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Lichen sclerosis, Lichen pLanus, yeast infec plus more

HI

I have been diagnosed with oral lichen planus and I am 99% sure that i have L.P and Lichen Scelrosis too as well as thrush. yeast infec was proven recently and its beena recurring thing.

Could someone please advise me on what successful treatments they have taken to treat it so that i may start from there or go to a homeopath with the info. No one seems to know muchabot it and even the surgeons and GPs dont provide me with info butinstead just topical creams which have just supressed it and maybe causing more damage.

ALso what does erosive Lichen Sclerosis mean. I have glugginess in my vagina. (thick blobs of mucous that i have to scoop out with my fingers because otherwise it just sits there. I have a prolapse too .

I have never had children, 26 yrs old, should be healthy really i put it all down to stress and possibly started fromtaking antibiotics or antimalarials when my immune system was weak.

I have white striae around my clitoris, inmy mouth and ulcers on my tnougue as well as lesions popping one by one onmy body. I really dont want to apply topical creams but getting desperate as the lseions scar my skin and look terrible. Also, i cant keep cutting out the ulcers on my tongue and my inner cheek is getting pretty bad i think causing gingivitis too in my mouth.


Does anyone have advice for me please??

thankyou for reading

Kathy
 
  Miss K on 2006-03-10
This is just a forum. Assume posts are not from medical professionals.
I am very ANTI antibiotics, they only cause trouble.

Sounds as if your immune system is pretty dodgy.

One or two things that MAY help.

Protect the immune system for any type of infection
From steve lord on 2005-09-29
59 replies 1947 views
Hi

I am a retired lawyer in Santa Barbara, Ca. I found
that merely applying slight pressure to the ear next
to the ear canal by placing a small piece from an
ORGANIC cotton ball (nothing else works) stimulates
our immune system to such a great degree that 11 of us
tried it for colds, some bad enough to see a doctor
for them and the average time it took to completely
cure our colds was 3 hours. (this is not a joke or a
hoax). The average time it took us to completely
eradicate the malaise, fever and sore throat was one
hour and the other 2 hours was needed for the nasal
symptoms. Similar effects are seen in my flu's and
several cases of food poisoning.

That level of immune stimulation is of course
unprecedented and it would seem likely to be great
enough to cure many if not most of the infectious
diseases in the world. It also has remarkable tissue
healing effects as well.


THis method is befinning to be investigated by various
members of the medical community. Dr Ralph Wilson
(naturopathic physician) has put my story on his
website (push essays on the left side and mine is THE
FETAL CURE , in the T section, see the emails of the
man who put his severe 20 year autoimmune disease into
complete remission in a few days with this method-this
essay also describes why it works).

Dr Wilson emailed the head of microbiology at the US
National Institutes of HEalth Division of Immunology
and Infectious Disease supporting it.. That head
emailed me that she had told her clinical researchers
about it and would bring it up again to them. A
researcher at the Univ of Arizona Medical School told
me she would include it in her grant request using Qi
Gong for AIDS from the Gates Foundation if whe could
gain agreement of her colleagues. A medical researcher
at Bastyr Univ (naturopathic college) who used to be
the head of research there emailed me 2 days ago
saying she was presently trying it as a test in
herself. She didnt say what condition she was using it
for.

One just places a piece of a cotton ball in ONE ear ,
(either ear and you can switch ears for comfort sake)
the size of a small marble (not so big to be
incomfortable, but big enough to cause a little
pressure) and poke it in gently until it stops going
in any more to where you put an ear plug for noise,
next to the ear canal and keep checking it to make
sure it stays in place and wear it there with nothing
in the other ear.

Best results would be obtained by wearing the cotton
24 hours a day even during sleep , checking it every
so often to see if it has slipped out some. Poke it
gently a couple of times again to make sure its in all
the way. Replace it as needed to keep it clean and
dry.

Our immune system I have found cant be stimulated
while exposed to most types of manmade radiation such
as cell phones (even when just being carried) or
within 2 or 3 feet of you) or when using a computer
and it would be better to take the cotton out at those
times. The same problem if you smoke (80 or 90% of the
effect is lost) and some amount will be lost by things
that suppress immunity such as steroids or sythetic
opiate pain killer.

