Help with Toddler who has seizures, developmental delays and an autoinflammatory disease called pfapa

Hi, I was wondering if there was anything to help my 3 yr old. My pregnancy was normal. I try to eat organic/all natural/ no preservatives, etc... I also took my prenatal vitamins. My daughter was 2 weeks late. When they gave me my epidural, my blood pressure dropped so they had to give me emergemcy meds. and then they removed her with forceps. She came out healthy and never had to leave my room. She developed normally until 6 months old.at that time, she stopped progressing (crawled late, walked late, etc...) She also started getting periodic fevers and was diagnosed with an auto inflammatory disease and it causes mout ulcers, upset stomach, swollen lymph nodes, high fever, etc... At 11 months old, she had her first seizure which lasted a few hours and they had to pump her full of meds to get her to stop seizing. After that, she had those seizures about once a month where they lasted almost an hour. those big seizures finally stopped when she was 2.5 yrs old. Now she just has a small seizure every 3 weeks that lasts about 20-30 sec. We changed her diet (no dairy, refined sugar, soy, grains, gluten, corn, processed food, etc...) and that has really helped with the auto inflammatory disease. She stil has it but sometimes just the symptoms but no fever, it isn't as bad and doesn't last as long. We have seen MANY naturopathic drs. she has had iridology, hair analysis, blood tests, has taken many different supplements, herbs, etc.. she goes to a chiro. She has had a ct and mri and her brain looks fine. She is 3.5 yrs old, but still has a seizure every 3 weeks, still has a flare up with the auto inflammatory disease, walks but not well (she has low muscle tone), babbles but no words, and doesn't understand everything, Like if I said "go give me your shoe" she would just look at me. She also doesn't "play". she just holds things and walks around the room. She is very social though. she likes to smile and give hugs. :) So, we have tried many different things but it seems that we are at a standstill right now. Anything that could possibly help? Thanks!
[message edited by carolyn97 on Sun, 23 Aug 2015 14:59:56 UTC]