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suffering from neurofibromatosis

I am 22 year old. I am suffering from neurofibromatosis from last 4 years.I visited my nearest hospital,there i was told that there is no cure for this disease .The only cure is surgery.If anyone of you know the treatment of this disease then reply to this post
  diwakar choudhary on 2010-08-15
This is just a forum. Assume posts are not from medical professionals.

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