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Son with Epilepsy

My son who is nearly 3 has suffered from seizures since he was 4.5 months old. Firstly one-sided and infrequent, they worsened over the time. He has recently been diagnosed with Dravet's Syndrome (very severe form of epilepsy that results in severe social, cognitive and developmental delays). He developed normally until 18 months of age, but now he regressed to approx 12 months. He now has many autistic traits.

We have tried homeopathy before, but with no impact on his seizures. Now that allopatic treatment has reduced his seizures I would like some help with his mental and social development and decided to try again with homeopathy. Can anybody help?

I will post detialed info about his peronality etc. if anybody offers some advice.

Devastated mother

Natasha
 
  nkozul on 2008-03-22
This is just a forum. Assume posts are not from medical professionals.
please describe his personality at home and outside, with family members and strangers.

describe the epileptic attacks.

give examples on his autistic traits.

what developmental delays have been seen in him.
 
rishimba last decade
Hi earlier fits were one-sided, starting with his fist, progressing to arm and so on until entire body was jarking. eyes were turned up to the side of the seizure and the face was also grimacing. The sides alternated with each seizure. Thise seizures started 3 weeks after his last Hib/DTP/Polio vaccination. Also on the day of the seizure the vaccination scar from his earlier BCG vaccine broke out and a lot of smelly puss came out. He was unhappy all day and in the evening he had a seizure.
When he was around one, soon after his MMR vaccine the seizures bacame shorter ( 1- 2 minutes) and generalized. We conuslted a homeopath and he was given Medorrhinum 10M in 3 doses (evening, morning and evening). He still had several seizures soon after and he was given Belladonna in 3 potencies (one each day) 30c, 200c and 1M. He had no seizures for 3.5 months. In October 2006 he was given Tuberculinum in 4 doses over 4 days (30c, 200c, 1M and 10M) and his seizures started again. We changed homeopath who prescribed BDG antidote BCG 30c in 3 doses at weekly intervals. His condition worsened even more. Then she gave Tub Bov 30c in 10 daily doses and by boy stopped functioning. His seizures were daily with screams all day. Since that incident we have changed homeopaths, tried different remedies, to no avail. His seizures were reduced to one avery 10 days but no development.
He currently does recognize him self or us, does not speak any more. only repeats single words, flaps hands. Does not point, but takes your had and takes you to whatever he wants. Plays with blocks or puts small ojects into buckets. Loves running aimlessly, swinging, playgrounds. Loves swimming and eats alot. Hugs and kisses everybody and is currently happy most of the time. Licks windows, takes his shoes off and occasionally bites. if you need more I'll send more details.

Thanks in advance,

natasha
 
nkozul last decade
having read the history of the illness and different remedies which have been given, please answer the following questions about your son.

- what is the frequency of the elipeptic attacks now.

- describe the physical manifestations during the attacks.

- in general what causes the attacks.

- how long does it last.

- what are his autistic traits.

- what are the habits you find peculiar or strange in him which differenciates him from other normal kids.

- what are his likings and dislikings in food.

- is he having any peculiar habbit ( speech or action )

- whats his nature like, at home and outside, with family members and strangers.

- physically, describe his head size, chest size or other abnormality if any.

-what ailments does he suffer from generally.

- any abnormality in stool, urine, sweat etc.
 
rishimba last decade
he is now on a new medication Stiripentol, so for the last couple of months he only had a few 'absence' seizures (he walks around as if looking for something, trying to grab in front of him, just staring and does not respond if called). His previous attacks were normally preceeded by loud shrieking and generalized convulsions lsting for a few minutes. They would happen every 10 ays or so, normally on waking early in the morning (around 6 am). Sometimes he would have a series of such attacks in one day. In December he had 3 'status' seizures that went on for several hours and required medical intervention in A&E with various drugs).

The attacks do not appear to be caused by anything in particular, but he is oversensitive to heath, especially stuffed rooms. he also shivers easily when cold, we noticed that after swimming.

