Sudden Hearing loss _{Page 25 of 105}

Nitrams2000 - Did you got a shot into your good ear?
and if so, what did your doctor say and how was your audiogram if he gave you one?
I believe that if I had received a treatment of Prednisone for more than 6 days, my hearing would have returned because it came back distorted, but then a few weeks later, I lost all of it again in that ear.
It makes me mad that I had no access to more steroids. Unless, as I said before these two doctors did not want to give me more Prednisone because of the 4 meds that I have to take all the time.
Take care

ok back today. took my hearing test and the lady giving it to me must have been nuts or new I was trying to blow the thing. when I was done she said I passed with flying colors but i know for a fact I got some words wrong because when she said 'water' I said ladder and thnings like that. any way Dr. Atkins was reluctent but today he did give me the ear shot and the prednisine pills. I got my first ear shot in the good ear and scheduuled for second and third. my ringing today was pretty loud sized but that may be my fault. I have had less then about 5 hours asleep in the last three days and i was worried sick and stressed and been try to catch up on work. the nurse said I do have a fever to of 99 which was wierd since last night it was acutally very low. like 96.5 degrees but she said its not real high and my blood pressure was high she said. tomorrw they are bringing me on a big blood test to see if i really do have AIED .

'Hope' you might want to look into this. you might have that. I read on the net that when it attacks one ear then it could be many things but usually when it attacks both ears together its noise related and if it attacks one ear at a time then it is most likely AIED.

I also talked to him about a whole new list of things to do.

1. Cutting the nerve Surgery. He said works 50% of the time. if it is nerve related it will work and if it isnt then you did it for nothing and it wont work. doing this does not effect your hearing though.

2. drill surgury. this is where they drill a whole behind the ear and put antiobootics and steroids directly in the inner ear. he said didnt know much about it and it was very new. they dont do it do to lack of access to the proper drugs to use. he said its actually i old idea they used to do many years ago but the main drug they used for this back then is now off the market due to difficulties.

3. Aldosterone - he said its a harmless harmone and didnt see why this would help but also he said it couldnt hurt.

4. methotrexate- a chemotherapy agent that has similar effacts as prednisone but he said this one is much more serious. he said there is actually a small chance you could get cancer form this drug. he said he wouldnt take it. so i guess that one needs more research.

so i will see after blood test. im hopeing that the ringing stops and the shots work. i have been reluctant to try the prednisone pills after hearing that it is a ototoxic drug, that sorta scares me. what if the prednisone cured my left ear but caused my right ear to ringing. i just got a big set of prednisone from a online store and got more from a vetanarian i know. he said they give the exact same pill to dags for itching and he gave me a ton of them. so right when i decide i might not want to take it I get enough of it to kill someone. lolol

by the way the me posting so much comment was just a joke. I know I post to much . sorry guys. :)

Hope I wish there was something I could do dear. I went to church and I prayed for us all. God will hear our call. he will help. I know this to be true. this is not the end. we our lost sheep and we shall find our shepard.

yur an angel. :)

ok back today. took my hearing test and the lady giving it to me must have been nuts or new I was trying to blow the thing. when I was done she said I passed with flying colors but i know for a fact I got some words wrong because when she said 'water' I said ladder and thnings like that. any way Dr. Atkins was reluctent but today he did give me the ear shot and the prednisine pills. I got my first ear shot in the good ear and scheduuled for second and third. my ringing today was pretty loud sized but that may be my fault. I have had less then about 5 hours asleep in the last three days and i was worried sick and stressed and been try to catch up on work. the nurse said I do have a fever to of 99 which was wierd since last night it was acutally very low. like 96.5 degrees but she said its not real high and my blood pressure was high she said. tomorrw they are bringing me on a big blood test to see if i really do have AIED .

'Hope' you might want to look into this. you might have that. I read on the net that when it attacks one ear then it could be many things but usually when it attacks both ears together its noise related and if it attacks one ear at a time then it is most likely AIED.

I also talked to him about a whole new list of things to do.

1. Cutting the nerve Surgery. He said works 50% of the time. if it is nerve related it will work and if it isnt then you did it for nothing and it wont work. doing this does not effect your hearing though.

