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BXO help needed38bxo - bxp2bxo my son 10 yrs old.1Alternative Medicine & Holistic Treatment of Phimosis, Paraphimosis, and BXO (Balanitis Xerotica Obliterans), Swolen, Closed or Sleightly Tight Prepuce, Unable to Retract... Use Homeopathy.1bxo (balanitis xerotica obliterans)2Balanitis Xerotica obliterans-BXO1

 

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BXO treatment... Page 22 of 37

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My foreskin completely covers the glans most of the time and urine is trapped beneath it after voiding. Right now im under dermovate and most probably going for a circumcision shortly. I think dermovate has done a big improvement after 1.5 weeks of use and the inflammation has folded back noticeably. Laser is something im considering to vaporize the BXO on the tip of the meatus but that's something I need to discuss with my dermatologist. I am probably not the best person to talk on this thread, as someone pointed out before, though i will encourage anyone to follow a natural treatment if your BXO is confined only to glans or prepuce, which is not my case.
 
draytek 5 years ago
Hi everebody

I read something that says DFrance about this recovery, that I didnt stoped in the road to give some importance. I drink, eat, etc a lot of aspartame, whit the diet coke, whit the breakfast edulcorant, whit diet candys, whit all in the day to take my weight under line. I realize know that this is poison... although may be its not the only or THE KEY of the BXO, we didnt know. I say this to fin common things between us the patients of this illness, a way of help anyone... I dont have a lot of troubles whit the ring, but the EMU oil has helped a lot whit that mixed whit the DMSO to go trought the skin. My problem its the White pacht beside the uretra, and the Little inflamation that has progressed over the years. (I have 7 years whit this since started the ring and the Little White pacth that progressed to the size of a coin)

See you all, thanks for share
 
astor 5 years ago
An update from me.

This thing is slow. Depressingly so, in fact. Yes, it's still improving, and yes it's still peeling, but at the rate it's progressing, I'm picking it won't be done until next year at the earliest. I see peeling, yes, and I see small patches of normal colour creeping back in at the skin that is at the very edge the BXO skin was, but the rest, while considerably softer, is still several layers away from reaching the same stage.

The affected areas on the glans are thinning, very slowly, and the phimotic ring is also thinning out, slowly. The areas that were less thick initially, however, aren't really improving anywhere near as 'fast' (and I use that word very loosely, because the quickest healing is still incredibly slow.

Maybe this isn't the forum to vent, but I'll say it anyway. I'm really over this, and I'm not sure I can be bothered waiting as much time as natural treatment appears to be going to take. Steroid creams may be harsh and nasty, but would you not agree that no sex and compromised masturbation for a year and a half is also harsh and nasty? That's how long it's been that I've been staring at my dick every day, hoping to see signs of improvement after trying some treatment. Granted, I only discovered the true cause a little over a month ago, but that doesn't change history. I've wasted a year and a half of my life, and going by the current rate of recovery, it's set to be at least two.

I've put a date in my calendar on the 15th of August. That marks two months since I began treating myself naturally. At the start of that week, I'll make a decision over the rate of progress I'm making, and if it's so slow that it continues to worry me, I'll make an appointment to see my doctor. What I've learned thus far is that the treatments I've been trying are capable of making the condition improve, so it stands to reason that, if I can use something more powerful to speed up the recovery, I'll at least be able to maintain it naturally once I'm back to normal.
 
greaneyr 5 years ago
Hi everybody

Hey Greaneyr... seems like you are really really impatient. I have this illnes since 2007 !!! 7 years men... !! Im married, and this doesnt prevented me to have sex... anyway, this s h i t its making crazy everyone in this thread, so if you have only negative things to say... go talk to your doctor and after that, if you find something positive, then come here again and share it whit us... it gonna be productive for all. Here we sharing knowledge that everyone has adquired over the experience of be a 'guinea pig' trying things out of common to see what happens, and share it if functions. Dont be negative. Dont ask a fast cure of a incurable illness of years.