He is currenlty in his own world, repeats few words, like 'kisses', 'farting', 'cow' etc. He will repeat words said to him (called ecolalia, typical of autism). He also runs around aimlessly, plays with toys without understanding, flaps his hands.
He presses buttons, puts things in his mouth, takes his socks and shoes off.

He eats greadily and loves all foods. This only became apparent since his mental decline.

Previously when his development was normal, he craved cheese, toast, seasoned meats, fresh peppers. Always loved milk. Didn't eat much in the morning.

He now still desires all those things and also eats whole apples, but would eat anything that he is given.

He was always loving to his family and outgoing. He is very sweet and good looking, so he attracted lots of attention and was often hugged and kissed by everybody who met him. He loved attention and praise. He loved being centre of attention. At the time he was closest to me, his mother, and would seak me out if I left the room.

Now that he has deteriorated, he desires company, but he is indiscriminate. He would approach strangers, kiss and hug them. He would take anybody's hand take them to what he wants or just place them to sit next to him while he dances and spins.

He always liked music, singing and dancing.

He is average size, maybe slightly bigger than average. His head is normal size and he has no ditinguishing features. he has blond-ish hair, blue eyes and beautiful features.
He does not sweat almost at all, that was shat we noticed at first.

He is physically healthy and very active. Runs jumps and climbs easily. Loves playgrounds, especially swings.
Loes swimming in sea and swimmingpool, but for a while hated baths and would scream endlessly.

His stool is soft and copious, probably because he eats a lot of fresh fruit and veg. Urine is unremarkable. If he has frequent stools his bum would burn and become red.

Please let me know if you nedd naything else.

I am very grateful for your interest.

Natasha
 
nkozul last decade
constitutionally he seems to be a PHOSPHORUS child and thus, overall emilioration of autistic traits possibly would be seen with this remedy.

i need to know if the reason for the convulsive attacks was some kind of suppression of skin eruptions. did you notice any rashes or skin discharges which were suppressed by some allopathic treatment before the attacks started?


thus,

1. constitutional dose of PHOSPHORUS 30C ( 3 doses on a single day ) in empty stomach.

if improvement is seen, then the second dose after about a month could be 200c.


2. if its proved that the child did have some skin eruptions and they were suppressed by medicines, then the indicated remedy during the convulsions is CUPRUM MET 200C three doses only on a day.
 
rishimba last decade
Hi again,

thank you so much for taking your time to help my little boy.

Sorry, I was never notified by e-mail about your reply. I came back to the forum to have another attempt posting my plight and then saw that you replied.

I started reading about homeopathy my self in 2006 and now have many books including Materia Medica by Allen and Boericke, also Book about Children's Homeopathic Types by Herscu and many others.

I am glad you mentioned Phosphorus. I was also oscillating between Sulphur and Phosphorus type, but several professional homeopaths that we saw over the years never mentioned either.

Also my son's personality changed with his illness and whilst he was very attached to me before and loving to his family, he is now in his own world and is har to know how he feels about anything.

Would Phosphorus help with the seizures as well, as it is his constitutional remedy?

Alo given that his seizure disorder is genetic in origin (even though I believe that he only has genetic predisposition and his troubles started after vaccination), can the damage be reversed with the treatment?

My son is in care now and I am going to see him on 13/4, so I would rather give one dose of Phos 200c, as I might not be around after a month to give it then. Would this not be adivsable, and of so why?

On the day of Bobby's first seizure his BCG vaccine scar broke out with a huge amout of puss, he screamed all day and in the evening he had a seizure starting in that arm. I always felt that this was related, and a homeopath who agreed with me prescribed BCG 30c anitdote. Bobby's reaction was daily seizures, screming etc. He hasn't been well since. So whilst I believe that his trouble is vaccine-related I am not sure how to go about helping him. Some homeopaths suggested Sulphur to get rid of vaccination problems.