2. drill surgury. this is where they drill a whole behind the ear and put antiobootics and steroids directly in the inner ear. he said didnt know much about it and it was very new. they dont do it do to lack of access to the proper drugs to use. he said its actually i old idea they used to do many years ago but the main drug they used for this back then is now off the market due to difficulties.

3. Aldosterone - he said its a harmless harmone and didnt see why this would help but also he said it couldnt hurt.

4. methotrexate- a chemotherapy agent that has similar effacts as prednisone but he said this one is much more serious. he said there is actually a small chance you could get cancer form this drug. he said he wouldnt take it. so i guess that one needs more research.

so i will see after blood test. im hopeing that the ringing stops and the shots work. i have been reluctant to try the prednisone pills after hearing that it is a ototoxic drug, that sorta scares me. what if the prednisone cured my left ear but caused my right ear to ringing. i just got a big set of prednisone from a online store and got more from a vetanarian i know. he said they give the exact same pill to dags for itching and he gave me a ton of them. so right when i decide i might not want to take it I get enough of it to kill someone. lolol

by the way the me posting so much comment was just a joke. I know I post to much . sorry guys. :)

Nitrams2000
Thank you for your kind words. Tomorrow I will make an appointment with Dr #2 (I want to know what his reason was not to suggest the shots into the ear). Cannot bother Doctor #3 (the famous doctor) because it is very hard to get an appointment with him and my next appointment with him is not before next January. Besides, he did not do anything wrong. It was the second doctor that I saw that for some reason did not give me anything. His attitude was more or less 'learn to live with it'
May God help ALL of us afflicted with SSHL so that we can find inner strength and peace.
P.S. I am so glad that the very young poster has decided to put SSHL on 'myspace'. The public at large does need to know about SSHL.

Hi All - just got back from my Audiogram and have gained anther 10% hearing in the last 2 weeks equates to 40% hearing back over a period of 4 weeks so things are still heading in the right direction.
I passed the word test by 80% so I am still feeling cautiously optomistic.
Not that the Audiologist was he started to talk hearing aids and I said well if need be but its still early days.

My treatments that I am still having are IV antivirals of Hydrogen peroxide to stop the autoimmune response and inflamation,Selennium for the virus and Quercetin as an antioxidant, vascudilator and for inflamation, 2x a week.

Sucranial Massage and acupuncture from my osteopath 2xa week and a load of supplements which I will list another time.
So I feel good, the fullness is subsiding although the hissing is still there and gets worse at the end of the day, they say its the brain trying to hear the incoming vibrations.

Gosh Nitrams2000 thats great you havent't lost hearing in your other ear, you were brave to have the shot I hope it releives the ringing for you.

Mertie

It was great reading your post and hearing that your hearing seems to come back.
I am glad for all of you that have a successful recovery from that damn HHSL.
I wish I could also report the same. Unfortunately some of us are not that lucky.
Nevertheless, we cannot and will not give up hope. And we have to take it one day at a time.

To Nitrams2000 - What I was trying to express was the frustration of seeing so many MD's, chiropractors, acupuncturists, etc. with totally different opinions who all firmly believe they are right. But nobody ever actually finds a definitive cause for SHL, much less a cure, or even much effective treatment. The message board entries from folks who only recently came down with SHL are always so enthusiastic and goal-oriented about getting the problem fixed, but after several months - and some natural improvement due to the body's healing process - we just give up searching for answers and try to deal with it as best we can. I remember having that enthusiasm last April... Now I just struggle daily to keep from tearing my head off because of the constant tinitis.

cmaccart, I know it seems crazy they have no cure. have you looked into the nerve operation. this is where they cut that never behind the ear. it may be your answer.

today I found a very important connection between Diabetes and hearing loss. Just like loosing your vision they have now made a connection with hearing loss and diabetes. I sweat at night sometimes which is a sign of diabetes and my moom and uncle both have diabetes pretty bad. so I am going to get checked. I may hve found my culprate after all.

two very importandt atricles to read that may help you understand.

1. How Sugar Metabolism Affects Tinnitus.

http://www.tinnitusformula.com/infocenter/articles/treatments/sugar_met.aspx

2. Diabetes and Hearing Loss: Exploring Connections

http://www.drf.org/hearing_health/archive/2003/fall03_diabetesandhearingloss.htm


read these. the inconclusive they make since. think about it. lately we have had alot more sudden hearing loss cases. and what are we doing alot more in america lately. EATING WRONG and gainng weight. Infact after talking to a doctor today she says more people die of diabetes then almost any other disease. it is the second biggest killer.

