit with support
- Involuntarily urine and stool
- Speech distinct
- Epeliptic convulsions once in a ten days time - started at the age of 11 years (just one year ago)
- Memory - good
- Face expressions - normal
- General health - good

DIAGNOSIS : A precise diagnostic label has not been arrived yet.

MRI/CT SCANS: show WHITE MATTER DISEASE
- PERIPHERAL NERVE DYSFUNCTION
- DISORDER OF MYELIN

Copies of medical records and CT Scans/MRI films are in my possession. In case you would like to examine these, please let me know I shall send same by DHL.

PRESENT MEDICATION: NONE

MY WIFE & MYSELF

First degree relatives. My wife is the daughter of my mother's sister. The wife's father is not a relative of our parents. Her father is from a different family and he has no connection direct or indirect with the families of my father and mother.

MY FAMILY

- One son 19 years Student of Engineering
- One daughter 20 years sick (Sheiba)
- One daughter 15 years sick (Wardah)
- One daughter 12 years sick (Sarah)

Doctor, if you see the least hope for treatment (Medications/Surgical), please give me an appointment I will immediately come over.

Doctor, once again I wish to reiterate that if there is least hope for treatment I will not hesitate to avail that.

Finally I would like to extend my sincere thanks for your sympathy, co-operation and guidance.

Best regards,

Mohd. Ghazi Umair
 
  Farida on 2005-10-29
This is just a forum. Assume posts are not from medical professionals.
Wahtever you do AVOID any surgical intervention - however well intentioned.

Metachromatic leukodystrophy (MLD) is the most common form of a family of genetic diseases known as the leukodystrophies, diseases which affect the growth and/or development of myelin, the fatty covering which acts as an insulator around nerve fibres throughout the central and peripherial nervous systems .

The problem is hereditary and suitable for homeopathic treatment -- or ayurvedic.

One thing that will help is to buy capsules of vitamin B12
and feed each child one capsule a day. B12 helps the body to replace the myelin sheathing of the nerves.

As this is a hereditary problem please advise what causeed the death of the last 4 or 5 generations of the family

miasmatic or glandular homeopathic remedies should be of assistance in this case.
 
walkin last decade
Thanks for the advice to give Vitamin B12. What is miasmatic or glandular homeopathic?
 
Farida last decade
Part of the problem is in the endocrinal system -- the ductless glands -- and there are homeopathic remedies derived from those glands that mifgt help.

miasmatic treatment relates to the genetic background and inherited flaws.

Need details of family history for that.
 
walkin last decade
What type of family details are needed. I will try to provide. Is it possible to recommend some medicines on trial basis.
 
Farida last decade
FARIDA,
You are also in contact with Dr.Khan,i am waiting for his suggestions also,Dr Walkin is also interested in this case and want to help you.What i understand it is a disease of nerves,no doubt very much difficult but we must try to help cure.Some of my friends will suggest you with their best possible suggestions in the mean time,you can try these medicines.
SYPHILINUM 200C five drops in a little water,first day 3 times 4 hour apart,second day twice 6 hour apart,third day only once,repeat after 15 days exactly in the same manner.
On all other days PLUMBUM MET6C ,5 drops thrice daily continuously for a long time,there must be some improvement in 45 days i hope.
 
sajjadakram635 last decade
I do not find words to thank you for your sympathy and guidance. You have suggested some medicines. In case you please give me your telephone no. I will be glad to speak and explain all the cases in detail. My email which was posted is very brief and does not give full details. This is a big question for me that how my daughters will lead their normal life. Still I am not loosing hope and will do my best as long as they are alive.
 
Farida last decade
There is some problem with the log on,i will email you my contact number,however we shall keep on discussing on this forum so we may get benifit of others.
sajjad.
 
sajjadakram635 last decade
I emaied u but your address is probably incomplete and the mail was returned,you please email me then i shall let u know my contact number.
sajjad.
 
sajjadakram635 last decade
AS Saijid seem to want this case I will drop out.

