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porphyria/no treatment for it

i am 59 and just really injured myself with flagyl, an antibiotic, now i have full blown porphyria. when i look back on my life it explains a lot. i was intolerant of stress, reactive, depressive, fragile, irritable. now i am in hell.
i am in constant stress. the internal tension is extreme, i have persistent negative thoughts that i cannot control. the extreme diarrhea was helped with eating sugar.
this is the disease that ends in madness, so i am pretty desperate. there is no treatment. i get much worse with any stress at all. and any chemical exposure, fumes, perfume, chemicals in food. i barely sleep.
 
  selawa on 2011-10-16
This is just a forum. Assume posts are not from medical professionals.
GUIDELINES FOR GIVING HOMOEOPATHIC CASE INFORMATION

It is important to describe all your problems in as much detail as you are able. One word answers and short sentences are not particularly helpful. Discuss each problem one at a time, providing (as a minimum level of detail) the following information.

1. What exactly happens?
2. Describe all sensations and pains. Each pain or sensation should be described in such a way that allows us to imagine having the same pain.
3. What causes the problem to get worse after it has started occurring?
4. What creates some relief for the problem?
5. What triggers the problem into occuring?
6. What time of the day or night does the problem occur?
7. When did the problem start? What was happening in your life at that time? Did some specific event or treatment take place just before the problem started?

Move from one problem to the next, doing the same thing. IT IS VITAL THAT YOU GIVE A COMPLETE PICTURE OF YOUR HEALTH BY PROVIDING ALL PROBLEMS YOU HAVE, EVEN IF NOT CONNECTED TO THE MAIN ONE, AND EVEN IF YOU CONSIDER IT OF LESS IMPORTANCE.

You should address each problem separately using the above 7 questions as a guide. Do not put all your complaints into each of the 7 questions. Discuss one problem at a time. If you have, for example, a headache with nausea, do each component separately too (what makes the head pain worse or better, what makes the nausea worse or better).

As well as this, please describe any traumatic incidents that have taken place in your life. Discuss anything that has had a lasting impact on you mentally, emotionally or physically.

Discuss the way that you manage or deal with your problems, or any problems that occur in your life.

Discuss any patterns you have noticed in your behavior especially concerning your disease.

Discuss any part of your life where you feel stuck or unable to change and grow, especially where this occurred around the beginning of your disease, or as the disease evolved.

Describe your childhood and the kind of environment you grew up in, with reference to your relationships with your family, your school experiences, and any serious childhood diseases.

If your earlier discussions have not mentioned these already, please describe:

1. The specific foods that you crave (not just like) or hate
2. The specific drinks that you crave or hate
3. What your sleep is like
4. How the weather and the temperature affects you
5. What kinds of things in the environment you are particularly sensitive to
6. What your general level of energy is like
7. What your level of sexual energy or desire is like
8. Describe your menstrual cycle

9. Also give these details

a) Body type and build
b) Skin colour and texture
c) Areas of the body tends to perspire on
d) Odour of sweat, body, stool, flatus, urine
e) Colour of stool, urine, sweat

10. Give any reactions to vaccines or medical drugs.


David Kempson
Professional Classical Homoeopath
Dip.Hom.Med.1994
 
brisbanehomoeopath last decade
it can get worse any time of day. it feels like something closing in on me.

i have had this always, but it got extreme when i took flagyl for parasites. i have had bad episodes before but never like this. now it feels embedded , like i won't recover.

other health problems include hypoglycemia which i have had for many years. i have to eat every three hours or else i become very weak, my brain becomes unable to process.

i was an unwanted child, my older brother was menally disabled ( intellectually) so there was little happiness in the household. my mother was critical, rageful and abusive. i had nightmares and wet the bed. i think i may have had kidney issues even then, needing to go to the bathroom frequently. i was very shy, hated making mistakes. i handles this my becoming very active physically and counter phobic , acting like nothing bothered me. this worked fairly well until puberty, when i had problems with my girlfriend group i lost all confidance in myself. after that i studied so i could get away from home, had no long term ambition, i just wanted to leave. that is my way of handling things, get off by myself. i have never been able to have job, i haven't the energy and it is uncongenial to me to work in a group with a boss. i find groups of people too stressful. i work by myself.