Nitrams2000 - Does your Mom and Uncle have diabetes (genetic) or diabetes 2 which comes from eating the wrong food?
Diabetes when it is genetic, can attack the eye site after a person is in his/her 50ties. For those that have diabetes 2 all they need to do is loose weight and not eat the wrong food (as you put it so well) and they can cure themselves. I doubt that diabetes 2 is a culprit for an onset of SSHL.
In my entourage at work there were quite a few overweight software engineers that came down with diabetes 2 none of them has had an onset of SSHL so far.
I blame more all the ototoxic drugs that doctors prescribe these days when they never even check if a certain drug is ototoxic or not.
In any case thank you for the links you gave us to read.
You are certainly not a quiter and I bet you will eventually get to the bottom of what caused your onset of SSHL.
Take care and stay well.

now I dont want people to get thier hopes up but I was hunting around on the net and found a drug called Tebonin. it seemed intersting so I am going to try and buy it.

so far I bought ear vits. no change, I bought clear tinnitus, no change really. and just bought tarches and now buying tebonin.
'
tebonin looks promising though. they even have a commercial on tv. the link is.

http://www.tebonin.com.au/contact_us.asp

nitrams2000- I only lost hearing in the left ear. I don't know for sure if it was the zoloft. I was put on that when I complained of dizziness, hot flashes, and nervous stomache. A year latter after the zolfot i woke up with SHL. Be careful of your weight while taking any of the diffrent steroids. They made me gain 20 pounds and a fat face! It sucks because you have no energy when this is happening. I didn't funtion okay- outside on my own for at least 3 weeks. Now that it has been a year since my loss, I'm getting used to it!

Thanks Hope01 for your kind words I hope and pray for you and every one on this site that they experience a miracle, even the slightest bit of hearing back is a good feeling.

I saw the ENT this morning as a follow up from my audiogram yesterday and he was quite surprised with my improvement .
I asked whether there would be any benefit in taking more prednisone as I didnt have 2 bad a time with them and he said if I were to ask him for them he would give them to me.
He then said if I were to ask him if it were him, would he take them, he said yes he would as I am still having improvement.

However I am hesitant, because of the alternative treatment I am having, its hard to tell whats working and whats not so will talk with my GP.

All in all I feel greatful for what I have today.

be carefull taking the prednisone. I may start again. im taking the shots to the ears now which is decodran and is basically the samething form what i hear. prednisone is a friend and a foe.... it helps and I swear buy it but if you take it to long it is a ottoxic drug and ototoxic have been proven to cause tinnitis and hearing loss. now that my hearing is back in my left ear i wonder if the ringing in my right ear could have been cause by the prednisone. 60mg is a day is allot of steroids you know. that a huge amount to take each day i hear.

Thanks Nitrams200, yes I'm a bit like you at present, know that they're there to take but too scared to take them, its a dammed if you do amd dammed if you dont really.
I shall give it some deep thought

Thats intersting Nitrams Tebonin is an extract of Gingo Biloba which I take each day as a tincture extract and it does help with circulation.

thats the only thing that makes me mad about these new things coming out. they claim they are a cure and they really are nothing more then vitamins with fancy packaging.

tebonin looks just like enzyte. both are jusy fancy packaging. enzyte is just yohimbe and that thing is just ginko. so if i am allready taking ginko then how tebonin supposed to help. what they got turbo ginko or somethin.

To all
Since I am on my PC this morning, I checked the latest posts on this forum. I read that some of you use Gingko Biloba.
So did I until a few days ago.
1. first got it about 3 months ago after reading that it helps Tinnitus.
2. Indeed he seemed to help to reduce my tinnitus substantially.
3. But then it got worse again
Had lunch with two Friends last Thursday one of them is a graduate from MIT, very smart woman. When I told her what I reported above in this post, she said 'Oh God, this is why your Tinnitus is so loud, stop taking it'.
4. So I stopped and guess what, my T. is a lot less loud now.
5. Checking further into Gingko Biloba on the net, it says that it reduces Tinnitus, but a few lines below it says Gingko Biloba can cause Tinnitus.......
I guess you are damned if you do and damned if you don't.
It is just like with the steroids, they are ototoxic, but yet we get them for treatment for SSHL.
Just all soooo crazy.
Hope top find a job soon that will not interfere with my hearing impairment, I need to get away from my PC. Now I am going for a ride and enjoy the autumn leaves here in New England
Hope you all have a good day despite our hearing problems and all these contradictions.

please overlook my typos, in the previous post, I just have to get away for a while.

