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Attn Jo De Livera-1year old with reflux and recent meckles surgery

I am desperate and looking for a solution to my sweet one year olds GERD. She has been through so much, and after failed attempts at medicine from her pediatrician, I am ready to find a solution once and for all. Let me start from the beginning to give you a better history,
When she was about 3 months old, when she was fussy and spitting up, along with hearing constant liquid moving up and down her throat, she was prescibed axid for reflux. Around 7-8 months old, I took her off of it, as it seemed the symptoms were gone. She then seemed fine and I couldn't tell of any symptoms until some small symptoms around 11momths. The sound of liquid coming up her throat again, but not too often, so I didn't give her medicine.
At 12 months old, we found ourselves in the ER. She had two things....intussusception, and meckle's divertuculum. They were able to take care of the intussusception by fixing it through surgery and removed the meckle's by cutting it out and putting the intestine back together.
Since the day she left the hospital, I was hearing the reflux very bad, and she was not sleeping well, tossing and turning. We also had to return to the hospital the day after we left, because she had a large blockage of stool that was not passing, that finally passed in a few days. She was unable to keep food down
When the large amount of stool passed, she was discharged, but I knew something else was wrong. A week later, her reflux was worse than ever and she was throwing up, unable to keep hardly anything down, I then came to the conclusion that the sucking motion out of a straw or silly cup, of pouch of baby food was causing her to gag. She is now eating, but probably only a quarter of what she used to. She now only can drink through a nipple with one hole, or she chokes up on the liquid and you immediately hear the reflux.
Because she was throwing up, she had an upper GI test, which confirmed a continuous reflux. They since then, put her on nexus, which very much disturbs me, and she sleeps terribly which leads me to think that the reflux is still hurting her. She is now 13 months old
Please help me, I will follow any strict regimen to get my poor baby, who has been through so much, back to normal
  Nicolita2007 on 2013-11-12
This is just a forum. Assume posts are not from medical professionals.
Joe is not on the forum everyday. It would be faster to
contact him on his own site- http://www.joedelivera.com.
simone717 9 years ago

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