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Severe long term side effects after radiation

This spring I completed chemo and radiation treatment of the pelvic region. It looked bad but I made it through the very strong treatment and it was succesful.

I was very very ill during treatment, terrible stomach pains that not even opiates could control, severe nausea and diahrrea and weakness.

This summer I felt a lot better, though I was still on opiates for pain and had stomach issues and weakness. I had high hopes on continued improvement, but since September my condition has just deteriorated. :(

My stomach problems just seem to be getting worse, I have to take at least 5 mg oxycontin each morning to be able to survive the day. I still have pretty bad pain but I try to take the absolute minimum as I know opiates are bad. I also take medicines for gas, ulcers and sometimes nausea.

I can hardly eat anything without being in extreme pain and getting horrible diahorrea. I also sometimes bleed from my bowels. The only thing I can eat without too much trouble is lactose free youghurt, small amounts of white bread and jello.

I can not eat any fiber or fat! Which means no vegetables or fruit (my favourite thing to eat). Very lactose intolerant too.

But what feels even worse is that I've begun to suffer from bed wetting. :( I find it terribly embarrassing and I'm so ashamed I haven't managed to tell my onc about it. I've tried not drinking after 7.30 but it's not helping.

I can be fine for a a couple of weeks and then I think that it's gone away but bam, suddenly it comes back. :(

Since I stopped drinking at night it's not a huge amount but enough to make the sheets wet and I find it extremely distressing. :(

I haven't wet the bed since I was a small child and I'm now 33 so I know it's because of radiation damage to my bladder.

I also have very bad pain in all my joints, my neck and the small of my back. Worse with change of weather, cold and damp. Better sunshine and warmth.

Psychologically I fit the profile of Silicea.
I am very sensitive to everything, refined, thin long limbs, tall, delicate, blonde. Shy and timid but can be very critical of family members although I absolutely despise conflict and it makes me feel physically ill. I'm stubborn and I don't like sudden changes. As a child I would be extremely upset if my mum moved the furniture around.

My interests are animals, alternative medicine, religion, philosophy, nature. I like fine and beautiful things (clothes, shoes etc) but besides that have no real interest in earthly matters. I'm very intelligent and was a straight A student effortlessly but I'm still not very confident and often doubt my abilities and feel that I will fail and that I'm not good enough and that I'm never doing things well enough.

I like the company of certain carefully chosen people but mostly I prefer to be alone or with my animals. I never watch the news as it upsets me. I worry a lot about those I love, the world and now also very much about my own health (or rather lack thereof) and my life.

I have some psychic ability and can often see things, and I can tell what other people are feeling even though they try to hide it.

Though I am quite a resilient person and not one to ever give up, these days I often feel very sad. I'm so scared that the tumour will come back because I desperately want to live. The next moment I think it would be better if I'd just died because I'm suffering so badly with the side effects after the treatment and I can't see a future for myself. :(

Please help me, what can I take to help with my radiation side effects? I think that if they would improve then my mood and life would considerably improve too.
 
  leopard82 on 2013-11-10
This is just a forum. Assume posts are not from medical professionals.
1. What are the symptoms of the problem
2. What makes the problem better
3. What makes the problem worse
4. How are you feeling mentally & emotionally during the problem (restless, calm, weepy, want to be alone etc)
5. Are you chilly or hot
6. How is your level of energy
7. How is your thirst
8. Are your lips or mouth dry
9. If fever, are you chilly or hot
10. If fever, are you sweating or not
11. If fever, what makes you feel better
12. Your likes & dislikes in food (taste, temperature…..)
13. What medicines are you on
14. What medicines have you taken in last 6 months (dates, dose, potency)
 
fitness 6 years ago
Hi fitness, thanks for your reply.

1. What are the symptoms of the problem
Inflamed bowels, diahrrea, severe stomach pain.
Food intolerance.
Urinary problems, going to bathroom often and periodical bed wetting.
Pain in joints.
Weakness.

2. What makes the problem better
Bowels: fasting, eating only yoghurt
Urinary: nothing seems to help
Joints: sunshine, summer, warmth

3. What makes the problem worse
Bowels: eating, esp fat, fiber, lactose, even small amounts
Urinary: don't know, drinking more I guess
Joints: cold, damp

4. How are you feeling mentally & emotionally during the problem (restless, calm, weepy, want to be alone etc)
Sad, frustrated, hopeless, weak, tired

5. Are you chilly or hot
Chilly

6. How is your level of energy
Very low

7. How is your thirst
Very thirsty in evening when I'm trying not to drink... And in the morning. Otherwise normal. I only drink water and fresh apple juice.

8. Are your lips or mouth dry
Yes

9. If fever, are you chilly or hot
No fever

10. If fever, are you sweating or not
11. If fever, what makes you feel better

12. Your likes & dislikes in food (taste, temperature…..)
Am a vegetarian.
I love fruit, berries, baked goods (rolls, bread, pastries), french fries, mash and cheese pizza. Can't eat any of that now though. :/
I like salt but no other spices! I like food that is simple (boring), that does not have many flavours. I don't like milk or eggs. I can't stand onions.

