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Homeopathy and Health Forum

Acute Epilepsy with retarded growth

I need help for my son who is about 7.5 years today. Unfortunately, his developmental age is less than 6 months.

Now, I'm seeking help on this forum, not for his retarded growth but for the acute form of drug resistant epilepsy that he has been affected with for last 3 years. Multiple combinations of AED (Anti Epileptic drugs) have been tried on him. Each combination was moderately effective initially (lets say for 2-3 weeks) but thereafter (I now realize the pattern of it in hindsight of 3 years) resulted in epilepsy changing its form. Such kind of Epilepsy in medical literature is called drug resistant epilepsy. So each drug results in Epilepsy manifesting in a totally different kind of seizures occurring which results in Doctor either adding another drug to the combination or changes the combination altogether. All this experimentation has resulted in him suffering with no definite pattern of seizures. In fact he is affected with almost all varieties of it which include:-

1) One sided jerks
2) Both sided Jerks
3) No Jerks but only trembling and goosebumps with one sided stare and stiffness in limbs.
4) Only stiffness and stare that begins from one side and ends another side.(Also called Absence Seizures)
5) Startle at very low sound level.
6) Very intense and long lasting hicups (Even they are described as a type of epilepsy in medical literature)
7) Rapid flickering of eyes for 5-10 seconds or so

Common patterns/ features noticed in seizures:-

1) Except for the last 3, most varieties of seizures described are spontaneous and lasts for about 1 minute.

2) A very strange co-relation is empirically evidenced with lunar cycle. The Epilepsy increases on either extremities of the cycle.

3) Another thing that might be of interest to Homeopathic practitioners is that we have over the years noticed a clear pattern of bath inducing/ triggering/ precipitating a seizure.

4) Most times, there is a sequence of seizures. So if it begins then it last for almost 24-48 hours and he will suffer close to 15-20 seizures of 1 minute each during this time. Between such seizures, he is usually sleepy.

5) His head is hot during this while and once it normalizes, I can start guessing that the sequence is coming to an end.

6) Sometimes, we notice that he is getting restless. Such restlessness continue for almost 48-72 hours. The restlessness increasingly becomes violent towards the end of its cycle. He does not sleep for these many hours. He looks in much pain during this time. Such restlessness, I've come to realize, is a result of seizure that is unable to manifest itself fully. This restlessness has never been classified as epilepsy by his neurologist but since it often comes to an end with a full blown seizure... I attempt to theorize this restlessness as part of his epilepsy problem.

His otherwise health, appearance and body type:-

1) Very fair, soft skin, green eyes, brown hair, chubby.
2) Cannot control his neck, does not sit, stand, or even understand instructions. Mostly lies on his wheelchair or bed.
3) Feeds only on liquids or semi solids as diet.

I will be happy to provide further details/ history. Needless to say, I'm looking forward to some help, even if it is minor help over a long term.

Thanks and Regards
Sumit Chhabra.
[message edited by ashochha on Mon, 26 Dec 2016 13:00:03 UTC]
[message edited by ashochha on Sun, 01 Jan 2017 08:13:11 UTC]
 
  ashochha on 2016-12-25

This is an internet forum. Posts are not from medical professionals.
This thread continues beneath the following ad.
Hi,

Dr Kulkarni is not taking new cases as he is too busy with his practice.

If you wish you can click dr k's name on any thread and his email will show up. You could email him about being a private patient.

You might also try using the tiny edit button at bottom of your first post.
Edit out dr Kulkarni and put in sameer vermani. He is a real homeopath who has been helping a lot of children on here lately.

 
simone717 on 2016-12-25

I request the site admin to help me in finding a early solution to my problem.

Thank you sir

 
ashochha on 2017-01-03

If you want I can look into the case.

 
telescope on 2017-01-03

hello sumit

i am very much interested to take the case

 
vas on 2017-01-03

This thread continues beneath the following ad.
Sumit,
Vas is a previous poster who was banned from the forum for unsafe prescriptions among other things.
User name vas has been reported to the moderator.

 
simone717 on 2017-01-03

Sir, I have failed to understand why no one was to take up the case.

