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new born with down syndrome and Tetrology of Fallots

Hello

My newborn third child, Mashal (daughter) now 2.5 months is diagnosed with trisomi 21 - down syndrome.

She also have heart problems and the report says:
- right ventricle hypertrophied
- ventricular septal defect with right to left shunt
- pulmonary valve and infundibular stenosis
- gradient across RVOT = 60mmHg.
- annulus 5mm
- RPA 4mm
- LPA 4mm
Conclusions:
Tetrology of Fallots


For the last one month she was taking medicines as follows but now stopped couple of days back: zincum metallicum 30, plumbum metallicum 30, phosphorus 30 as follows:
zincum metallicum 30: Sunday
plumbum metallicum 30: Monday
phosphorus 3: Tuesday

zincum metallicum 30: Wednesday
plumbum metallicum 30: Thursday
phosphorus 3: Friday
and so on...

I am more concerned about her heart problem as she seems very much congested while taking breath. At birth she was in incubator for 5 days due to lack of oxygen. She is making noises all day and all night while taking breath. And when she take breaths, her chest goes down a lot.

She is very very week and not gaining.

Do you have any advice and suggestions for me?

One doctor suggested as follows:
“Carcisocinum” 30; every alternating day. He said to give her for three weeks and then wait.
Cratagus-Oxy – Q , 7 drops per dose, once a day.

But another doctor says these remedy is not for her. I am now confused what to do.

Please let me know if you want to know anything more about my daughter.

best regards
Khurrum
[message edited by khurrum on Tue, 05 Nov 2013 16:52:25 GMT]
 
  khurrum on 2013-11-04
This is just a forum. Assume posts are not from medical professionals.
If someone is suggesting remedies in a case like yours without first taking case details, you can be rest assured that you are making your baby a testing mule.

True homeopathy doesn't work like this. We only give one remedy based on totality of symptoms. That's it and if that remedy is right, it will work within its limits. Congenital deformities are difficult if not outrightly impossible to cure.

Here are the questions to start off:

1. Age, weight, height
2. Physical appearance of the child (features, complexion…)
3. Milestones achieved and what age (teething, standing, walking …)
4. Symptoms of the health problem
5. What makes the problem better
6. What makes the problem worse
7. How is the child behaving during this problem
8. How long the problem has been there
9. What is the reason of the problem in mother’s view
10. How is the stool & urine
11. How is the child’s sleep
12. What is the child afraid of
13. Where does the child sweat normally
14. Any problems with nose, throat, ears, chest…
15. Describe the nature of the child
16. Is the child chilly or hot
17. How was the pregnancy of the mother
18. How is the relationship of mother & father
[message edited by fitness on Mon, 04 Nov 2013 23:57:22 GMT]
 
fitness 6 years ago
1. Age, weight, height

Age: 2.5 months
weight: when born 2.7 kg
now after 2.5 months 3 kg only
height: 21 inches

2. Physical appearance of the child (features, complexion…)

Poor muscle tone, flat nasal bridge, Upward slanting eyes. Complexion is normal and as per mother and father. (asian)


3. Milestones achieved and what age (teething, standing, walking …)

Age only 2.5 months so no any milestone achieved yet.


4. Symptoms of the health problem

Very week and cannot even control neck herself. Bit difficult in taking burp after feed (mother feed). Breathing problem (making noisy breathing 24 hours).


5. What makes the problem better

Seems little comfortable when we make her sleep on her right hand side


6. What makes the problem worse

Not yet detected.


7. How is the child behaving during this problem

She is always happy even when in pain. She tries to talk and reply when we play with her. When in pain or hungry, she only makes a small noise aahh!!, aaeein!!, that's it. Tears are always there in her eyes but less even when in good mood.


8. How long the problem has been there

From Birth


9. What is the reason of the problem in mother’s view

No idea


10. How is the stool & urine

Normal

11. How is the child’s sleep

Noisy due to breathing issue.


12. What is the child afraid of

Not yet detected


13. Where does the child sweat normally

Back


14. Any problems with nose, throat, ears, chest…

Yes nose is flattened, throat has infection twice till now due to which we have to give her antibiotic. Chest seems always filled due to noise, ears no problem.

15. Describe the nature of the child

Happy and cool

16. Is the child chilly or hot

hot

17. How was the pregnancy of the mother

This is the third child all 3 with caesarian. But this one only with down syndrome.