If at the end of the time there is no improvement contact me

Best wishes
 
walkin last decade
DEAR,
Please come forward immediately,let us help the daughters of this women.I will not interfere.she need our help.
sajjad.
 
sajjadakram635 last decade
Too many cooks spoil the broth - your course of action is reasonable - feel free to call me if you wish.
 
walkin last decade
Dear Doctors Sajjad/Walkin

Thnk you very very much for your pormpt response. I have not yet started the medicines suggested by yourselves as the above which I posted is a very very brief description. As of today Doctors could not come to a correct diagnosis, they say it looks like MLD. Clinical presentation and MRI reports show that there is brain disease but they do not fit also in MLD. If you please allow me to send a complete report by email, I will be very very grateful. If you wish to examine medical reports or video tape I can send it by DHL. Once again I would like to thank you for helping us and helping our daughters. My God bless you.
 
Farida last decade
I attach herewith a detailed report of myself, my wife and my daughters.


DETAILS OF PATIENT



Name : WARDAH UMAIR
Age : 3.02.1990
Sex : Female

Address :D/O MOHD. GHAZI UMAIR
P.O. BOX 56006
RIYADH-11554
Country : SAUDI ARABIA

Phone: Office :
00966 1 404-2222 Extn 1723
Home : 009661 405-9001
Fax : 009661 406-5971
Mob :00966 505 928 628


Marital Status: Unmarried

BIRTH HISTORY

Delivery : Full Term and Normal

FAMILY HISTORY

- None
- Father & Mother – First Degree relatives
(My wife is the daughter of my mother’s sister)
- One son and three daughers


DEVELOPMENTAL HISTORY

- Crawling, sitting, walking, speaking – at normal stages
- Vaccinations – completed & on time except German Measles (She suffered from German Measles at the age of 4 years)

SCHOOLING

Started to go to the School (Nursery) at the age of 3 ½ years

START OF THE DISEASE

- Disease started at the age of 5 years
- Started to feel fear from noise, seeing pet animals and big buildings, open space (Putting fingers in ears).
- Loss of control on stool and urine
- Abstract behavior
- Slow response
- Holding pen or pencil in an awkward manner
- Indifference
- Showing no interest in toys or TV etc.
- Hesitant to go to school
- Stopped writing/coloring etc.
- Whatever said repeating several times
- Started to walk to the tip toes (Pigeon toeing)
- Over excitement
- Grinding teeth and biting things
- Difficult extension
- Stopped walking

IMPROVEMENT NOTICED (HERSELF) at the age of 6 years

- Taking interest in watching TV/Toys/clothes
- Started to memorize verses of several Indian songs from TV
- Less indifference
- Less lack of attention
- Gradual return of control of urine and stool
- Try to follow the instructions
- Less excitement
- Showed interest in books, pen, pencils etc.
- Stopped grinding teeth and biting things
- Can wear sock and shoes (without laces) but taking more time than needed
- Can insert key in the lock and rotate
- Started to hold pen or pencil properly

IMPROVEMENT NOTICED AFTER COACHING

- Numbers from 1 to 200
- Spelling of number from 1 to 10
- Can tell what comes after 11 or 78 (any number between 1 to 100)
- Can do reverse counting from 10 to 0
- Can tell A to Z in sequence
- Can tell several words corresponding to all alphabets
- Memorized several English poems
- Can spell out more than 300 words
- Can tell days of the week and months of the year
- General knowledge
- Words corresponding to Hindi alphabets
- Arabic numbers from 1 to 10
- Small small poems of Hindi languages

PRESENTAL CONDITION

- Posture: Normal (While sitting, apparently she looks like a normal child)

- Face impressions: Normal

- Head: Normal size
- Hearing: Normal

- Vision: Normal

- Mouth: Very often tounge brings in and out

- Sitting : Can sit without support, not straight, slightly bending her back forward.

- Back: Very slight curvature

- Standing: Can stand on her knees without help. Cannot stand herself. With little help can stand and walk but not straight. With little help can stand one hour. While walking left leg turns from hip. Left foot also lifts up more than needed. While walking with help suddenly loosing control on the body and falling. When loosing control of the body shivering is being noticed in the legs.

- Lower Extremities : Normal (No any deformity)
- Upper Extremities : Normal (No any deformity)

- Appetite : Good

- Understanding : Very Good

- Behavior : Normal

- Memory : Very Good

- Excitement: Sometimes (very rare) over excitement is being noticed

- Interest: Takes interest in everything. No indifference. Tries to take part actively in all types of day-to-day activities. Tries to perform tasks and she knows how to do it but takes more time than needed for her age. E.g. she can wear the socks and shoes herself but takes long time to wear and cannot differentiate right left.