Is it too complicated?
I request the admin to allocate the case to some Dr whome he thinks fit!!

Thanks

 
ashochha on 2017-01-12

I can consider your case but you need to give many answers, copy the questions list in notepad,
write answers in same way with questions and then paste in post reply, NO SHORT answers explain MAXIMUM you can.


1. Age,sex,weight,country.
ANS.

2. Main complaints and other associated troubles.
a)Where is the trouble; The exact locality of the complaint like hands,legs etc; duration of trouble.
ANS.
b)What exactly do child feels, Sensation as pain, how pain feels or burn etc, according to you.
ANS.
c)What are the factors that causes this trouble according to you.
ANS.
d)Condition under which the complaint is reduced or child feels better like,cold or hot application,cold or hot weather,position as standing,walking,rest etc.
ANS.
e)Condition under which the complaint is increased like,cold or hot application,cold or hot weather,position as standing,walking,rest etc.
ANS.
f)Any other complaint any where in the body.
ANS.
g)Onset time of troubles in detail, i.e which came first, after that what problem and so on.
ANS.
h)Treatment method adopted and its result.
ANS.

3. History of diseases in family.
ANS.

4. Personal History.
a)About childhood.
ANS.
b)Academic performance.
ANS.
c)Any major incidents in life and the effect of it on life.
ANS.
d)How is child satisfied with friends, family members, etc.
ANS

6. How is child's Appetite and Thirst.
ANS.

7. Likes and Dislikes.
a)Alcohol Bread Butter Bitter Salt Sweet Sour Fats Milk Mud Chalk Egg Spicy food Meat Fish Fruits Fried Food
Warm food-drink Cold food-drink Ice Ice cream Chocolates Tea Coffee.
ANS.
b)Anything else about like and dislike of any activity with child or surrounding.
ANS.

8. Bowel movements.
a)Nature of stool, frequency, satisfactory or not.
ANS.
b)Any discomforts associated with stool.
ANS.

9. Urine.
a)Frequency, nature, volume.
ANS.
b)Any discomfort before, during or after urination/odour
ANS.

12. Sleep.
a)The quality of sleep, the quietness or restlessness of sleep,
position of sleep, times of waking and reasons for waking,
need for cover over various parts of the body,
whether the window must be open or closed etc.
common dreams, peculiar sounds or gestures during sleep, etc.
ANS.

13. Sweat
a)How much, what parts, staining, Odour.
ANS.

14. Weather
a)Tolerance to heat and cold, dryness, humidity, weather changes, sun,
foggy weather, wind drafts, closed rooms, etc.
ANS.

15. Mental Status
a) Were there any complications at birth?
ANS.
b)At what age did the child: crawl, walk, talk, teethe, toilet train ?
ANS.
c)How did the child react to the following situations: vaccinations, birth of younger sibling, starting day care, starting school, spending night with a friend, going away to camp, traveling with the family
ANS.
d)Did the child have an especially severe childhood illness--measles, mumps, croup, etc.?
ANS.
e)When ill or upset does the child want to cling or be left alone, or something else altogether?
ANS.
f)How would you describe the child's behavior when playing with other children?
ANS.
g)What feedback do you get from the child's teachers?
ANS.
h)How does your child treat animals?
ANS.
i)What fears does your child have?
ANS.
j)How affectionate is the child when not sick?
ANS.
k)How sympathetic is the child (concerned with the suffering of others)?
ANS.
l)How is the child affected by games, studying, music and dancing?
ANS.
m)Is the child fastidious? Please explain.
ANS.
n)Is the child sensitive to criticism? Please explain.
ANS.
o)Describe the child's eating habits, for example: picks at his food, or eats voraciously, or is full after 2 bites, or can't sit still to eat, or must be fed or he won't calm down, and so on.
ANS.
p)Are there any digestive complaints--waking with stomach pains, or a lot of gas and bloating or burping, or constipation, etc.?
ANS.
q)How cooperative is the child?
ANS.
r)What does the child really love to do?
ANS.