The cotton ball has to be ORGANIC cotton, it must say
ORGANIC on the package because ordinary cotton balls
are either genetically modified now or are synthetic
and neither will work, the body wont respond to them.
Most health food markets sell orgnic cotton balls. You
would have to call around.

One shouldnt do this if you take close to a toxic dose
of any drugs with severe side effects since this
method may increase circulation causing a mildly
greater drug effect. I am not a Doctor and cant
prescribe this for anyone..Check with your Doctor.
Good Luck

Sincerely Steve Lord

Re: New free simple way to stimulate immune system for
any type of infection From walkin on 2005-09-30
interesting___

kuldeep -- any comments?

Re: New free simple way to stimulate immune system for
any type of infection From stevelord on 2005-10-03
Here are 4 emails from the gentleman who lives in
South Africa who read my post on another website about
this method and decided to try it for Ulcerative
Colitis, an autoimmune disease of the colon. His
result demonstrates the unprecedented level of immune
stimulation this method provides. Steve Lord

email:[EMAIL PROTECTED]
> wrote:Hello Steve

I have read an article written by you about the fetal
cure

Is this some sort of joke or is it real?.

Where did you learn about this technique if it is
indeed not a hoax?

Should I place a piece of cotton wool in both ears or
just one ear?

I have been suffering for colitis for more than 20
years and I am prepared
to
try anything that will free me of this dreaded
disease.


Second Email.

[EMAIL PROTECTED]
> wrote: Hello Steve

I did the fetal cure last night and the results were
amazing. I was
suffering a
severe flareup with my colitis during the last few
weeks. I was having
about 20
bowel movements of watery and bloody stools. (Added
note by Steve Lord-in another email he had told me
that that he had had UC for 20 years and that no drug
his Doctor had given him had worked and that only
surgery could help him which he was awaiting when he
saw my post. Please ingnore the part of the method he
describes ad sitting in the dark as that is irrelevant
and I included it in my post as part of a discussion
on why this works.)

I placed a cotton ball in my right ear and then sat in
the dark for about
an
hour. I then went to bed with the cotton ball still
intact in my ear. I
got up
this morning and changed the cotton ball and then took
a shower with it.

I only had one bowel movement today. There was no
blood in my stools My
stools
had a better formation though still watery. My
abdominal and back pains
were
gone. Yes colitis is a autoimmune disease. I would
apprecuate it if you
could
let me know what to avoid with colitis.

P.S : Can you tell me how you came to know about this
wonderful cure?

Regards

Third Email

[EMAIL PROTECTED]
> wrote:Hello Steve

Day 3 report.

All my symptoms of colitis have disappeared except
that my stool formation
is
still not normal. I have noticed that my
hayfever/rhinitis has completely
vanished. I have been a hayfever sufferer as long as I
was suffering from
colitis. I will meet my mother in law on Saturday and
I will ask her what
type
of arthritis she has.

P.S : Can I post your website on other IBD message
boards. I have suffered
for
such a long time and I really feel sorry for others
who have been
suffering
from this disease. Not everyone will try this cure but
there must be other
desperate people like me who are willing to give it a
try

Regards


Forth email:


> wrote
:Hello Steve

Sorry that I was not in contact with you during the
last few days. I was
feeling so well that I decided to take a little
vacation into the
mountains. I
would have written to you but unfortunately I did not
have access to the
internet.

I have been literally pigging myself during the last
few days. I was
making up
for all the good foods I denied myself for years.
Foods that iritated my
colitis. I can eat anything that my heart desires now

I am still using the cotton ball. My stools are
getting more formed by the
day.
I have an enormous amount of energy. Another thing
that I noticed is that
I
sleep much more better with the cotton ball and I am
not waking up very
tired
like I previously did.

Re: New free simple way to stimulate immune system for
any type of infection From lins421 on 2005-11-07
I wonder if I could use this approach on my horse? His
immune system has appeared to be compromised since
spring of 2005. He goes through this cycle every 3
years or so, but this has been the longest bout. His
appetite is good, but his skin condition in not and he
seems to have discomfort in his back/hind quarters. It
is not chiropractic, but could be neurological. Vets
haven't been able to diagnose. So any suggestions are
welcome. I have been giving him COQ10, Raw Adrenal
Supplements, plus a whole host of other stuff that a
eastern practitioner recommended.

