BXO treatment... Page 37 of 37
On days I worked I would apply in the morning, when I got back home, and before bed.
At times the peeling would go into the healthy skin (especially on the glans) kinda like a fingernail peeling into the quick - it would bleed a bit and I'd take a break from applying for the rest of the day and maybe the next.
Frequency of application decreased once I started using Perrins products because I wanted them to soak in. I even taped my foreskin closed to keep where I needed it.
After I got married I stopped applying it for probably 3 or 4 months - needed my penis to be readily useable lol. And it looked almost 100% except I could tell my frenulum was still not quite what it was before BXO.
Then I would apply it daily for one week per month. I gradually started applying less and less and then stopped.
I've barely applied it for the last year and a half - very sporadically. But in the last little while the opening of my urethra is showing evidence of it again as well as my frenulum. It's further inside than before so I'm trying to get back into a routine - I'm afraid it may travel inside too far and cause a stricture. Apart from it being further into my urethra I'm still in much better shape than when I initially started.
So I've started trying to do at least twice daily when possible - definitely every day before work.
...so that's my story. I should not have stopped until I was 100% and I probably would have not ended up with it inside my urethra so much - that worries me.
Don't stop unless you're positive you're clear of BXO. For some it may always be a battle depending on it's cause (is it auto-immune for everyone? Diet? Stress? Nobody knows and I think whether you clear it or just cope with it is anyone's guess)
[Edited by dragonreborn on 2018-02-24 13:35:49]
dragonreborn last year
BarryLangston last year
My GP said I had vitiligo but I knew it was more than just a pigmentation issue - I do have a bit of vitiligo but that wasn't my concern. My foreskin wasn't retracting as far as it used to and I told my doctor that - he retracted it and said as long as it clears the head it was fine.
But I used to be able to pull it back twice as for with no ridge of skin. With the frenulum issue it would go tight while i still had plenty of foreskin to keep retracting but not now - happened so gradually until one day it was so obvious that my frenulum had changed and widened and I had to be careful having sex and needed lots of lube which was never a concern.
Needless to say, doctors aren't always as helpful or intelligent as you hope they are lol.
Keep working at it and don't lose track and regress like I did.
dragonreborn last year
BarryLangston last year
dragonreborn last year
Finding the right Urologist is key. Thankfully I found a couple who are very knowledgeable in BXO. Remember not to get lazy with applying the oils and keep up with your diet.
Jersey57 last year
I have only recently been diagnosed with Lichen Sclerosus BXO. From many of the posters here they talk about having hard white skin, white spots etc. I don't have any off those symptoms. I have much paler skin on my penis head, itch, burning sensation and severe dryness. If I keep it moist, I manage to get on with life. If I let it dry it goes all nasty and horrible and usually develops into Balanitis which has it's own range of symptoms.
Is this what you guys have as well? If so, did you start using the solution dFrance has proposed or do you think it would be too much for my skin as it's not hard?
Any advice would be unreal as I am so incredibly depressed from this condition and can't enjoy life in any sense anymore because of it.
p00674605 last year
Welcome to the BXO forum.
You should spend time to read through all the posts...it's lengthy but you'll likely find benefit from doing so.
You'll notice a lot of our symptoms vary from person to person. Like you, I have a lighter pigment on one part of my penis head but only really noticeable when flaccid. Still a decent colour but not the nice purple-grey it used to be - hard to explain lol. My doctor thinks I just have vitiligo which I think is part of my problem too.
Most guys are trying to keep their head dry so it seems odd that you have to do the opposite.
