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please help

RESPECTED SIR,

we are the two brothers , SHAHNAWAZ AHMED age 32 and IMRAN ALI age 28 from pakistan,we both suffering from the dangerous blood disease FACTOR 13 DEFICIENCY BLEEDING DISORDER .So for we got the treatment Cryoprecipiate at NIBD KARACHI but ,even in serious bleeding we are not treted by FACTOR 13. One vial of factor 13 is around PKR 75,000/- [$875]. it means we need around PKR 6 to 8 vials ie 5.5 lacs to 7lacs per single treatment for one patient . . unfortunately in our country pakistan the treatment of this disease is not properly available,but available at England,USA,Germany.In this connection we have tried all over the world includig .NHS LONDON , WHF , WHO , Marketing Director, OMT, Uno Health Care , Fernanda Medeiros, RN, BSN ,Manager, International Health Services
Children's Hospital Boston,PHPWS etc .and relevant officials of Govt: of pakistan . but still we have no satisfatory response from any where.
Now a days this disease caused a serious bleeding to both of us .so we need an urgent HELP from you . we believe that you may be the HOPE for us , we will wait for your response.
 
  IMRAN ALI on 2011-11-16
This is just a forum. Assume posts are not from medical professionals.
Hi there,

The following additional information is required to help you and your brother. Therefore, please do the best you can in providing a detailed and accurate data for both of you.

1. ID
2. Age
3. Sex
4. Single/Married
5. weight
6. Height Â….
7. country
8. climate
9. List of your complaints

10. Since how long are you suffering from each complaint

11. Diabetic or non-Diabetic
12. Desire sweets/sour/salt
13. Thirst
14. Tongue and Taste
15. Current BP (without medicine and with medicine)

16. What exactly is happening?

17. How do you feel?
18. How does this affect you?

19. How does it feel like?
20. What comes to your mind?
21. One situation that had a
big effect on you?

22. How did that feel like?
23. What sensation do you experience in that situation?

24. What are you showing by that gesture of your hand (Habits or Actions)?

25. Current and previous remedies/medicines you are taking or took in the past?

26. Family Background
27. Educational Qualifications of the patient

28. Nature of work, what do you do for living?

29. Desires, likes and dislikes for food

30. Name of foods which increase your problem

31. Mind-behavior, anger, irritability, hurry, impatientÂ…and so on.. How are you different from other persons, public speaking or not , you can describe all of the details about your behavior, love and affections.

32. Aggravation (increases-time, season,)& Amelioration (Decreases)

33. Attached here your photographs of the affected area. (if required/optional)

34. Location of the disease
35. Side of the problem (Right or Left), (Upper or Lower part of body)
36. Color of the secretions/discharges e.g urine, stool, sputum, Saliva etc.

Regards
Nawaz
 
nawazkhan last decade

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