Re: New free simple way to stimulate immune system for
any type of infection From Astra2012 on 2005-11-07
Steve
Thank you-I definitely tell people to try it. Sounds
incredible in its simplicity but we here know very
well that best things are simplest.

Do you know if it works through immune system so it is
limited to diseases with immune sys. compromised, or
increases all body healing abilities?

Re: New free simple way to stimulate immune system for
any type of infection From Chris J on 2005-11-07
This is interesting. I wonder if it's the cotton
material itself that is exhibiting some kind of
homeopathic effect, or if another organic material
would have a similar effect.

Chris
mHomeopathy

Re: New free simple way to stimulate immune system for
any type of infection From stevelord on 2005-11-17
To Astra and Chris. To Asstra--this method has been
tried on many illness and injuries and has shown
across the board results comparable to the infections
we tried in both injuries and diseases and seemingly
stimulaltes beneficially all functions of the body we
can test it against, like improving sleep, faster
recovery from fatigue , even enhancing sexual arousal
while organic cotton is in the ear (remember it must
be organic cotton).
Thus it can be tried in anything with a likelihood it
will work and obviously so.

To Chris, Its the pressure that does it not the
organic cotton per se but the pressure is simulating
the fetal finger exploring the ear and thus the
pressure must be caused by something the body cant
distinguish from a body part and cotton , and now only
organic cotton works due to the genetic engineering of
conventional cotton, although some lesser effect is
caused by using simple white toilet paper which is
similar to cotton in that it is also made up of
glucose molecules strung together. but I woundnt
recommend that inferior method. THanks Steve

Re: New free simple way to stimulate immune system for
any type of infection From new2town on 2005-11-17
Strangely, my dad has the same cotton in the ear(but
both ears) theory, taht we all laugh off- maybe there
is some truth to it?

Re: New free simple way to stimulate immune system for
any type of infection From stevelord on 2005-11-21
Hi new2town. Ask your dad where he heard it and tell
him one ear is vastly better.

People from a number of countries have told me or I
have read on the internet use this method. It is
listed in folk medicine websites. But it is not
appreciated yet as to its power on everything and is
mostly used only in ear infections but in Southern
India pregnant woman use it for infectios someone
emailed and fatigue.

Does anyone out there in abc homeopathy land know of
anyone who gets migraines because I corresponding with
a professor from India who is telling people about it
and reports that not only does it cures colds fast but
totally prevents migraines in 2 people that tried it
for that if used all the time. Three other people I
know tried its equivalent for migraine and report that
if used immediately at the first sigh it eliminated
the migraine in 5 minutes and if it has already set in
it eliminates it about 10 percent an hour and all 3
were long time suffers in whom nothing had worked and
got migreaines lasting for days. Just thought Id see
if you all knew anyone so we could see if it worked
for everyone as migraines make peoples lives hell on
earth. (remember to tell them is HAS to be organic-if
this is a folk remedy around the world it is going to
stop working as genetic modied cotton becomes
universal-the INdian people I mentioned re migraine
used an organic brand I sent to the professor -but
ENgland sells organic cotton I am told .