Please let me know what you think about Sulph vs. Phos and if Phos 200c would be OK to start with. I will give either remedy in 10 days time and report back.
I am trying to use this time until I go to visit to make up my mind whar tho do. We had nearly 3 years to help Bobby and we failed. Now that he is slipping out of my hands I may not get another chance to try and I have to be as certain as possible about the remedy/potency choice.

many thanks for your help,

Natasha
 
nkozul last decade
I forgot to mention that when Bobby's BCG vaccine scar broke out a family member put some Hydrogen 3% to clean the wound (to prevent infection). Leater we were told by a homeopath that it only served to push the poison into the body and that Bobby's central nervous system was poisoned. Doeas this help? Do you need any more details?

I will also add that Bobby now likes to bite people, grabs thei hair and hugs really hard.

He might also bite if he is running away from you and you take his hand. he will bite your hand to try to get away.

Natasha
 
nkozul last decade
as per kent, SILICEA is the only remedy which covers convulsions after vaccination.

it would be worth trying out a dose of SILICEA 1M and then probably 10M and wait for 2 months before we start PHOSPHORUS.

if we are sure, PHOS is his constitutional remedy, we can give him later and this will only benifit him.

but, to overcome the effect of vaccination, a high potency dose of SILICEA is definitely recomended.
 
rishimba last decade
Thank you for your suggestion.

I only gave Silices in low potency (6c) long time ago, as advised by a previous homeopath. Iad no effect. i did buy higher potencies after reading Materia Medicas and I do have both 1M and 10M. Are you suggesting to give 1M and 10M in consecutive days or to give 1M and the waith for how long before giving 10M?

Tahnk you in advance,

natasha
 
nkozul last decade
give him 1M just one dose and wait.

he is a small boy and so i am not recommending the second dose.

generally in such cases a high potency is required to offset the effect of vaccination and takes some 15 to 30 days.
 
rishimba last decade
thank you!!!!
 
nkozul last decade
Hi Dr Rishimba,

I am going to see my son on Sunday 13/4 and would give him the Silicea 1M then. I have it in dry form, soft surcose tablets. How many tablets should I give?

Is it better to dissolve/succuss them in water?

Is it important at what time of day I should give the remedy?

Are you expecting some aggrivation or return of any of his symptoms?

Is the remedy used for antidoting bad effects of vaccination (Silicea) the same regardless of the vaccination that caused harm?

The event of Bobby's first seizure happened on the day that the BCG scar started discharging puss (it was huge and almost black and a lot of puss came out leaving a hole in his arm)
, but it was 3 weeks after the combined Hib/Polio etc. vaccine.
Incidentally the vaccine was given into left arm and the seizure started in that arm too. is that significant?
 
nkozul last decade
please give him one dose of 1m in the morning in empty stomach.

if the remedy is in globules form, please give him 4 globules under the tongue.

i dont expect any aggravation after giving the dose.
 
rishimba last decade
dear dr rishimba,

i was hoping that you might give me some views on my own repertorisation of my son's case:

i repertorised my sons' case many times (using boericke), as i also came up with different remedies depending on what i chose as my top priority symptoms. every time i would come up with something, i would make a huge order of different potencies, only to repertoires again and come up with a different remedy. hence i now have probably £500 worth of remedies that i have never given :)

my final repertorisation is as follows: (as boericke only has italic and normal type, i gave 2 for italics and 1 point for normal type)

bell. hyosc. stram. cina sulph phos zinc agar. silicea op. bufo

restless 1 2 2 0 0 2 1 1 1 0 0

bites 2 2 2 0 0 0 0 0 0 0 1

dances 2 2 2 0 0 0 0 2 0 0 0

sings 1 2 2 0 0 0 0 2 0 0 0

desires company 0 2 2 0 0 2 0 0 0 0 0


eats greedily 0 0 0 0 0 0 1 0 0 0 0

obstinate 0 0 0 0 0 0 0 1 1 0 0

difficult concentration 0 0 0 0 1 2 2 1 1 0 0

amelioration by slow motion 0 0 0 0 0 0 1 1 0 0 0
(loves car-rides)

aggravation by cold 1 0 1 0 0 0 0 1 2 0 0

aggravation by overheating 0 1 0 0 0 0 0 0 0 0 0

epilepsy 2 2 2 0 2 1 0 2 2 1 2


total 9 13 13 0 3 7 5 11 7 1 3

the above characteristics were chosen as they are constants, my son was always like that (with exception of overeating, but he was eating greedily things that he liked, e.g. popcorn),regardless of treatment, homeopathy, mental retardation, so i assume that is who he really is.