16.Describe child face and tongue by doing FACIAL AND TONGUE DIAGNOSIS by visiting homeomzp.blogspot.com
ANS.

17.Describe child PRAKRITI
by doing EVALUATION on visiting
www.holisticonline.com/ayurveda/w_ayurveda-dtest1.htm
ANS.

NOTE-- if proper reporting will not be done by you, then i will close the case, you can take advice from others.

Regards,
antivirus

 
0antivirus0 on 2017-01-12

1. Age,sex,weight,country.
ANS. DOB 09th June 2009. He is almost 7y 6m as of today. Male child weighing 25Kgs, Resides in India.

2. Main complaints and other associated troubles.
He is a retarded growth child. His mental age may not be more than 6 months. Physically, as a six month child, he does not sit (unsupported) or stand or speak or eat of his own… he has difficulty swallowing non-soft diet. He recognizes parents from close sight and touch. Some of your questions below may therefore be unanswerable since we have little idea, how he feels etc. However, I’ll attempt to answer most of them to the best of my ability. You are however requested to read again my first description of the problem in this thread. It remains the most accurate presentation of complaints at a single place.

a)Where is the trouble; the exact locality of the complaint like hands, legsetc.; duration of trouble.
ANS. I’m seeking remedy to his problem of epileptic convulsions. During epileptic episodes, his entire body has effects. The jerks/trembling is more pronounced in outer limbs, the head and eyes are rather still on one of the extreme directions (Left or right)

b)What exactly do child feels, Sensation as pain, how pain feels or burn etc, according to you.
ANS. Difficult to answer. His expressions on the face is one of fear, as if seen something terrible. However, it is difficult to ascertain what can scare a child of 6 months’ mental age.

c)What are the factors that causes this trouble according to you?
ANS. Some empirical correlation found with bath, constipation, mild fever and extremities of lunar cycle.

d)Condition under which the complaint is reduced or child feels better like, cold or hot application, cold or hot weather, position as standing, walking, rest etc.
ANS. He feels better when touched, held by another person. If restless, he feels better while sitting rather than lying down on bed.
e)Condition under which the complaint is increased like, cold or hot application, cold or hot weather, position as standing,walking, rest etc.
ANS. Difficult to answer. As I said some empirical correlation with lunar extremities but not too reliable.
f)Any other complaint anywhere in the body.
ANS. Well, keeping aside the developmental issues, he has constipation which is common in children of his league given their lack of activity, limited diet issues.

g)Onset time of troubles in detail, i.e. which came first, after that what problem and so on.
ANS. He was born of uneventful and happy pregnancy with C-section. The child, however, is suspected of not having cried properly at birth. He had a couple of instances where his face turned blue because he went into too deep a sleep and stopped breathing (Apnea). Thereafter he had difficulty sucking milk- suffered dehydration twice in 15 days of birth. Was admitted to Sir Gangaram hospital at Delhi. He had to be put on ventilator for 5 days because of prolonged apnea. After almost 2 months of non-conclusive evidence, he was discharged with nasal feeding tube. However, he started sucking later on and the feeding tube was removed. Since then he continues to feed on milk bottle and some soft diet. Very little development beyond this except physically he appears healthy child of over 25 Kgs.
He faced his first epileptic seizure in September 2013. Was put on treatment with Anti-epileptic drugs (AED). Several combinations thereof have been tried.

H) Treatment method adopted and its result.
ANS. Several combination of AEDs have been tried but with little result.

3. History of diseases in family.
ANS. High BP, Diabetes, and Arthritis are found in maternal and paternal sides. None of the nature affecting the child.

4. Personal History.
a) About childhood-
ANS. Already explained above.
b)Academic performance.
ANS. None. Does not go to school.
c)Any major incidents in life and the effect of it on life.
ANS. Has been admitted repeatedly at hospital for possible aspiration of food into windpipe and consequent lung infections.
d)How is child satisfied with friends, family members, etc.
ANS. Not Applicable

6. How is child's Appetite and Thirst?
ANS. The child is fed as per a time table. He does not demand food in any way. Even if a meal is skipped, he hardly complains/ cries. Unfortunate, but….