***New*** How I Stopped Prostate Cancer by inhaling hydrogen peroxide
HYDROGEN PEROXIDE
Hydrogen Peroxide is the most over looked chemical used by man. New uses of it are coming to light every day. Bad bugs be they, in your garden or your body, they cannot live in an oxygen rich environment.
At 69 years old my muscles were so tight that to get out of bed I would lay on my stomach and back out on to the floor, push down on the bed and stand up. I knew there was something to correct this bad situation. One morning while having coffee with a friend, I noticed he had brought a small stack of books with him. Being curious, I asked if I could look at the books. The one that stood out to me was "O2xygen Therapies". As I was scanning it, it became more interesting to me. I asked him if I could take it home. It was a week before returning the book. Being convinced Hydrogen Peroxide was what I was looking for, it was now going to into my system? The book gave three choices. Put 8 to 10 drops in an 8 oz cup and drink it, four times a day. Next was, put a pint of 35% in the bathtub and soak for 1 hour once a week. Or go to a doctor for intravenous infusion once a week. None of these had any appeal to me.
After a week or two I decided that the easiest, and most efficient way was to inhale the 3% peroxide into my mouth and on into my lungs. I just happened to have a “Nasal Spray Pump” (see sample picture below). I dumped the contents out, put in the 3% peroxide as it comes from the drugstore. Now, how many times do I pump? I settled for one pump per inhale, and 4 times a day. That went on for about a month. As I was laying down for a short rest, I noticed that I was breathing freely. No forced inhale or exhale. That was the first thing that I noticed while inhaling the peroxide. I then changed the time when to inhale the peroxide. Now I inhale 2 times in the morning and at night. While deep inhaling I pump the pump as many times as I can, usually 8 to 10 pumps each inhale. Another thing I noticed was, I sleep all night with my mouth closed. I used to have heart aches that were very uncomfortable, no more.
My wife and I have been inhaling peroxide for 9 years now and no colds, sore muscles, aches or pains. I take no medication or vitamins. I am less than two years to 80 years old. My lungs don’t give out when I work in my garden or other things around the house. My house is 160 years old, so the work never stops. Peroxide keeps our oxygen blood count in the high 90’s.
One of the first people that used the peroxide as I do was very interesting. He had a low self-esteem. I found out that he was on kidney dialysis. I discussed the peroxide several times with him. Finally one day I went to his house with a nasal spray pump. He opened it and poured out the contents and filled it back up with 3% peroxide. He sprayed it in to his mouth and into his lungs. I said you know how to do it, and I left. Three days later I called him to see if anything had happened. He said that he could breath easier. Four days latter he called me, he was so excited all he could say was “It’s working, It’s working". I asked "What did it do?". He said he was waking up about an hour and a half before normal and that he was coughing up all the bad stuff that was in his lungs. He went back to bed and when he woke up, he said he had not felt that good in years. From that time on his spirit was always good and his voice was up beat.
A couple of people told me after four or five years of using the peroxide they stopped. I ask why and both said they did not get sick, and they don’t think it was working. You can make that judgement. One friend of ours goes to the doctor for pacemaker check ups and the doctor tells him the peroxide will not help him but it will not do him any harm. He is using his second pacemaker. He has told me several times; if it were not for his inhaling the peroxide he would not be here today.
Bill Munro
Website: www.landrights.com

Nasal Pump Use
The nasal spray pump plays a big part in my use of peroxide. I use it to propel the peroxide into my lungs by spraying it into the back of my throat. I also spray my toothbrush to clean my teeth, to clean my glasses, spray minor cuts and scrapes, and wet postage stamps. Peroxide can be used as an aftershave tonic. Spray it on your face and rub it in. BE SURE you close your eyes when you spray your face. It will be uncomfortable if you don’t. Peroxide may be a factor in retarding aging.
I have an additional nasal pump that is full of distilled water and I use it to flush out my eyes when they feel a little dry. I spray my eyes and let the water drain down my cheeks. I wipe the water off my cheeks only, with a tissue. There are no chemicals in distilled water.
I think in the future many of the prescription drugs will come in a spray pump. Several do now but we will be seeing more. This allows the drugs to start to work instantly. They will go right into your system and not have to ward off the acids in your stomach. They can be easily dispensed almost anywhere.
Do you have a suggestion for the use of a nasal pump? I’d be interested in hearing from you.