the choice of remedies is not exclusive, but it is the list of some remedies that homeopaths have suggested over the time. others are cup. met., cicuta, pulsatilla, nux. vom., syphilinum, hellborus, carcinosin, bowel nosodes, mag phos, kali phos, nat sulp etc.

i mam not sure how this will come out in the post, since it was lined up in word, but hyos and stram both have 13 points.

so by now i know a bit about belladonna family and from the comparison, hyoscyamus is least violent and with least amount of febrile heath, which is what fits my boys' case. also stram has fear of water, and my son loves swimming in water, only does not like showersand used to hate baths once his condition started to deteriorate. before he loved even baths.

i would greatly appreciate any comments on my case above.
 
nkozul last decade
please form the rubrics with all concurrent and peculiar symptoms of the patient.

i mean, a child can sing and dance, but if this has some peculiarity or if this trait is too much intense in him, this can be taken as a general symptom. otherwise not.

also, all his particular symptoms have to be more specific with modality and etiology.

finally, please compare the drug picture and the disease picture to make the final choice.

being a mother, i feel you are the best person to arrive at a remedy, if you follow the above.
 
rishimba last decade
dear dr rishimba,

my son cannot really sing and dance, as such, but that is what he does most of the time. he also bites as a way of expressing affection, but also to get away if he wants to me left alone. These are his means of expressing him self.

I deliberately didin't go into detials about epilepsy, as the seizures, their modalities, times of day, frequency etc. changed so frequently during the last 3 years, that nobody would make any sense out of it.

he strongly desires company, cannot be alone, hence it has to be significant.


Which rubrics would you choose from what you ahve read of my son's case?

Thnak you in advance,

Natasha
 
nkozul last decade
particular symptoms of epilepsy should include the PRESENT modality and also the etiology( assumed as the vaccination in the present case)

i believe that gives a much closer picture about the disease.

secondly, all his idiosyncracies which set him apart from other kids will be traslated into rubrics as his generals

with what you have written in this post, i feel that HYOS could be a suitable choice.

based on the above, please form the rubrics and finally tell me which one is coming out to be the closest.

personally, i give a lot of importance to etiology. if SILICEA is figuring in the top 3 or 4 remedies, then thats the one, else, HYOS.
 
rishimba last decade
dear dr rishimba,

the first type of seizure started in the left arm (one where bcg vaccination scar burst on the day). the fist was clenching, then the arm started twiching and finally the whole left side of the body followed.

in boericke, there is a rubric:

aura begins in left arm and has only silicea as a remedy.

also, if we take that his troubles started after vaccination, then we only have silicea and thuja.

i have formed some more rubrics with only seizues in mind:

zinc hyosc. silicea op. sulph. bell.

during sleep (applies to later seizures only) 0 0 2 2 0 0

followed by deep sleep (always) 0 1 0 2 0 0

from suppressed eruptions
(burtsing of bcg scar and cleaning it) 0 0 0 0 2 0

ill effects of vaccination 0 0 1 0 0 0

no fever 2 0 0 0 0 0

aura begins in left arm (first ever seizure) 0 0 1 0 0 0

eyes half-open and upturned 1 1 0 2 2 1

zinc hyosc. silicea op. sulph. bell.
total 3 2 4 6 2 2


if we copmbine this with the previous analysis we get

zinc hyosc. silicea op. sulph. bell.
5 13 7 1 3 9

total 8 15 11 7 5 11


i.e. hyosc. again comes up at the top. but if it is true that the problems were vaccination-related, then the first seizure certainly fits silicea picture. please advise what am i missing?