- Co-ordination : Good – For her age backward.

- Motor Functions: Good – Improved – For her age backward

- General Health: Very Good

- Sleep: Does not sleep in straight position. Legs bend like feeling cold.

- Awake: On awake slightly more weakness in upper and lower extremities

- Starts/Jerks: In the beginning of the disease starts/Jerks were more. Still, sometimes we feel that there are Starts/Jerks.

- Temperament: Jolly Mood, Smiling Face

- Stool/Urine: Sometimes she mentions that she wants to go to the toilet and sometimes does not mention. When she is passing urine without mentioning she feels that she has done wrong and by face she looks shameful. For stool she always mentions that she wants to go to the toilet.

- Urine: Very bad smell. Milky leucorrhoeal discharges in small amounts are also being noticed for the last two years.

- Feeding: By parents. Can eat herself dry things like chips etc. Cannot hold a glass of water. Shivering comes in hands.

THE PHYSICAL NATURE:

- Which is the best taste she likes: Sweet
- Which is the test she does not like: Chilly
- Which is the best food item for her: Juice/ Ice Cream/Cake/Youghurt/Meet
- Which whether she likes: Little warm

DETAILS OF MENSTURATION

- Started at normal age
- Regular
- No. of days: 5 days
- Quantity of Blood: Normal bleeding (One time more and second time less)
- Quality of Blood: Normal

(Before 1 or 2 days due date of menses she feels more shivering/starts and when menses starts shivering/starts goe)

Height: Very good (Normal for age)
Weight: Very good (slightly over weight)
General Body looks: Very Smart
General Health: Very Good

MEDICINES TAKING AT PRESENT (Allopathic)

None

DID SHE TAKE ANY HOMOEOPATHIC TREATMENT IN THE PAST

Yes – more or less five years but of no avail

- There is a homoeopath doctor in Jeddah, Saudi Arabia more or less 2 years
- There is a homoeopath doctor in Delhi, more or less two years



PRESENT TREATMENT

Since October 2004 she is taking homoeopathic medicines and is under the treatment of Dr. AP Chandran of Bangalore. I am very grateful to Dr. Chandran who accepted the case and trying to help us. During this period she has taken the following medicines:

Phosphorus 200
Lyco 1M
Thuja 1M & 10M
Carcinocin 1M
Pulsatila 1M
Nux V 1M
Medhorinum 10M
Silicia 200, 1M & 10M

Last dose of Nat Mur 1M was given on 29.10.05.

Result of the above medicines : No changes – Same as she was before treatment


PHYSIOTHERAPY

Physiotherapy is being given for the last 7 years in order to keep their joints functioning. After Office hours I spend my all time with them in feeding, playing, coaching, to make them stand, to make them walk etc.

MAIN PROBLEM

NO STANDING OR WALKING HERSELF. LITTLE IMPROVEMENT IN JERKS/STARTS. MOTRIC FUNCTIONS ARE SLOW AND NOT AS PER AGE.
POOR CO-ORDIANTION.

DIAGNOSIS

A precise diagnostic label has not been arrived yet

MRI/CT SCANS SHOW

- White Matter Disease
- Peripheral Nerve Dysfunction
- Disorder of Myelin

-------------------


Name : SHEIBAH UMAIR
Age : 3.12.1983
Sex : Female

Address : D/O MOHD. GHAZI UMAIR
P.O. BOX 56006
RIYADH-11554
Country : SAUDI ARABIA

Phone : Office : 00966 1 404-2222 Extn 1723
Home : 009661 405-9001
Fax : 009661 406-5971
Mob : 00966 505 928 628


Marital Status: Unmarried

BIRTH HISTORY

Delivery : Full Term and Normal

FAMILY HISTORY

- None
- Father & Mother – First Degree relatives
(My wife is the daughter of my mother’s sister)
- One son and three daughers


DEVELOPMENTAL HISTORY

- Crawling, sitting, walking, speaking – at normal stages

- Vaccinations – completed & on time except German Measles (She suffered from German Measles at the age of 4 years)

- She got first direhoea at the age of 7 days (Medicine KEFLEX was given)

- She got German Measles at the age of 7 months.

- She was getting common cold /fever very frequently (almost every month). She had taken a lot of Adol/Bactrim/Septrin form common cold and fever..