GARDENING WITH
HYDROGEN PEROXIDE
This will be the most phenomenal article you will ever read. It deals with something as simple as H2O2 (Peroxide) and is harmless to all good things. I have been gardening for about 40 years and was wondering why bad bugs had to have a very specific pesticide to control them. I had been inhaling peroxide for aches, pains and allergies and it seemed to control all of them. Not having any source to go to for the information on how to use peroxide in the garden, I decided on the trial and error method. I have never started a project that I new how to get to the end, and this was no exception.
The beauty supply store would have the peroxide that I needed. The 40% peroxide cost about $2.50 a quart. I bought the least expensive they had, because I did not need any additives. Having no knowledge of what strength to use, I used 8% for my plants. They did not die so that is the strength I have used ever since.
If you have a small garden you will need a hand squeeze sprayer. A little peroxide goes a long way. My lot is about 100 X 85 and I use a six-gallon sprayer. I have it mounted on a 2-wheel handcart. The peroxide comes in several strengths, so the strength you start out with is not that important as long as the final strength is 8%. Peroxide should be kept out of the sun.
When you plant the seedlings dig the hole and spray it with peroxide using your hand sprayer. Wet it good and then wet the roots of the seedlings or small plant.
I don’t use any commercial fertilizers. I have my own well so I have none of those chemicals the government uses in their water. When I prune the fruit trees, I put the trimmings in the chipper and add all the ashes from my wood burner and then till them into the garden in the fall. My garden is composting all year long. The grass clippings are used for the walkways between plants. I started out with clay, now the soil is black and soft.
Corn was the first plant that I used the peroxide on. I marked two rows off and every 12 inches made a hole about 2” or 3” deep. I put one kernel in each hole then poured about third cup of 8% peroxide in each hole and covered them up. In 5 to 6 days the sprouts came up. Fourteen days later I repeated the process without the peroxide. They came up in 12 to 14 days. Fourteen days later I repeated the first with the peroxide and they came up in 5 to 6 days. As the corn grew the corn with out the peroxide did not grow well as the ones with peroxide. I have noticed that the birds do not attack the ears of corn any more, and I assume it is because there are no worms in ears of corn. Birds can fly over the corn and know there are no worms in the corn. Do they have a sense that man does not have?
Acorn squash was next. They were planted with out peroxide. After 3 or 4 leaves formed the bugs made filigree of the leaves. One new leaf was untouched. I sprayed the plants with peroxide and as time went by the plants sprouted new leaves. They produced several squash. I sprayed the plants after every rain. I planted turnips with no peroxide and the bugs over took them. I wet them down with peroxide and that stopped the bugs.
I planted radishes and they grew bigger than golf balls, and had a mild and firm taste. I will be planting radishes and carrots this year. Last year the turnips grew to 6” to 8” in diameter and were mild when cooked.
The next year I decided to try soaking the seeds before I planted them. I soak them for three or four hours just before I planted them. The only seeds that did not survive the soaking were the navy beans. They just slipped out of their skins.
The potatoes have been interesting. The first year I planted potatoes I planted them without soaking them but sprayed them after they came up. I wet them down (not soaking) after they were 6 or 8 inches tall. Then about three weeks later I just sprayed a mist over them. They had some very small holes in them but they produced good potatoes. The next year I soaked them before planting and misted them when they came up. Last year I had several self-sow potatoes. I transplanted them but used no peroxide on them. I have had self-sow squash that came from plants that were peroxide grown and they were bug free without using peroxide.
In 2002 I used one ounce of 40% peroxide per gallon. Just about every thing that was green was sprayed and the results were a big surprise to my wife and me, We had no mosquitoes or any other flying bugs in our yard. There were a few ladybugs but they were few and far between. I don’t think the peroxide had any thing to do with the ladybugs directly. However, the lack of bugs for them to eat would be my guess why there were so few.
The vegetable that gave me a problem was the cabbage. I was determined to conquer the cabbageworm. Years ago I sprayed the cabbage plants with peroxide to no avail. This year I soaked the cabbage seeds before planting them. There were no signs of the bug until the cabbage plants were almost full grown, then I poured about a quarter of cup of 8% peroxide over the cabbage, letting it flow down into the layers of the leaves. That stopped the cabbage bugs.
This year I will use hydrogen peroxide more freely on every thing that is alive and green in my yard and garden.

For more information click on links below.
Studies Reveal How Cells Sense Oxygen
Clue to spread of cancer discovered


These things are not homeopathic but I have tried both and to me they seem to help in various ways.


Erosive means ulcerative , thrush can be treated with live yoghurt. Ulcers often yeild to Merc 30 or 1m.


Bellis 1m will often cure lesions BUT do NOT take more than one remedy at a time.

Diet should be vegetarian.
 
walkin last decade
All these things are worth trying.
 
kuldeep last decade
LICHEN SCLEROSIS is NOT an INFECTION. It is an auto-immune disorder caused by an OVER-ACTIVE immune system which has begun to attack the body itself. If you have an auto immune disorder, boosting the immune system is NOT the appropriate response and could make your condition WORSE.