To Seattlestan:

Have you taken the bio-identicial Aldosterone? This is the drug/formula that Dr. Howenstine recommends in one of his websites.
Thanks,
nvega

nvega & others

Have had 5 days now of 60 mg. of Prednisone and no quick recovery as I experienced 14 months ago. Saw my ENT yesterday and am seeing an otologist later this morning. My ENT wants to get more drastic (it has been 4 days now since my hearing dimished over the course of the day)and believes that intra-tympanic injections of Decadron might be the approach this otologist will pursue.

I also talked to her about etiology of this (now that it has been twice occurring) from a systemic point of view, as I ended up with cataracts in 2003 and had ocular lenses via surgery, have high cholesterol/triglycerides, have had several bouts of gout, sinus issues on the left side...I put forth Aldosterone, but that went no where, so I am bringing up this whole system/holistic stuff with the otologist in a couple of hours, as well as Aldosterone. I have sent an e-mail to a local pharmacy that sells it, to find out the cost, but have not heard back.

I will share, as all of you have, whatever I am told and whatever seems to be working. It's interesting that I started taking Ginkgo Biloba about a month ago to deal with an increase in tinnitus and now I am reading here that it may not be the best thing to do. I will also bring that up with this otologist.

Seattlestan,
Thank you for your speedy reply. For your sinus problem you may want to look into a Neti Pot, a simple device that looks like a pot you use to water plants, only in miniature size. You use this for nasal irrigations. Practitioners of yoga have been using it for centuries, to help cure/alleviate sinus problems, colds, etc.

As for the Aldosterone, I'm very curious about it. When I got SHL in February 2006 I was taking Spironolactalone, which supresses the production of Aldosterone. Since it is a hormone,of course, I must do my research before ingesting any of these medications...pharmaceutical or natural.
Thank you for your feedback.
nvega

Seattlestan: I read your post and then the one under your recent one, I've been taking Grapeseed Extract for 12 yrs and no longer have allergy/sinus/headaches...
prior to taking this incredible antioxidant, I had major allergy/sinus/headaches all my prior life. I'm 68, so I started on GSE when I was 56!!!
Check into this supplement and it's never too late to get on it. I got my Mom on it when she was 86, and her general health, colds, cold sores, etc. were virtually gone. She passed at 91, but the GSE helped her for all those years prior.

nvega, joyce martino & others:

Just got back from the otologist. He thinks with my history that SSHL is not a systemic response, but viral and suggests I continue with the 60 mg. of prednisone/day. If no change, he will inject Decadron this Friday. I brought up Aldosterone, which he will look into as he was not that familiar with it.

As to the neti pot, I have one, and only recently started back using it...I need to be more serious about some of these things I have been made aware of!! As to the grapeseed extract, I have read about that, not pursued it, but will look into that more. Thanks for all your great suggestions. Whatever happens, this blip in my life pales to some of the bullets I have dodged in my 61 years of living sometimes recklessly. Expect to hear back from me in the next several days.

after long thought and consideration. I have decided to maybe go back on the prednisone. I dont want to miss my window and i'm scared not too. today was a really hard day for my right here. probably a tie for one of the loudest tinnitus days yet. I know its not a loud as some others but mine is pretty loud. i can here it greatly at night and in the day i can hear it everywhere today but other days i hear it faintly. I just hope its not getting worse. it scares me to death to think i might have to go through this all over again.

now i am going crazy i think...

first i should use ginko then i shouldnt then red yeast rice is no good now some pills im taking may or may not be causing this. im at a loss .. accupuncture guy seems to try to help real hard but i think there is only so much he can do..

I am beginning to beleive that I am finally doomed. its all i can do to fight anymore. today I decided to walk and i was next to the road. i thought to myself these cars are zipping by if one hits made finally this will all be over with. What a night mare these lkast 2 months have been.