daughter with pituitary brain tumorHello, I am new to this forum. I have a 9yr old daughter that was diagnosed with craniophyrangioma in April 09. She has had two surgeries but was too risky to remove entire tumor. Radiation was done for 6 weeks. She see's several specialist regularly and is now showing low cortisol levels, vitamin d deficiency and low growth hormone which her doctor said may be a result from radiation. I guess I was wondering if there are any other alternatives that anybody is aware of. Please don't get me wrong, I would never put her health at risk to experiment with her. Im just curious if anybody has been through this and if there are any suggestions. She is getting further testing of her ACTH to make sure the cortisol levels are accurate and ultimately, if further medication is needed then she will get it.
cindy7900 on 2010-02-17
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