natasha
 
nkozul last decade
ok... thats good enough.

please give 3 doses of HYOS 30C every hour when the next epileptic attacks occur.

note the response for the next 7 days and report.

by the end of 7 days, probably you will know if HYOS works or not.
 
rishimba last decade
if you see HYOS has absolutely no effect, SILICEA would be your next choice.
 
rishimba last decade
Dear dr rashimba,

we have previously tried Hyosc in 30c and 200c before and/or after the attack. It definitely did NOT stop the attack, I am not sure if it did anything else.

The only relavance in his past case is this:

Last year in Jan and Feb 2007, my son had seizures just after waking up if he started walking or changed his position suddenly. Bending forward would onset an attack. This lasted for a while and once at the end of feb after he woke up I gave in space of several hours Hyosc 200c, Pulstilla 200c, Cicuta 200c, and Cup met 200c. He NEVER had problems with getting up and having seizure after that!!!!

However his seizures continued at weekly intervals usually early in the mornign from sleep. I tried each of those remedies alone, no change in seizure pattern.

Then diifferent homeopaths were consulted and different remedies prescribed. I never tried Silicea before, so maybe that could be an option, knowing hta Hyosc did NOT prevent seizures or stop those that already started.

Do you have any views?
 
nkozul last decade
yes..

the only logical next step is to try SILICEA.

give a dose of SILICEA 200C as soon as you see the attack and continue it after some 4 to 6 hours for another 2 to 3 doses only.

wait for the next attack and then you can give 1M one dose.


please report after a week if you could make a difference to his condition.
 
rishimba last decade
Originally you suggested Silica 1M, regardless of the attack.

I was going to do that, but as I have to wait until 13th, I was reading up to use my time productively. That is why I started considering other options.

Should I still give 1M or chage to 200c, as he may not have an attack for a while?
 
nkozul last decade
Dear Dr Rishimba,

I was wondering about using potenized homeopathic vaccine (DTP/Polio/Hib). I have found the following method on the web:

Treatment is with potentised vaccine. Usually the best method for chronic PVS is to administer this remedy at four different potencies during four consecutive weeks (in many, esp. severe cases 4 consecutive days proved to be too fast); the first week 30C, twice , (e.g. on Monday and Thursday); the second week 200C, twice; the third week 1M, twice and the fourth week 10M, twice. If a course is repeated and there have been no severe reactions a shorter course can be given lasting 15 days, every potency twice with one day between every administration. In each case about 10 globules (diameter 6.72) are introduced directly into the mouth without any fluid to be drunk. The granules dissolve completely within one minute. It is advisable not to eat or drink or brush the teeth for half an hour before or after this administration to allow the medicament to act without interference. If the symptoms are aggravated after one of the four potencies it is always necessary to wait until the reaction is over before continuing treatment. In such cases the same potency is then repeated. This procedure is continued as long as necessary for the patient's reaction to cease, normally after one or two repeat doses. The series is then completed. It is also possible to treat a severe reaction with a solution of the 30C. For this, ten globules are dissolved in half a glass of water which is administered, a sip or teaspoonful at a time, for one or two days. The most common reaction is fever, which does not require further treatment. If the disorder has not completely cleared up after the first course, the whole series can be repeated. One to three series is usually sufficient.

What do you think about it? Would ilicea do the same or better job in treating the vaccination damage?

Thank you,

Natasha
 
nkozul last decade
200c potency is suggested to stop the attacks if its given during the episode.

1M potency will actually stop the recurrence of the attacks if it really works.

generally, 1M is not repeated so frequently and a minimum one week should be given to complete its action.

as you know, silicea is indicated considering the etiology, any homeopath would first try with silicea before suggesting the potentised vaccines.

if this doesnt work, you have to send the same vaccine for potentising and under an experienced homeopath, follow the regime.

i feel you can try that too.

best wishes..
 
rishimba last decade

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