- She put something in her right ear and the ear was injured. She took a lot of antibiotics under treatment. Since then some was is always in her right ear.

- From the beginning she was very sensitive, Bad/Good smells, cannot tolerate small injuries.

- She wanted to live very clean and always asking for spoon to eat.

- From the beginning she was feeling fear from loud sounds of TV, Car James, Horning, Pressure Cooker’s noise.

- She was poor in color differentiation. We consulted an Opthalmologist his opinion was that it is too early. We should wait and see.

Hobies:

To watch TV. To memorize Indian film’s songs. To go for outing. To ask for ice creams and sandwitches. To wear nice clothes. To ask for perfumes.

Schooling

- She started to go to the school at the age of 3 ½ years

- She was capable to write capital alphabet from A to Z and Nos from 1 to 30 with a little help (But she was poor in writing work).

- She was capable to count objects (Mathematics)

- She memorized almost 6 poems prescribed by the school.

- She was having a fair health and talkative baby with smiling face.

OUR NOTICE [START OF THE DISEASE]

First we noticed while she was 4 years of age that she is not walking properly. She is putting her right foot a little bit in awkward position. Immediately, we consulted a Child Specialist of the local government hospital, after making a general check-up he replied no need to worry bones are OK, she looks a little bit poor in health and the doctor proscribed some tonics/multivitamins.

After a few months w noticed that:

- Foot is going worst day by day
- Started to hold her right hand always while walking
- Started to fall down with a little push
- Started to do TATA BY BY in an awkward style.
- Started to sit idle/lazy and neither speak much nor participate in games.
- Loosing interest in food, clothes, playing.

- During this period we also started to receive complaints from the school that she is passing urine without going to the bathroom, not paying attention in writing, not playing with her class fellows etc.

We consulted with another child specialist of a local private hospital, his opinion was that bones of legs are OK but for more satisfaction we can also consult with an Orthopedics. We consulted Orthopedics Department and they referred the case to a Neurologist for evaluation saying that it looks a neurological problem.


PRESENTAL CONDITION

- She got Chicken Pox at the age of 6 years after that she lost her speech.

- She is bed ridden for the last 14 years.

- Convulsions: Epeliptic convulsions started at the age of 15 years (twice/thrice a week).

- Head: Normal size

- Hearing: Normal

- Vision: Normal

- Face impressions: Normal

- Sitting : Cannot sit without support. Cannot sit crosswise.

- Back: Curvature

- Lower Extremities : Legs stretched.. Tendons contracted.

- Upper Extremities : Clunching of fists. Jerks in hands.

- Feeding: By parents.

- Eating: Poor. Does not chew solids prefer to sallow (Teeth are damaged)

- Eyes: Slightly squinty sometimes.

- General Health: Fair

- Sleep: Sleeps well 8 or 9 hours.

- Awake: On awake in the morning more stiffness in lower and upper extremities and jerking.

- Stool: Involuntarily. Pasty. Bad smell. Feeling difficulty in expelling out..

- Urine: Bad smell.

- Speech : Lost

THE PHYSICAL NATURE

- Which is the best taste she likes: No idea
- Which is the test she does not like: No idea
- Which is the best food item for her: No idea
- Which whether she likes: Warm

DETAILS OF MENSTURATION

- Sarted at normal age
- Irregular
- No. of days : 3 or 4 maximum
- Quantity of Blood: Very very little
- Quality of Blood : Blakish

Height: Very Good
Weight: Good
General Body looks: Slim
General Health: Fair

ALLOPATHIC MEDICINES TAKEN BEFORE STARTING THE TREATMENT OF DR. AP CHANDRAN (Please see details below)

To control stiffness and convulsions:

- L-Carnitine 1 Cap per day
- Biotin 1 Cap per day
- Benexol B12 1 cap per dahy
- Backloffin 10 mg Thrice daily
- Depakin 200 mg Thrice daily

Result of the above medicines was also not very good.

DID SHE TAKE ANY HOMOEOPATHIC TREATMENT IN THE PAST

Yes – more or less 7 years but of no avail

- There is a homoepath doctor in Bombay more or less 2 years
- There is a homoeopath doctor in Jeddah, Saudi Arabia more or less 2 years
- There is a homoeopath doctor in Delhi, more or less two years

- Unani medicines (Herbal) more or less one year of no avail.