7. Likes and Dislikes.
a)Alcohol Bread Butter Bitter Salt Sweet Sour Fats Milk Mud Chalk Egg Spicy food Meat Fish Fruits FriedFood
Warm food-drink Cold food-drink Ice Ice cream Chocolates Tea Coffee.
ANS. Not applicable. He has been having the same diet for almost last 6 years with little complaints.
b)Anything else about like and dislike of any activity with child or surrounding.
ANS. He quite dislike loud noises. Has a very high startle with even medium sounds. Does not appreciate bright light either but that’s because he’s mostly indoors.

8. Bowel movements.
A) Nature of stool, frequency, satisfactory or not.
ANS. Nature of stool is hard, unusually light yellow in color. Is usually assisted mechanically through a suppository (almost 50% times) after two days.
B) Any discomforts associated with stool.
ANS. It is painful. Bleeds almost 50% of the occasions, particularly when mechanically assisted with suppository.

9. Urine.
A) Frequency, nature, volume.
ANS. Normal.
b)Any discomfort before, during or after urination/odour
ANS. Appears to exert some pressure when relieving. Otherwise, quite normal.

12. Sleep.
a)The quality of sleep, the quietness or restlessness of sleep,
position of sleep, times of waking and reasons for waking,
need for cover over various parts of the body,
whether the window must be open or closed etc.
common dreams, peculiar sounds or gestures during sleep, etc.
ANS. He has cycles of deep and light sleep with some empirical correlation with lunar cycle. Sometimes, he is in extremely deep sleep and on other occasions, he is in extremely light sleep and that too if in touch with me (his father)

13. Sweat
a)How much, what parts, staining, Odour.
ANS. He sweats in head when restless under epilepsy. His head is hot during these episodes. Prefers to be in Air conditioned room in summers.

14. Weather
a)Tolerance to heat and cold, dryness, humidity, weather changes, sun,
foggy weather, wind drafts, closed rooms, etc.
ANS. Does not like hot and humid weather. I’m saying this since his restlessness is more pronounced during such weather. Feels better when placed in air-conditioned room.

15. Mental Status
a) Were there any complications at birth?
ANS. Already answered.
b) At what age did the child: crawl, walk, talk, and teethe, toilet train?
ANS.
Already answered. He hasn’t done any of the above except teething. He teethed at normal age of 1 to 2 years but the milk teeth have decayed early due to lack of oral hygiene and his propensity to grind his teeth when restless.

c)How did the child react to the following situations: vaccinations, birth of younger sibling, starting day care, starting school, spending night with a friend, going away to camp, traveling with the family
ANS. Difficult to answer.

d)Did the child have an especially severe childhood illness--measles, mumps, croup, etc.?
ANS. No such severe illness except as explained already.

e)When ill or upset does the child want to cling or be left alone, or something else altogether?
ANS. He is extremely restless. Throws his hands and legs violently. Feels better when held by another person in his lap. His head tapped.

f)How would you describe the child's behavior when playing with other children?
ANS. Not applicable. But he does notice younger children in the room and tends to ignore adults in the room.
g)What feedback do you get from the child's teachers?
ANS. Not applicable
h)How does your child treat animals?
ANS. Not applicable
i)What fears does your child have?
ANS. Difficult to answer
j)How affectionate is the child when not sick?
ANS. Difficult to answer
k)How sympathetic is the child (concerned with the suffering of others)?
ANS. Difficult to answer
l)How is the child affected by games, studying, music and dancing?
ANS. Not applicable
m)Is the child fastidious? Please explain.
ANS. Not at all. Unless sick or restless, he is extremely non fussy.
n)Is the child sensitive to criticism? Please explain.
ANS. Not Applicable as he does not follow language.
o)Describe the child's eating habits, for example: picks at his food, or eats voraciously, or is full after 2 bites, or can't sit still to eat, or must be fed or he won't calm down, and so on.
ANS. He is still fed. He is quite indifferent as explained.
p)Are there any digestive complaints--waking with stomach pains, or a lot of gas and bloating or burping, or constipation, etc.?
ANS. Constipation and bloating,
q)How cooperative is the child?
ANS. Difficult to answer
r)What does the child really love to do?
ANS. He remains in his own world with little interest, involvement in outside world. Remains calmly seated in his wheelchair (I mean when he is otherwise ok)