18. How is the relationship of mother & father

Mostly not good. Also due to which a long delay of 7 years occurred between 2nd and 3rd daughter.
 
khurrum 6 years ago
Please explain noise in breathing, is it rattling noise in chest or wheezing as if nose is blocked or wheezing from chest like whistles

What do you mean by upward slanting eyes

Can you post two pictures of the baby, one just face and one full

Are her hands & feet chilly or blue or anything unusual

Explain the pregnancy of the mother (any morning sickness, bleeding, how she felt emotionally during pregnancy) these details are important

Why cesarian delivery

Was the conception unplanned
 
fitness 6 years ago
Typical facial features
It is usually quite easy to recognise that someone has Down's syndrome by their typical facial features which include:

An oval-shaped face.
Eyes that slant upwards and have an extra skin fold on the upper eyelid known as an epicanthal fold. This skin fold covers the inner corner of their eye next to their nose.
A small mouth and a tongue that often protrudes.
The back of their head (called the occiput) is often flatter than normal.
Their nose may be small and have a flat and low bridge.
Ears may also be small and low-set.
Other outward physical features
These can include:

Just a single crease across the palm of the hand (single palmar crease).
Short fingers and a little finger that can curve inwards.
Joints that seem 'looser' than normal.
A bigger than normal space between the first and second toe (the 'sandal gap').
Muscles that lack tone and can be quite floppy (this is often most noticeable in babies).
[message edited by simone717 on Wed, 06 Nov 2013 03:40:31 GMT]
 
simone717 6 years ago
i guess it is called rattling. the sound is like khrrrr khrrrr...

by upward slanting eyes, i means to say that these are the normal and standard features of any down syndrome person as their face are almost similar to each other which contains:

- loose muscles and joints
- eyes that slant (you can google images of down syndrome kids and will see the same eyes slant in every child)
- a lower than average weight

Her hands and feet are normal.

During pregnancy mother had no any morning sickness, no bleeding. We had some problems with each other and some quarrels from 3rd month to 5th month of pregnancy and also time to time before and after this period. As mentioned earlier, our relations are not good almost. But we are very close whenever issues are resolved.

Cesarian delivery because first 2 kids were through cesarian and doctors say that normal delivery is not possible if 2 previous were through cesarian. No true pains occurred during delivery of first child and same case for the 2nd child, although waited and tried a lot, therefore they had to do the cesarian.

Conception was planned but i had somewhere in my mind that first issues shall be resolved permanently as there are frequent quarrels between us so new child should not suffer like other 2 and therefore was mentally not prepared for the third. But it was a planned as during those days we were close again.

Attached is the pic for your review, i will post another in next reply as i can see that i have option to attach only 1 pic.

all the best and thank you for your concerns and guidance.

(This post contains an image. To view the image, please log on.)

 
khurrum 6 years ago
here is the another pic

(This post contains an image. To view the image, please log on.)

 
khurrum 6 years ago
She might need an open heart surgery at some stage, we can try a few remedies that might improve the condition enough to alleviate that need.

First stop all other homeopathic remedies.

Please give her only two doses of Convallaria Majalis 200c, 12 hrs apart.

No more doses after that.

For small children:
One dose is made by dissolving one pill of the remedy (one drop if liquid remedy) in half a glass of cooled, boiled water. Stir it and take one tea spoon from it.

Report back with any changes observed.

Based on response we will decide future course of action.
[message edited by fitness on Fri, 08 Nov 2013 23:04:48 GMT]
 
fitness 6 years ago
Thanks a lot doctor, for your concerns and advice.

I have also attached the voice file which mashal (patient) is making in her routine on continuous basis all day all night. (even when sleeping). This voice is different from what I mentioned. This means that she makes both these sounds the one I mentioned and one like attached in this message.

Today she is 3 months now and when she sleeps on her side, we feel that she is more relaxed and very less sound making in this direction.

Now the season is changing here towards winter and she is making more sounds now.

I have stopped all the previous medicines and plan to give your prescribed remedy in next 2 days. Pls advice.

Be Blessed.
best regards
Khurrum
 
khurrum 6 years ago
Sorry I can see that the voice file is not attached. You can download the file from: http://www34.zippyshare.com/v/51951521/file.html

Click on the orange color box which says: Download Now.

Thanks
 
khurrum 6 years ago
Please give my suggested remedy and report back with changes observed.
 
fitness 6 years ago

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