PRESENT TREATMENT

Since October 2004 she is taking homoeopathic medicines and is under the treatment of Dr. AP Chandran of Bangalore. I am very grateful to Dr. Chandran who accepted the case and trying to help us. During this period she has taken the following medicines:

Sulphur 200, 1M
Syphlinum 1M
Coculus 1M, 10M
Medhorinum 10M
Causticum 1M
Phosphrous 200

Result of the above medicines : 3 months ago Phosphorus 200 was given and this medicine has done a miracle. After taking this medicines, no convulsions, no jerking, no sweating and she is very relaxed and comfortable. Menses also started. Color of the blood has changed. Any other improvement not noticed. Last dose of Phosphorus 1M was given on 29.10.05. So far nothing new.


PHYSIOTHERAPY : Very little.

DIAGNOSIS

A precise diagnostic label has not been arrived yet.

MRI/CT SCANS SHOW
- White Matter Disease
- Peripheral Nerve Dysfunction
- Disorder of Myelin

------------------


DETAILS OF PATIENT



Name : SARAH UMAIR
Age : 17.09.1991
Sex : Female

Address : D/O MOHD. GHAZI UMAIR
P.O. BOX 56006
RIYADH-11554
Country : SAUDI ARABIA

Phone : Office : 00966 1 404-2222 Extn 1723
Home : 009661 405-9001
Fax : 009661 406-5971
Mob : 00966 505 928 628


Marital Status: Unmarried

BIRTH HISTORY

Delivery : Full Term and Normal

FAMILY HISTORY

- None
- Father & Mother – First Degree relatives
(My wife is the daughter of my mother’s sister)
- One son and three daughers


DEVELOPMENTAL HISTORY

- Crawling, sitting, walking, speaking – at normal stages
- Vaccinations – completed & on time except German Measles (She suffered from German Measles at the age of 4 years)

SCHOOLING

Started to go to the School (Nursery) at the age of 3 ½ years

START OF THE DISEASE

- Disease started at the age of 5 years
- Recurrent vomiting
- Excessive Sweating
- Getting nervous shortly (Nervous temperament)
- Tremors in fingers
- Sinking knees & elbows
- Turning foot under
- Loss of control on stool and urine
- Lack of attention
- Slow response
- Cannot hold pen or pencil properly due to tremors in fingers
- Indifference
- Showing no interest in toys/TV etc.
- Stopped writing /Coloring etc.
- Stopped standing/walking
- Hyperactive
- Spastic
- Difficult extension

IMPROVEMENT NOTICED

No improvement noticed. More or less stagnant till the age of 10 years.


PRESENTAL CONDITION

- Deformity: Left hip was dislocated due to long period of spasm. Surgically adjusted 1 ½ year ago but the leg is still not functioning properly.

- Convulsions: Epeliptic convulsions started more or less one year ago (Once in a week) usually in sleeping.

- Posture: Normal (While sitting, apparently she looks like a normal child)

- Face impressions: Normal

- Head: Normal size

- Hearing: Normal

- Vision: Normal

- Sitting : Cannot sit without support. Cannot sit comfortably. Falling right side. Cannot sit crosswise.

- Back: Very slight curvature (Just up the hips)

- Standing: Can stand with help. Disbalanced. Stretch all the body and makes herself very stiff.

- Lower Extremities : Legs stretched. Right foot turns under. Knees sink behind. Tendons contracted. Feels pain in hips. Involuntarily movement of legs. Joints week. More weekness in Knees and ankles.

- Upper Extremities : Clunching of fists. Tremors in fingers. Cannot hold anything in hands. Cannot raise hand up. Jerks in hands.

- Appetite : Poor

- Feeding: By parents. Cannot eat anything herself

- Eating: Poor. Does not chew solids prefer to sallow.

- Thirst: Never ask for water or food. But likes to drink more water.

- Eyes: Slightly squinty sometimes.

- Excitement: Slight over excitement is being noticed. (Hyperactive)

- Temperament: Get nervous easily

- Vomiting: Whenever she weeps, does not stop weeping unless vomit.

- Interest: She does not show interest in anything Toys etc.

- Understanding : Good

- Behavior : Normal

- Memory : Good

- Co-ordination : Poor.

- Motor Functions: Slow

- General Health: Poor

- Sleep: Restless on bad until sleeps. Sleeps well 8 or 9 hours.

