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Pancreatitis and Whipple procedure 6

 

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chronic pancreatitis and whipple procedure

i am a 47 yr old man that has had chronic severe pancreatitis for about 25 years. i have chronic pain and have been taking many many pain pills/shots and have become medically addicted to them. in 2001 i was told that there was a "lump" on the head of my pancreas and the surgeon i was sent to said that he had to do the whipple procedure as soon as possible and that i could not even wait for a biopsy. i had never heard of the whipple procedure and was very frightened that the lump could be cancerous. i had the surgery done two days after that. the lump was removed with the whipple procedure and was not cancerous. it took a long time to recover from the surgery and i now have lost over 40 lbs, hardly eat, sleep all day, my hair and teeth are frail and no doctor can tell me what to do. i am no longer seeing the doc that sent me to the surgeon or the surgeon as i feel that i was rushed to a surgery that was not necessary and am now suffering with the same pain and worse i am horribly malnourished, have no appetite and am afraid i am just going to waste away. my current docs feel that i just want pain meds to get high and treat me like a drug addict. please, if someone can shed some light or lead me in a direction for help i would greatly appreciate it as i have exhausted my choices with the docs i have had and know that i have to live like this as the whipple was done, needed or not. i have tried many supplemental "shakes" that make me throw up and the vitamins i take i am sure are not properly digested and distributed throughout my body and along with my physical failings am going through psychological trauma due to this whole mess.
 
  jolarone on 2005-11-04
This is just a forum. Assume posts are not from medical professionals.
I was indeed very concerned to read your pathetic story of surgery on your Pancreas to alleviate the pain that you suffered for 25 years. You state that your condition, as far as your pain is concerned is the same as it was prior to surgery which was done in 2001 and that you are dependent on pain killers today as you were prior to surgery.

I live in Sri Lanka and cannot diagnose the cause of your ailment today but if you so feel inclined I would like to have more details of how the original diagnosis was arrived at, that you did have Pacreatitis. Please give all details of how it started, whether it was some pain in the stomach and if it was helped or made worse by foods and various beverages including alcohol. What do you feel in your stomach after a meal. What drugs are you using today ?

Also if you are married and what your occupation is. Weight and height before surgery and now. You state that you cannot eat and hold food down. What do your doctors do about this ? Where do you live and where was your surgery performed ?
 
Joe De Livera last decade
the original diagnosis was done at cabrini medical center in nyc after a slew of misdiagnosis. i beleive it was diagnosed by the lipase and amalyse levels at the particular time of admittance. i don't drink alcohol so i guess it was brought on by the foods i was eating which were mainly fried precooked fast foods. i also have thalacemia minor, the mediterannean anemia which i believe contributed to the pancreatitis. i was treated with many meds (such as pancrease) none actually worked. after a number of years being treated per incident at emergency rooms and several (too many) hospital stays where i was taken off all foods and liquids until my levels came down for 24 hours (having had too many ercp's, mri's, x-rays, cat scans, and all the rest), and now living in las vegas, nevada, my primary care physician said he saw a lump on the head of my pancreas (it was seen before about 5 yrs prior-nothing was done about it as i was then told that i could bleed to death if they took a biopsy but other blood tests indicated that it was not cancerous), that physician referred me to a surgeon here in las vegas and stressed that i had to go as soon as possible. i went to the surgeon who also stressed importance and urgency of handling the situation immediately and ran down the baiscs of a whipple procedure also saying that a biopsy could cause me to bleed to death. i opted for the surgery as i was frightened that i had cancer and that if it was it was growing for a number of years. i had the surgery within two days of the visit with the surgeon. the pain goes from dull aches to sharp gnawing pains as though my stomach was eating itself. after the surgery i cannot eat much as the resection has left my stomach cavity very small and there is not enough room for a normal amount of food and i do not have an appetite. my currentl docotor's in las vegas have not addressed the situation at all, therefore i had become quite emotionally sedated to my condition and felt i was just going to wither away and die and so be it. a good friend of mine came out to visit me and was shocked at my weight loss and lack of energy. at his urgent request i am seeking the assistance of a registered dietician, asking my physicial to take a total blood work up (hormones and etc) to give me shots of whatever i am lacking and perhaps i will get a bit of energy to go on and get well. i am not married, have never been, have lost 40 lbs, i am 5'10" and have not measured myself in years. i am taking so much medication that i don't know what pains are caused from the pancreatitis and what pains are caused from the narcotics, but i cannot stop as i am medically addicted to the soma and ativan and for a number of years was prescribedinjectible demerol and have had many many infections due to the self-injections. i no longer take the demerol. i do not think that the whipple was necessary and that the surgeon jumped the gun and scared me to agree to it. the serious surgery have left me in bad shape and i don't even know what it has done to my life expectancy and doctors since the surgery are always surprised that i am still alive after the whipple. i am lost in a sea of uneducated physicians that are more concerned about my prescriptions than my health, mental and physical.

thanks for your concern,
john
 
jolarone last decade
John,

I presume that you received my email which I sent you in response to yours.

I am confident that you will snap out of your present condition in a few weeks if you follow the therapy I have advised.

Joe
 
Joe De Livera last decade
I had a whipple procedure in 1999 after a 'mass' was found in the head of my pancreas. Since then I have actually had worse pain than before the surgery. My 'new' pancreatic duct is closed. I had very good insurance at the time of my surgery. Since that time, I divorced and lost my insurance. I have just been taking pain medicines daily and starving myself when I have an acute flare-up. Last week I called my Gastroenterologist, that I have had and depended on for the last 8 years, to tell him that I was having a really hard time. He had his secretary tell me that there wasn't anything that he could do for me. He wouldnt even talk to me. He was the only person that I felt like could or would help me, no matter what the insurance situation was. I feel like I just waisted insurance money for the surgery in 1999. Now I'm still sick, even worse than before. And, no one to help me. I would just like to talk to someone who may know what I am going through.
 
kmccoig last decade
Hey my mom has chronic pancreatitis and shes had it since like December of 2006 or at least that when she had her first attack and now she in the hospital and she been there for 3 days and yesterday she was throwing up blood is that normal in her condistion. is her condition really bad?
 
sad12 last decade
plz someone replie fast i would really feel better if someone did
 
sad12 last decade
the docters said that her overes are bleeding im really scared she might die. plz would any one mind helping me
 
sad12 last decade
nice forum.
 
whyinsure last decade
Following two medicines are very beneficial.

Baryta Mur and Spongia
 
hamidwas 8 years ago
Please see http://www.abchomeopathy.com/forum2.php/246141
for Parakletos prescription for pancreatitis.
 
simone717 8 years ago

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