i had mono as a child and a few broken bones. i did feel loved by my father and grandmother and was devastated when they died. at some point in childhood i felt totally alone. that has been a problem for me in my life-feeling alone that no one cares . now i am used to it.

i never felt like i used my abilities and talents and that caused me pain.


i don't have a lot of food preferences except the food restrictions that apply to porphyria. i just tried to eat healthy foods. right now i like sour yoghurt, something about sourness like. tart applesauce.
i used to be addicted to diet coke , then snapple, but i stopped. i smoked and was addicted but stopped.
i like warm sunny weather, i dont' like grey days or cold or rain, i don't like wind.
i sleep about 4 hours and wake up, i try to get back to sleep after a couple of hours. sometimes i fall asleep during the day for short naps. sometimes my nerves feel so shot that i fall asleep. it's like i can't stay conscious.
i hate noise, i hate the music most people like, i like only classical. that means i don't like most public places. i don't like loud people or children. i don't like rude people who are selfish in their behavior.
i have no sexual desire, and have had very little in my life. men have been attracted to me and treated me like an object , that really turns me off . the whole issue is disappointing. i fell in love once and was attracted to him for a little while, it was like i was over whelmed by his constant desire, it extinguished it in me.
past the menstrual cycle, i used to have to go to bed for two days and then was fine, no pms.

body type is long and thin. small bones. was athletic , enjoyed sports but no stamina . could never build it much even with training.
i have smooth textured skin, that tans too easily for white skin. very quickly tans in the sun. i have brown mottling marks on my face and neck that got worse with the porphyria.

i do have extensive night sweating , sometimes during the day. can't comment on the smell , it is not terrbly strong. seems my entire trunk is wet.

stool is normalizing now after i started eating sugar, sugar is porphyria remedy. i had watery diarrhea before that. most of my life i have been somewhat constipated. i urinate frequently. it is a weak stream , often i have to wait for it to come out.
rather a lot of burping.

drugs and chemicals are very toxic to me though i seem to tolerate clonazepam. antibiotics are terrible.

my general energy is low and has been a problem since i was about 20 years old.
 
selawa last decade
Ok this is an excellent start.

Can you explain more on the sensation of 'something closing in'?

What do you mean by 'embedded' - what does it feel like to have a condition that is embedded?

What happens when your brain cannot process?

What is the experience of being by yourself, being alone without people around you?

How did the death of your father and of your grandmother affect you? How did you react, what did you do? What was the experience of being so devastated?

What do you mean by feeling you never used your talents and abilities?

What is the feeling of 'shot nerves'?

Why can you not stay conscious ?

What was the experience of being 'overwhelmed by a man's constant desire and having it extinguished in you?

David
[message edited by brisbanehomoeopath on Mon, 17 Oct 2011 05:51:59 BST]
 
brisbanehomoeopath last decade
embedded means that i have been terrified and stressed by financial worries, and instead of the feelings ebbing away naturally, they are permanent. the same with resentments, of my ex husband for example, it seems the worst feelings i have ever had became embedded so they can't leave. like a nail driven very far into hard wood, it won't come out.

closing in means something similar. happy, open enjoyment is being closed upon by this terrible tension, like squeezing my spirit. like a vise getting stronger and stronger.

my brain is slower, i can't do simple addition , remember spellings , think out what needs to be done, make informed choices that make sense.

being by myself can be very restoring, i need a lot of alone time. i can be too alone sometimes, when i was a child , teenager, and young adult i believe i was very frightened by how alone i felt. i think i tried to stay very active as a child to avoid the feeling. i was always taking physical risks, jumping off things, climbing things. i played an internal game to see how fast i could do anything, even now, i do that as a kind of sport when i drive. i want to stop it but i can't. it makes people around me crazy that i am always in a hurry, thinking ahead so i can get through obstacles very fast.

shot nerves means , the slightest thing happens and i fall apart, get upset. i jump with any noise. can't stand noise. i am very impatient and standing too long in line , i can feel like i am getting upset. i can't sleep.


as to sex, i always felt like i was expected to be like a vending machine, ready to please to perform. i did not feel as if men tuned into my vibration to understand how i wanted to be touched or approached. it extinguished any enjoyment or desire i would have originally. if you build a fire , it has to be done a certain way for it to catch. if you smother it with fuel e.g. it goes out, too little fuel , or air , it goes out.
 
selawa last decade

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