So, after this introduction... a good tip. I cut a condom in the head and this Works wonders to have the prepuce retracted all day long. The glans its REALLY DRY all day. I Tried Time ago the Tacrolimus ointment (PROTOPIC) but in the laspe of a week I get herpes in the below the glans so I stoped inmediatly, but that was because (I think) I dindt have retracted the prepuce and that ointment has the hability to depres the inmune system, so affected all the skin when I wanted that only hitting on the glans. The thing here its... By night before go bed Im applying The protopic only on the BXO skin and whit the cuted condom y have retracted the prepuce all night so the ointment doesnt touch the rest of the skin. And for make more powerfull this, im applying DMSO before the protopic, so the protopic penétrate deep on the skin. In the morning. I continue whit the TTO and DMSO mix, because this helps to prevent from any bacterium or virus (like herpes). Remember that the Protopic depres the inmune system and the área its a Little free for the entry of the bugs...

I started this last night, ill keep you updated...

Again... share!! share!!... Thanks to all. Togheter we will find a way to overcome this...

Good Bless you all
 
astor 5 years ago
Greaneyr, if your BXO is very severe and you have trouble retracting I would really encourage you to get doctor advise straight away. There are very good non-surgical treatments out there and you can discontinue them whenever the condition improves and resume the natural approach afterwards. Two months of Tacrolimus usage is probably way more effective than 1 year using TTO.
[message edited by draytek on Wed, 23 Jul 2014 14:55:23 BST]
 
draytek 5 years ago
draytek, I can retract easily. That is one significant improvement I admit I have made - the ring is SO much looser and narrower in width than it used to be. To look at, depending on how moist the area is, you can almost not notice any indentation when the skin is back.

The reason I've been avoiding sex is twofold. First, my penis doesn't look 'normal', so is hardly attractive to a woman who might be concerned about STDs etc (BXO isn't contagious, but she won't know that and it will probably turn her off). Secondly, last time I tried it with BXO, the tight skin on the underside tore and it was extremely painful, then took weeks to heal.

astor, I actually feel a lot better after reading your post. I think I actually needed someone to bash me into shape and remind me that this is a long-term journey. I have to say, after reading your post I'm not overly keen to try protopic if it raises risks of other infections.

I hit a standstill a few days back as I was being gentle and wanted an area that has been raw almost since I began to finally heal. I've been avoiding the stronger treatments while it heals over. It's slowly getting there. The point is, however, that I stopped using Hydrogen Peroxide. I was still using talcum powder by day and manuka honey by night. I tried hydrogen peroxide today and, as soon as the skin dried out, I could see fresh peeling in lots of areas. I think that shows that hydrogen peroxide is, for me at least, a critical part of my peeling. Hydrogen Peroxide for peeling, Manuka Honey for healing.

Thanks again for the slap across the face. I sincerely mean that. I feel so much better today.

I'm going to continue with my plan to see a doctor if I'm not comfortable by a certain point in time, but might move that date back a week.
 
greaneyr 5 years ago
Started eating lots of blueberries and drinking atleast 3-4 cups of green tea a day to see if the antioxidants would help to finish this disease.

I've had problems with eating healthy and not eating like ice cream and stuff with loads of sugar, trying now to eat only fresh meat and vegetables.

Applying TTO/DMSO mix twice a day, and also trying to keep the genital area as dry as possible so no fapping/sexy time for me for now, atleast to see if it would help.
 
jomppa 5 years ago
A small update from me. I've abandoned the nappy rash powder as I had noticed the peeling had stopped with it. Perhaps it is useful in the early stages when the BXO is quite advanced and the thicker outer layers need to come away, but once you get through those and onto the thinner layers, I don't think it's so useful. I'm still using the Manuka Honey every night, and I absolutely swear it helps the ring loosen. Most mornings when I peel the skin back for the first time, I notice the ring is fractionally looser than the day before.

The key to encouraging peeling for me is to use 3% Hydrogen Peroxide. I have a small squeeze bottle that once had saline solution in it, which I keep my peroxide in. I then squirt a little onto the crevices that are difficult to reach, pull the skin forward, drop some into the foreskin, then pull the skin tightly to ensure the liquid gets all over the head and skin.

The protocol I've read on the website of someone who treated himself with it suggests leaving it on for 15-30 minutes, but this morning I left it on for an hour while I exercised, and at the end, I saw a larger than average amount of peeling. That could have been a coincidence, of course, but I'm going to try that again for a few days and see if I notice the same.

I have some TTO, and tried it for a couple of days, but it hurt even without DMSO and made the healthy skin very red and inflamed. I'll shelve that treatment for now at least.
 
greaneyr 5 years ago
Maybe I'm going through a particularly active peeling/shedding phase, but I treated myself a second time yesterday with the 3% Hydrogen Peroxide and, once again, noticed considerable peeling on my inner skin. It wasn't quite so much this morning, but still there. I may not always get the chance to treat myself twice a day with it, but I'm going to do my best. Also, something I find useful is to wear something to hold the foreskin over the glans to keep the liquid in for the full hour.

