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Acute Epilepsy with retarded growth

From ashochhaon 2016-12-25
 7 replies
I need help for my son who is about 7.5 years today. Unfortunately, his developmental age is less than 6 months.

Now, I'm seeking help on this forum, not for his retarded growth but for the acute form of drug resistant epilepsy that he has been affected with for last 3 years. Multiple combinations of AED (Anti Epileptic drugs) have been tried on him. Each combination was moderately effective initially (lets say for 2-3 weeks) but thereafter (I now realize the pattern of it in hindsight of 3 years) resulted in epilepsy changing its form. Such kind of Epilepsy in medical literature is called drug resistant epilepsy. So each drug results in Epilepsy manifesting in a totally different kind of seizures occurring which results in Doctor either adding another drug to the combination or changes the combination altogether. All this experimentation has resulted in him suffering with no definite pattern of seizures. In fact he is affected with almost all varieties of it which include:-

1) One sided jerks
2) Both sided Jerks
3) No Jerks but only trembling and goosebumps with one sided stare and stiffness in limbs.
4) Only stiffness and stare that begins from one side and ends another side.(Also called Absence Seizures)
5) Startle at very low sound level.
6) Very intense and long lasting hicups (Even they are described as a type of epilepsy in medical literature)
7) Rapid flickering of eyes for 5-10 seconds or so

Common patterns/ features noticed in seizures:-

1) Except for the last 3, most varieties of seizures described are spontaneous and lasts for about 1 minute.

2) A very strange co-relation is empirically evidenced with lunar cycle. The Epilepsy increases on either extremities of the cycle.

3) Another thing that might be of interest to Homeopathic practitioners is that we have over the years noticed a clear pattern of bath inducing/ triggering/ precipitating a seizure.

4) Most times, there is a sequence of seizures. So if it begins then it last for almost 24-48 hours and he will suffer close to 15-20 seizures of 1 minute each during this time. Between such seizures, he is usually sleepy.

5) His head is hot during this while and once it normalizes, I can start guessing that the sequence is coming to an end.

6) Sometimes, we notice that he is getting restless. Such restlessness continue for almost 48-72 hours. The restlessness increasingly becomes violent towards the end of its cycle. He does not sleep for these many hours. He looks in much pain during this time. Such restlessness, I've come to realize, is a result of seizure that is unable to manifest itself fully. This restlessness has never been classified as epilepsy by his neurologist but since it often comes to an end with a full blown seizure... I attempt to theorize this restlessness as part of his epilepsy problem.

His otherwise health, appearance and body type:-

1) Very fair, soft skin, green eyes, brown hair, chubby.
2) Cannot control his neck, does not sit, stand, or even understand instructions. Mostly lies on his wheelchair or bed.
3) Feeds only on liquids or semi solids as diet.

I will be happy to provide further details/ history. Needless to say, I'm looking forward to some help, even if it is minor help over a long term.

Thanks and Regards
Sumit Chhabra.
[message edited by ashochha on Mon, 26 Dec 2016 13:00:03 UTC]
[message edited by ashochha on Sun, 01 Jan 2017 08:13:11 UTC]
 
Re: Acute Epilepsy with retarded growthFrom simone717 on 2016-12-25
Hi,

Dr Kulkarni is not taking new cases as he is too busy with his practice.

If you wish you can click dr k's name on any thread and his email will show up. You could email him about being a private patient.

You might also try using the tiny edit button at bottom of your first post.
Edit out dr Kulkarni and put in sameer vermani. He is a real homeopath who has been helping a lot of children on here lately.
 
Re: Acute Epilepsy with retarded growthFrom ashochha on 2017-01-03
I request the site admin to help me in finding a early solution to my problem.

Thank you sir
 
Re: Acute Epilepsy with retarded growthFrom telescope on 2017-01-03
If you want I can look into the case.
 
Re: Acute Epilepsy with retarded growthFrom vas on 2017-01-03
hello sumit

i am very much interested to take the case
This thread continues beneath the following ad.
 
Re: Acute Epilepsy with retarded growthFrom simone717 on 2017-01-03
Sumit,
Vas is a previous poster who was banned from the forum for unsafe prescriptions among other things.
User name vas has been reported to the moderator.
 
Re: Acute Epilepsy with retarded growthFrom ashochha on 2017-01-12
Sir, I have failed to understand why no one was to take up the case.

Is it too complicated?
I request the admin to allocate the case to some Dr whome he thinks fit!!