- fellow sufferer
 
agirlwithaguitar last decade
TO Miss K:

I am a fellow sufferer of lichen sclerosis. It seems like maybe the doctors you have seen have not given you much good information. LS is an auto-immune disorder with genetic component. If you have it, the only known treatments for it are the steroid creams you have been prescribed. Be sure and use the ointment, because if you don't suppress this condition, it can destroy your labia, clitoris, urethra and vulva. It can make it difficult or even impossible for you to have sex or pee ever again without surgery. This is a very serious and dangerous condition.

You should see someone who specializies in gynecological dermatology. GPs, OB/GYN or STD specialists don't know much about this condition as it is rare. I did not get good information or advice until I saw a gynecological dermatology specialist. If you have health insurance, insist that your physician refer you, or call around and just demand to be seen. In the meantime, you should apply the ointment twice daily to all areas of your vaginal and anal area that do not have pubic hair, until you see no more white skin anywhere (only pink), including the clitoris, urethra and vaginal entrance. Discontinue on any areas that become red or sore. Examine the area in a mirror daily.

And, good luck!
 
agirlwithaguitar last decade
Hi there

thankyou so much for your email. I am a little confused by it though. I notice that in all the natural therpaies supressing it doesnt help to get rid of the condition at all so why would supressing anything be a good hting..it might only come back later ten fold..think of it like this we are told by specialists that it is important to release tension and stress and not to bottle it up by supressing the emotion because it only causes more stress so wouldnt the same thoery apply to this condition?? I have not taken any steroid creams at all..i am ending up with lots of little pink scars on my skin which dont look very nice but i dont see how the steroid creams are really going ot help either other than to avoid the scars.. my main ocncern right not is the Oral lichen planus..it is getting pretty bad..i have white striae all in my mouth and lots of what i think are ulcers..im also experiencing pain behind my wisdom tooth.

ALso i didnt understadn what you meant about rubbing the oitment on the skin around the vulva until its all pink?? is the cream you use pink? ive seen only white cream in the past. i dont feel confortable about applying those creams down there..i have enough problems i think.. i had too much lactobacilii in my vagina and was given a cream for it which i took only half the treatment...

Lichen planus is i believe a weakening of the epithelial cells which cause the pigmentation..now on a swab test of my vagina it also had that the epitelial cells had only 1 cross instead of 3 so i took that as being that they are weak in my vagina as well which probably has soemthing to do with the fact that i had a profuse amount of lactobacilli. I am not sure if they are connected. I do not have any thrush..maybe i never did and it was misdiagnosed as thrush..

My other conmcern is that i have what a doctor beleives to be prolapse..at 27 thats alittle annoying..especially since i havent had any kids..i am slim...and i exercise..its so weird that i have it..i am putting it down to years of straining when i go to the toilet.

Unfortunately it has been months and i am waiting to see a dermatologist for my skin and i have no idea about the Oral lichen planus. I am not sure what to do...doctors will only give me a topical cream for it and i dont really like that idea..

how are you going with it??
 
Miss K last decade
Hey... I asked my gynae, Miss Wendy Reid of the Royal Free in London (who specialises in Lichen Sclerosus) about the potential dangers of boosting the immune system as I was taking herbs from an naturopath to do just that. She gave me a detailed explanation of how LS actually works as an autoimmune disorder which I cannot recall, but suffice to say that she was VERY clear that it was FINE to boost the immune system. It would have no negative effect on the LS. Which was a great relief to me, and I would guess, to you!

For what it's worth, she had a student who had done research into tea tree oil (4/5 % - NEVER neat - and some people are allergic so patch test first - some burning sensation is normal) and it had proven that it helps skin elasticity, which is a real issue with LS.

I was using House of Mistry tea tree cream (no hidden nasties, parabens etc) and she was very enthusiastic about the change in my vulval skin.

I was also using steroid creams for a while, but when the course ended I just used the tea tree cream.

When I stopped using the tea tree cream she noticed the difference and berated me!

And, I would say that what has helped most with me is working on my mental-emotional state. I recommend the work of Byron Katie for calming your stressful thoughts - visit her site, listen to audio and video clips, and use her hotline volunteers (highly trained and, unbelievably, free!!).

An autoimmune condition 'down there' SURELY must indicate some kind of self-loathing...
So being loving to yourself, your mind, AND your body - realising it's not the enemy - is really helpful.