- Awake: On awake in the morning more stiffness in lower and upper extremities. Every morning before awake coughing and vomiting is must. Coughing and vomiting is going on for the last several years.

- Temperament: Jolly Mood, Smiling Face

- Stool: Involuntarily. Pasty. Bad smell. Feeling difficulty in expelling out. While passing stool crying too much. Feels difficulty in sitting on commode in the toilet. Difficult to say whether she feels pains in the hips or due to stiffness of the body.

- Urine: Bad smell.

- Speech : Difficulty in pronouncing words – stammering type

- Response: Slow.

- Memory : Very good. Knows all the following but pronounciation is becoming difficult day by day.

Numbers from 1 to 200
Spelling of number from 1 to 10
Can tell what comes after 11 or 78 (any number between 1 to 100)
Can do reverse counting from 10 to 0
Can tell A to Z in sequence
Can tell several words corresponding to all alphabets
Memorized several English poems
Can spell out more than 300 words
Can tell days of the week and months of the year
General knowledge
Words corresponding to Hindi alphabets
Arabic numbers from 1 to 10
Small small poems of Hindi languages

THE PHYSICAL NATURE

- Which is the best taste she likes: Sweet/Salt/Chilly
- Which is the test she does not like: None
- Which is the best food item for her: Juice/ Ice Cream/Cake/Youghurt/Meet
- Which whether she likes: Little cold

DETAILS OF MENSTURATION

Not yet started.

Height: Good (Looks little less for her age)
Weight: Good
General Body looks: Thin
General Health: Poor

MEDICINES TAKING AT PRESENT (Allopathic)

None

DID SHE TAKE ANY HOMOEOPATHIC TREATMENT

Yes – more or less five years but of no avail

- There is a homoeopath doctor in Jeddah, Saudi Arabia more or less 2 years
- There is a homoeopath doctor in Delhi, more or less two years


PRESENT TREATMENT

Since October 2004 she is taking homoeopathic medicines and is under the treatment of Dr. AP Chandran of Bangalore. I am very grateful to Dr. Chandran who accepted the case and trying to help us. During this period she has taken the following medicines:

Sulphur 200, 1M, 10M
Coculus 10M
Nux V 1M
Medhorinum 10M
Lyco 30
Hyoscymus 1M
Bellodana 30, 200, 1M, 10M

Last dose of Bell 10M was given on 29.10.05.

Result of the above medicines : There are little changes but not much. General health is improved. In take is little better but solids are not chewing just swallowing Growth slightly better. Attacks of spasms and seizures are less. Face twitching is less. No improvement at all in convulsions. Left leg is still not functioning. Falling right side. Cannot sit without support. Speech is also not very clear. She knows the words but feel difficulty in pronouncing. In conclusion not much improvement is noticed.


PHYSIOTHERAPY

Physiotherapy is being given for the last 7 years in order to keep their joints functioning. After Office hours I spend my all time with them in feeding, playing, coaching, to make them stand, to make them walk etc.

MAIN PROBLEM

No standing or walking herself. Stiffness or stretch in the body. Tremors in the Fingers. Clunching of fists. Involuntarily stool/urine. Hyperactive. Weekness in knees and elbows. Contraction of tendons. Indistinct speech.

DIAGNOSIS

A precise diagnostic label has not been arrived yet

MRI/CT SCANS SHOW

- White Matter Disease
- Peripheral Nerve Dysfunction
- Disorder of Myelin
 
Farida last decade
Respected Dr.Walkin

As you suggested Vitamin B12
Caps. I looked for it in the market. I could not find the Caps of B12 only. What I found is "Neurobian" which contains B1, B6 & B12. Please let me know it will serve the purpose or not.

Thanks
 
Farida last decade
Yes anything with B12 in will help.

You yourself can help by obtaining a book Nature Doctor by Alfred Vogel
ISBN 1 85158 2746

This gives details of various natural things that can help the sick.

I feel that the problem may be with vaccination.

If vaccination is carried out before age two yrs there is NO immune system to react.

In healthy children this may not be important , but the close relationship of these children means they are weaker.

Give details of vaccination.

I am going away for a week
 
walkin last decade
dr. mahfooz please i need your help (my post dated 29.10.05). if you need further details please give me your email address. may allah bless you.
 
Farida last decade

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