I have a question for those who have used the tea tree oil. I used some for two days last week, and I think it burned my healthy skin slightly. There is a small amount of healthy skin just behind the line where it turns into BXO skin that is a darker colour at the moment, and has started peeling slightly. I suspect it's a result of the burning.

I used full strength TTO, so maybe that was just too much for me? I'm curious to know how those of you who use TTO avoid it touching healthy skin. To me, the minute you let the skin go back over the glans, you lose all control about where the oil goes.

The only reason I ask is that there is a possibility the TTO is what helped spark this run of peeling on. All the areas that are peeling the most are also the areas I applied oil to during the week. It would be good to figure out how to use TTO without affecting the healthy skin nearby.
[message edited by greaneyr on Sun, 27 Jul 2014 04:57:57 BST]
 
greaneyr 5 years ago
The peeling I talked about in my last post hasn't really stopped. It might for a couple of days, but there's generally always some area that is peeling. I attribute this to the use of TTO. I apply it using a q-tip to try and keep it off the healthy skin, and most of the time that works fine.

If I was to describe the roles of my three treatments, I'd say that the TTO attacks the disease, the Hydrogen Peroxide encourages the dead skin to peel, and the Manuka Honey helps to heal the skin.

One thing I do wish I knew was how to determine how long a particular area will take to come back to normal. I notice more and more pink, which is skin well on its way back to normal. However, the pink only happens when you get very close to the base layers, and as far as I can tell, there's no way to gauge how far from them you are.

Right now, my challenge for this month is to work out how to make things progress faster. Clearly, what I am doing IS working. If I could have one question answered right now, it's 'how long will it take for this to be back to normal?'

I've ordered some of the Perrin Creme Complete, as I've read a lot of good things about it from both men and women. Now playing the waiting game for it to arrive - not expecting it for a few weeks yet.
 
greaneyr 5 years ago
Progress continues here. Applying TTO once or twice a day, hydrogen peroxide every couple of days and overnight treatment with Manuka Honey appears to be serving me relatively well, while I wait for the Perrin Creme Complete to arrive.

In saying that, I've made an interesting discovery over the past couple of weeks and wanted to share it. I think it's fair to say that my case of BXO was quite bad. Virtually all the inner foreskin had a thick layer of white skin, and the glans was similar. As this has been peeling back, there have been lots of cracks, which wasn't helped in the beginning by my overly enthusiastic deliberate peeling. I'd get wounds that would take, in some cases, weeks to heal. These wounds didn't remain their original size either. Due to the lack of elasticity in the surrounding skin, they tended to expand in size before healing, due to damage occuring when the healing skin was still tender.
But what I have noticed is that those areas that were wounded and have healed are back to normal healthy skin - same colour, same texture (when viewed under a magnifying glass, this is obvious). This brings about at least three points:
1) It shows the body is capable of beating this disease
2) It shows the view of western medicine ('while inflammation may subside after treatment with topical steroids, the affected skin will remain scarred') is shortsighted. Clearly, the white skin isn't 'scarring' at all if it heals back to normal following injury.
3) I believe it presents an opportunity for us to better understand the mechanism behind accelerating the recovery from this. I began by treating the entire area via the same mechanism. Why is it that I have patches that were injured and have not only managed to recover from injury, but have recovered back to normal skin while surrounding skin still has a long way to go to get back to normal?

I'd really like to open the floor to those with a better understanding of the body's recovery mechanism than I have to comment on the third point. I'm not suggesting we all go out and deliberately injure ourselves all over our BXO skin, but given we know that the body will recover back to normal if it's injured, perhaps there's some other way we can achieve a similar result?
The other thing I've found is that peeling only begins from around the edges, at the point where BXO skin meets normal skin. So those spots that were injured and have healed back as normal skin are providing some new edges for recovery to begin from.

All in all, it's a much more positive healing journey here than it was a few weeks back.
 
greaneyr 5 years ago
Did you want proper homoeopathic treatment for the problem?
 
Evocationer 5 years ago
I'd certainly be interested, yes. If it were able to accelerate the healing process it would only be a good thing.
 
greaneyr 5 years ago

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