I would still give it a shot and see if you get results. Take some before pictures of to refer to later and see if it's effective.
dragonreborn last year
I stopped far too early, got lazy with stretching and now I'm pretty much back to square one. This is literally the last time I'm trying this plus stretching experiences, or I'll have my ass on the operating table to get a circumcision much to my chagrin. This problem of mine BXO/Very Severe Phimosis has hurt me pursuing sexual relationships with women for years, and I am at a boiling point for my limit, I just want to be normal. Wish me luck... 2nd time's the charm. Not going to stop until I hit a severe road block (e.g. where I can't stretch past 18mm or something). The BXO is not really the problem here, it's a symptom of bad phimosis for me at least. Treating the phimosis = cleaner glans.
mrjql7 10 months ago
I will try not to go into too much detail, but to give you a background of my story... My BXO started about 15 years ago. I first consulted different doctors who thought it was other things, until I finally saw a dermatologist who diagnosed the BXO. The creams prescribed by my dermatologist (cortisone and corticosteroid, if I remember well) improved my condition a lot at first. But after a while I felt they were doing more harm than good, so I stopped using them and started to look online for alternative options outside of the official medical system. I tried a lot of different things in the last 10 years, including special diets and different topical applications suggested by other Lichen sclerosus / BXO sufferers, often with little to no progress. The last 15 years of my life have been very difficult psychologically; my BXO is a huge obstacle that stops me from getting into relationships with women. Maybe it would be possible, but I am so ashamed and afraid of rejection that every time I see a possible relation with a woman, I self-sabotage my chances. So basically, I’ve been single and without sex for almost 15 years. And it’s driving me crazy.
In the last year, I’ve been able to “manage” my symptoms by eating a very clean diet, meditating a lot, keeping the area clean and dry and applying Emu Oil. When I say “manage”, I mean that it was finally possible to totally retract my foreskin, that the hitching and hurting was gone and that my skin looked way better than it did in the last 15 years. But the BXO is still there though. And the biggest problem for me is that white ring that some of you are also describing. Some “fusing” happened there between my head and the rest of the skin, to a point that the base of my head lost a lot of definition (on one side, you cannot see where it ends or starts). I know it’s possible to “defuse” to a certain point, because in the past few months, I saw a “crack” forming and some definition starting to come back. But then it was slowly filled again by white skin. So the fusing may not be completely reversible, but I know there is still some definition underneath that thick layer of white skin.
I saw this thread about a year ago, but was a bit afraid of trying DMSO. Now, I have all the ingredients and I’m finally ready to try it out; I started two weeks ago. The first week, I applied the 50/50 mixture of DMSO and Tea Tree. It was hurting, my skin had a lot of irritation and inflammation, it was difficult to retract my foreskin… but I experienced some of the pealing that others described. The second week, I continued the DMSO/Tea Tree, received my Red Clover and started to take it also. Something different happened during the second week. No irritation, inflammation or peeling, but my skin look very good, almost as if it was normal. Also, I saw a “crack” forming at the place where the skin is “fused” together. It is bleeding a little bit, but it looks like some definition is starting to come back.
I will continue the treatment and keep you updated!
Buyashu 10 months ago
I was pretty active on this thread about 5 years back. I thought I'd come back for a bit and see if it's still alive. Wow. I'm stoked to see it's still going strong.
I healed my BXO naturally, and I was pretty badly covered in the stuff. I didn't use DMSO. I used a range of different treatments, but I also found that just keeping it dry was about as effective as any other treatment.
I created a blog documenting my recovery, which is still active. I'm shortly about to kick off another series of posts about the association between mental health and physical health. I was in a very bad state, mentally, when I started to get BXO. I also found both stress and fatigue caused my symptoms to worsen.
Today I'm in a much better state, emotionally speaking, and I've started reading up about alternative causes of disease (or dis-ease, as some call it). I came back here because I'm interested in seeing if BXO sufferers here also report being in a low state, emotionally, when they came down with BXO.
I've also read some reports of it being correlated with sexual abuse in children. Not directly, but definitely enough to be acknowledged in the study.
greaneyr 10 months ago
Hello again Greaneyr. I'm back in here again too. I should have kept it going. Most of my BXO is clear but now it's in my meatus - that has me worried enough to renew my zeal for treatment. I need to make this go away for good. Where is your blog? I'd like to read through it.
[Edited by dragonreborn on 2018-10-30 15:09:52]
dragonreborn 10 months ago
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