13. What medicines are you on
Painkillers, thyroid meds and have tried to take Silicea M for my problems.

14. What medicines have you taken in last 6 months (dates, dose, potency)
I don't remember the dates or doses.
Arnica D30, Calendula D30, Bellis D30, China D30, Thuja D30. Most recently Silicea D30.
 
leopard82 6 years ago
Please explain stomach pain (cramp, constant, where etc) and its modalities (better & worse by e.g. pressure, warmth, doubling up etc)

and similarly diarrhea and food intolerence also.

Please tell your 'real' likes & dislikes in food not acquired ones like vegetarian.

Are both lips & mouth dry?

If you are chilly, are you liking warmth

Please explain with a lot of detail sad, frustrated & hopeless e.g. I am feeling sad at night when thinking about illness.....but this feeling gets better during the daytime etc.

Why did you get radiation & chemo
[message edited by fitness on Sun, 10 Nov 2013 16:39:27 GMT]
 
fitness 6 years ago
Please explain stomach pain (cramp, constant, where etc) and its modalities (better & worse by e.g. pressure, warmth, doubling up etc)

Constant pain, like wound in abdomen. But worse after eating, it feels like a knife stabbing me.
It can change location, but usually at the height of my belly button and on both lateral sides of it.
I don't feel like anything makes it better, but I do double up instinctively. It is better when I've been to the bathroom for an hour and all the offending food is gone.
Pressure hurts! Also movement hurts, I need to sit very still.


and similarly diarrhea and food intolerence also.
It's better if I don't eat, much worse from eating fat or fiber or milk.


Please tell your 'real' likes & dislikes in food not acquired ones like vegetarian.

Those are my real likes, eating other living beings disgusts me and I haven't eaten meat since I was 8 years old.

Are both lips & mouth dry?
Yes, and especially at night

If you are chilly, are you liking warmth

Yes, I do but only to a point. if it gets too hot I feel like I'm suffocating and must open window.


Please explain with a lot of detail sad, frustrated & hopeless e.g. I am feeling sad at night when thinking about illness.....but this feeling gets better during the daytime etc.

Mostly I feel sad when my symptoms are really bad, like when I'm experiencing incontinence or terrible stomach pains. I'm sad when I think about it and afriad that I will never get better. When I'm doing something else, reading, watching a movie etc I don't feel sad. When I've been better for a couple of days I believe that I'm recovering and that makes me happy. However the improvement never lasts and for each new bout of symptoms I lose a little more hope.


Why did you get radiation & chemo

Because of cervical c*ncer. Had a tumour of 5x5x4.5 cm. It started bleeding like a water fall, that's how it was discovered.
 
leopard82 6 years ago
Details of diarrhea (consistency, smell, any blood in it etc)

Which foods are causing what

Details of incontinence (any particular time of day, urgency etc)
 
fitness 6 years ago
Details of diarrhea (consistency, smell, any blood in it etc)

It's not consistent. Sometimes greenish brown, sometimes reddish brown (from blood). It's very liquid, and has bits of undigested food in it. Gross!

Which foods are causing what

Anything other than lactose free yoghurt and jello give me pain, white bread does not cause diarrhea but pain. Everything else causes both pain, distension and diahrrea.

Details of incontinence (any particular time of day, urgency etc)

I need to go to the bathroom often during the day, but incontinence only when I'm sleeping (at night). More often during the first hours of sleep but not always.
 
leopard82 6 years ago
You had written Sad, frustrated, hopeless, weak, tired.

Please explain each of them separately in detail. (you have already done sad, don't explain it again)

Are you tearful or irritable or restless

Do you desire company or alone

What is the smell of stool like (dead animal, rotten eggs, sulfur etc.)
 
fitness 6 years ago
You had written Sad, frustrated, hopeless, weak, tired.
Please explain each of them separately in detail. (you have already done sad, don't explain it again)

I'm tired and weak all the time. As if my batteries are almost dead.
The other feelings are when symptoms are bad and when I think about symptoms.


Are you tearful or irritable or restless

Both tearful and irritable, but not at the same time.


Do you desire company or alone

I want to be alone and I want it to be quiet.


What is the smell of stool like (dead animal, rotten eggs, sulfur etc.)

Not sure how to describe it, doesn't really smell like anything else I know of.
 
leopard82 6 years ago
I believe your remedy is Arsenicum Album 200c.

Please take two doses 12 hrs apart. Just two doses. Not daily.

One dose is one pill. Dissolve the pill under the tongue.

First dose: ASAP.

Second dose: 12 hrs after the first dose.

Report back with changes observed.

DON’T TAKE ANY OTHER DOSE OR ANY OTHER REMEDY UNLESS I TELL YOU.
 
fitness 6 years ago

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