16.Describe child face and tongue by doing FACIAL AND TONGUE DIAGNOSIS by visiting homeomzp.blogspot.com
ANS. He is fair with sensitive soft skin and waxy appearance of nose. Light colored eyes, blonde golden brown hairs, chubby cheeks. Mostly no coating on tongue. Purple color. Does not bring out his tongue outside his lips. It is difficult to instruct him to do so either. I hope you understand, by now.

17.Describe child PRAKRITI
by doing EVALUATION on visiting
www.holisticonline.com/ayurveda/w_ayurveda-dtest1.htm
ANS. Difficult to answer.

 
ashochha on 2017-01-29

This thread continues beneath the following ad.
ok i will work for him.
Please tell his birth timing and location for medical astrology.
Also tell whether he is currently on any medicine or not.

 
0antivirus0 on 2017-01-29

History and efficacy of various medicines administered:-

Medicine


Peak Dose


Dates


Remarks

Keppra (Livetiracetam)


1.5ml X 2


17/9/2013 till 12/10/2013


No result

Valparin (Sodium Valproate)


5ml X 2


12/10/2013 till 05/03/2014


Effective initially but then waned in efficacy

Vinlep (Oxcarbazepine)


150mg X 2


05/03/2014 till 12/06/2014


Effective initially but changed the nature of seizures

Vinlep (Oxcarbazepine) in combination with Clonazepam


300mg X 2 (Vinlep) + 0.25mg X 2 (Clonazepam)


17/04/2014 till 12/06/2014


Very effective in combination but had to be stopped due to drop in Sodium Levels in the body (as a side-effect) which further became cause of epileptic seizures in itself

Valparin (Sodium Valproate in combination with Clonazepam


5ml X 2 (Valparin) + 0.25mg X 2 (Clonazepam)


12/06/2014 till 27/11/2014


Reasonably Effective but had to be stopped due to significant side- effects (Frequent fevers, pneumonia and tremors)

Keppra (Livetiracetam) in combination with Clobazam


5ml X 2 (Keppra) +

5mg X 1 (Clobazam)


27/11/2014 till 24/02/2016


Only moderately effective but continued since very little side-effects observed. Clobazam was later withdrawn due to increased restlessness.

Keppra (Livertiracetam)


5ml X 2


25/02/2016 till date




Note: Dosage mentioned are Peak Doses. These were tapered up gradually. Similarly the previous medicines were tapered down gradually but the dates mentioned are dates of new drug introduction and any over-lap in medicines during such tapering down has been ignored for simplicity

 
ashochha on 2017-02-05

"very strange co-relation is empirically evidenced with lunar cycle"

that is why i am asking his birth details for medical astrology because it has the power that doctors cannot explain.

 
0antivirus0 on 2017-02-06

The child's Name Shivansh Chhabra
Date of Birth 9th June 2009
Time of Birth 17:13 Hrs (5:13 PM)
Place of Birth Faridabad (Haryana)

 
ashochha on 2017-02-06

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Important
Information given in this forum is given by way of exchange of views only, and those views are not necessarily those of ABC Homeopathy. It is not to be treated as a medical diagnosis or prescription, and should not be used as a substitute for a consultation with a qualified homeopath or physician. It is possible that advice given here may be dangerous, and you should make your own checks that it is safe. If symptoms persist, seek professional medical attention. Bear in mind that even minor symptoms can be a sign of a more serious underlying condition, and a timely diagnosis by your doctor could save your life.

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