Stress definitely makes it flare up more. As does sugar in my case, by the way, and I'm not alone in this.

I would also say that although my LS is only very mild now - I came off steroids and tea tree cream at the request of my homeopath - I had a huge flare up when I first came off them. And, they WERE very effective in getting rid of my first bouts of LS.

So don't dismiss them.

You may come across scary cancer of the vulva stories.

Wendy Reid was also very emphatic that this didn't happen to people who were receiving treatment for LS, it was for longterm, undiagnosed, untreated LS where it was a risk.
Some people need to use steroid creams once a week, ongoingly, once the flare-up has resolved, and they manage perfectly well like this.

I would contact a support group and find a gynae and dermatologist who really cares and knows about this condition - that's what I did.

Good luck!
 
saritalove last decade
Hi Sarita, I've found your posts really helpful. You mention your homeopath in another post. I'd be really interested to know who you see sa I want to see someone who has some prior knowledge of LS.

Very best wishes and many thanks in advance!
 
liketobeholistic last decade
I have this condition, lichen sclerosis and I wanted to talk about my experiences.
I used the clobetasol steroid ointment for about a year and it really did help at first but started thinning the skin a little. I got my vulva looking pretty normal, though. At some point, I added the estrogen cream because I had heard it would help restore the normal color and it did for awhile. The only problem being, I started turning bright red around Christmastime 2006 and burning and itching. I decided to do an herbal cleanse. I found out I had intestinal worms and also I just got really sick for about a month with coughing, phlegm, itching all over, body twitches, yeast infections, skin rashes, fever, chills, back and neck pain, etc. And my LS flared badly.
Finally after a few months of taking vitamin C and garlic and other immune boosters all of this went away and I didn't have any flares of the LS for about 6 months either.
Later I took an antibiotic for a skin infection and the LS flared again along with the yeast infection and the back pain got a lot worse, the coughing, chills, everything came back. I figured out the connection might be yeast and started taking garlic and everything got better.
So for me I think now that yeast is the trigger for the LS.
I've been taking olive leaf extract and garlic and occasionally caprylic acid.

I didn't check myself at all for about 8 or 9 months and just looked yesterday and I'm completely purple and the skin has grown over my clitoris. I had stopped using the clobetasol and the estrogen crea.
So, now I'm going to start using the steroid cream again to try to get it under control
It's like a Catch 22 because I'm sure the yeast is a trigger but I need to get rid of it. And, I seem to have to use the steroid cream occasionally to keep the LS from getting worse.
 
archersdream last decade
I see someone posted my post heere about treating autoimmmune disease (in my case and another man whose email I quoted, it was autoimmune colitis) and someone here posted that immune stimulation would make an autoimmune disease like lichen slerosis worse not better, but that may be tru for most immune stimulants, but both of us have observed total abolishment of our symptoms with the descibed organic cotton ball in the ear method, because, muy deduction is that it stimulates also the suppressor cells of the immune system and in that way more effectively governs the immune system. I wont bore you with the evidence that that is so.

And why this works where other immune stimulants may have failed in autoimmune disease is that this one has evolved over millions of years (in the fetus who it appears explored his ear a lot with his finger and therefore this method is more 'perfected' we'll call it, and it is thus able to stimulate, it appears, all arms of the immune system equally, not just the attack ones like the natural killer cells.

Thus it may indeed work in lichen problems if the person is not taking any immmune suppressing drugs like cortisone type steroids and if one pays attention to the conditions that I list in the paper someone posted here, or I listed them again in a thread here about using the fetal hand position which does the same things as the organic cotton technique, that fetal hand post is on the first page as of now of this forum. One might try that because the only orgainc cotton that I can vouch for must be mailed ordered from ORganic Essentials in Texas USA, dont know about the British version, whether it works.

If this doesnt solve the problem then ther ar a few other lifestyle changes I can recommend that help to more 'perfect' the immuneee response, that one can nclude but in either case, I would recommend avoiding cows milk, anything cooked in a microwave or any powdered protein loke soy, as all three really corrupt my immune system and cause autoimmune symptoms immedieatly in me and Im betting in all people.

Steve Lord, Santa Barbara Ca.
 
stevelord last decade

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