Thanks
 
Re: Acute Epilepsy with retarded growthFrom 0antivirus0 on 2017-01-12
I can consider your case but you need to give many answers, copy the questions list in notepad,
write answers in same way with questions and then paste in post reply, NO SHORT answers explain MAXIMUM you can.


1. Age,sex,weight,country.
ANS.

2. Main complaints and other associated troubles.
a)Where is the trouble; The exact locality of the complaint like hands,legs etc; duration of trouble.
ANS.
b)What exactly do child feels, Sensation as pain, how pain feels or burn etc, according to you.
ANS.
c)What are the factors that causes this trouble according to you.
ANS.
d)Condition under which the complaint is reduced or child feels better like,cold or hot application,cold or hot weather,position as standing,walking,rest etc.
ANS.
e)Condition under which the complaint is increased like,cold or hot application,cold or hot weather,position as standing,walking,rest etc.
ANS.
f)Any other complaint any where in the body.
ANS.
g)Onset time of troubles in detail, i.e which came first, after that what problem and so on.
ANS.
h)Treatment method adopted and its result.
ANS.

3. History of diseases in family.
ANS.

4. Personal History.
a)About childhood.
ANS.
b)Academic performance.
ANS.
c)Any major incidents in life and the effect of it on life.
ANS.
d)How is child satisfied with friends, family members, etc.
ANS

6. How is child's Appetite and Thirst.
ANS.

7. Likes and Dislikes.
a)Alcohol Bread Butter Bitter Salt Sweet Sour Fats Milk Mud Chalk Egg Spicy food Meat Fish Fruits Fried Food
Warm food-drink Cold food-drink Ice Ice cream Chocolates Tea Coffee.
ANS.
b)Anything else about like and dislike of any activity with child or surrounding.
ANS.

8. Bowel movements.
a)Nature of stool, frequency, satisfactory or not.
ANS.
b)Any discomforts associated with stool.
ANS.

9. Urine.
a)Frequency, nature, volume.
ANS.
b)Any discomfort before, during or after urination/odour
ANS.

12. Sleep.
a)The quality of sleep, the quietness or restlessness of sleep,
position of sleep, times of waking and reasons for waking,
need for cover over various parts of the body,
whether the window must be open or closed etc.
common dreams, peculiar sounds or gestures during sleep, etc.
ANS.

13. Sweat
a)How much, what parts, staining, Odour.
ANS.

14. Weather
a)Tolerance to heat and cold, dryness, humidity, weather changes, sun,
foggy weather, wind drafts, closed rooms, etc.
ANS.

15. Mental Status
a) Were there any complications at birth?
ANS.
b)At what age did the child: crawl, walk, talk, teethe, toilet train ?
ANS.
c)How did the child react to the following situations: vaccinations, birth of younger sibling, starting day care, starting school, spending night with a friend, going away to camp, traveling with the family
ANS.
d)Did the child have an especially severe childhood illness--measles, mumps, croup, etc.?
ANS.
e)When ill or upset does the child want to cling or be left alone, or something else altogether?
ANS.
f)How would you describe the child's behavior when playing with other children?
ANS.
g)What feedback do you get from the child's teachers?
ANS.
h)How does your child treat animals?
ANS.
i)What fears does your child have?
ANS.
j)How affectionate is the child when not sick?
ANS.
k)How sympathetic is the child (concerned with the suffering of others)?
ANS.
l)How is the child affected by games, studying, music and dancing?
ANS.
m)Is the child fastidious? Please explain.
ANS.
n)Is the child sensitive to criticism? Please explain.
ANS.
o)Describe the child's eating habits, for example: picks at his food, or eats voraciously, or is full after 2 bites, or can't sit still to eat, or must be fed or he won't calm down, and so on.
ANS.
p)Are there any digestive complaints--waking with stomach pains, or a lot of gas and bloating or burping, or constipation, etc.?
ANS.
q)How cooperative is the child?
ANS.
r)What does the child really love to do?
ANS.

16.Describe child face and tongue by doing FACIAL AND TONGUE DIAGNOSIS by visiting homeomzp.blogspot.com
ANS.

17.Describe child PRAKRITI
by doing EVALUATION on visiting
www.holisticonline.com/ayurveda/w_ayurveda-dtest1.htm
ANS.

NOTE-- if proper reporting will not be done by you, then i will close the case, you can take advice from others.

Regards,
antivirus
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