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Retinitis Pigmentosa-Tushar

Pl. post your replies here.
Pankaj Varma
  PANKAJ VARMA on 2006-11-15
This is just a forum. Assume posts are not from medical professionals.
For those who want to know more about RP >>>

What are Retinal Degenerative Diseases?

Retinal degenerative diseases are a family of disorders that cause degeneration of the retina.

What is Retinitis Pigmentosa?

Retinitis pigmentosa (RP) is the name given to a group of inherited eye diseases that affect the retina. Retinitis pigmentosa causes the degeneration of photoreceptor cells in the retina. Photoreceptor cells capture and process light helping us to see. As these cells degenerate and die, patients experience progressive vision loss.

There are types of photoreceptor cells: rod cells and cone cells. Rod cells are concentrated along the outer perimeter of the retina. Rod cells help us to see images that come into our peripheral or side vision. They also help us to see in dark and dimly lit environments. Cone cells are concentrated in the macula, the center of the retina, and allow us to see fine visual detail in the center of our vision. Cone cells also allow us to perceive color. Together, rods and cones are the cells responsible for converting light into electrical impulses that are transmitted to the brain where “seeing” actually occurs.

What causes Retinitis Pigmentosa?

Retinitis Pigmentosa is a genetic disorder. It is programmed into your cells, not caused by injury, infection or any other external agent. Genetic defects (mutations) send faulty messages to the retinal cells which leads to their progressive degeneration, which in turn, leads to vision loss.
PANKAJ VARMA last decade
Please explain to me in detail your current symptoms.

Which homeo meds have you tried till now?

What illnesses you have had since child hood?

Have you been under any mental stress in recent years?

Have you experienced any internal bleeding from any part of your body??
If so ...where??

Medical history of your parents??

Pankaj Varma
PANKAJ VARMA last decade
Dear Pankaj

Do you have any experience with diabetic/hypertension related retinal degeneration.
kuldeep last decade
Yes Kuldeep....I do.
Hypertension related RP.
There are some posts by me in the archives on this.
PANKAJ VARMA last decade
Dear Pankaj,
Thanks for your reply and Qs.
To be more about me. In my family nobody is affected by RP. although I have noticed that my sister had retyina detachment at her age of about 27. My father is still having no spect even at the age of 78. All his hair is still black and very energetic and active in daily life need no supports or any medicine. My mother is ofcource a BP patient. Her vision is good at present age of 73. Although recently she diagnosed as Cataract. In my child hood as I remember some doctors have givne me tonic Furoczon as minor heart treatment. I had brocken my spects some glass particles gone in my eyes with no major effects while playing cricket at the age of 12. My rught eye is Non Working at present.
Recently I felt one small bleeding without any injury in my right arm just 6 cm from whrist. Have no pain. I am not suffering from any other ailment. But have frequent throught infection due to pollution and dust. I hope this will suffice you. I will be happy to answer your more querries.
PANKAJ VARMA last decade
What about skin irritation/itching/warts/pimples etc.??
PANKAJ VARMA last decade
Dear Pankaj
Thaks for your reply and interest in my case.
To your Question. I don't feel any skin irritation. My skin is absolutely fine and have no problem.

tjtrivedi last decade
'But have frequent throught* infection due to pollution and dust'

*you mean throat??

pl. give more details aout this.

Pankaj Varma
PANKAJ VARMA last decade
PANKAJ VARMA last decade
also tell me more about this problem:

' In my child hood as I remember some doctors have givne me tonic Furoczon as minor heart treatment.'

Pankaj Varma
PANKAJ VARMA last decade
Pankaj, this problem is alsoheredity. My uncle's two children have got this and were not diagnosed 20 years back. Now both are blind.
maya_hari last decade
Ok thanks Jaya.
PANKAJ VARMA last decade
Thanks Pankaj
I do generally feel throut infection due to pollution. But have no problem with my skin. As reqargd furoxzon tonic I mention I may have misspeled as it was about 35 year back when I was 8-9. I have forgotten the details as such.
To add about me I am feeling some change in my thought. Earlier I was very enthusiatic, but this is no so at present. I avoide any new ventuer.
tjtrivedi last decade
Ya. I didn't notice this.!!

Looks very funny indeed.!

gavinimurthy last decade

Go see...!!
PANKAJ VARMA last decade
Yes. I saw it. There is a reference to 'theory of suppression' there, and a Thank you for me.

gavinimurthy last decade
Hello everyone,

My name is Nayla i am 21 years old, I am from Bahrain.

I have been diagnosed with RP around 10 years ago. Currently I am in my senior year in college and as part of my graduation project, I am creating an awareness campaign to let people know about the disease and what we, patients, struggle and go through on a daily basis.

I want to ask you, if you may, to video tape yourself and tell me about how it is like to live with RP. The video tape will only be used for viewing and it will not be copied or distribted.

In the video, I would like you to state when you were diagnosed, how did you first notice or people around you noticed you had RP, how are you coping with it, how do you explain to people about and let them know what kind of assitance you need. Talk about things like that.

You could email me if you have further questions or queries. Please help me spread the awareness. I would be gratefull.

Pass this along to anyone you believe would be interested in helping me with the campaign, people like you.
nayla last decade
Thanks Nayla for your message.. But I am sorry I dont;t any video tape regarding the details of my case. But soon I will write up my details and mail to you .
tjtrivedi last decade
hello every one... am new to this forum my name is mauktik..age 52 work as a professor(commerce)in INDIA.I have been diagnosed for RP and have undergone several tests PERIMETRY..etc. I have three cousins all of us are suffering with RP.The major problems faced are
1.side vision is poorest
2.alertness is reduced to a great extent
3.am unable to see in dim lighted areas even During day
4.The situation is worst during late evenings and nights..i can hardly see any thing unless there is any bright light.
I drive a two wheeler during day time..but then i think i need to stop even that after few days...extreme strain on eyes..irritation...
my all cousins face the same problem..

I was a very optimistic person, very open...after having RP my behaviour is changed greatly..i get irritated very early...lack patience

I meditate,do yoga very consistently which keeps me calm,is also a stress reliever

I have taken Glow eye tablets for 3 months and found slight improvement..

Any treatment/surgery(homeopathic medicines) that could help protect my vision..please share it with me
I'll be very grateful

mauktik last decade
You will have to take Forever Vision ... a mix of herbs.
It has the capability to arrest Retinal degeneration.

Pankaj Varma
PANKAJ VARMA last decade
glow eye and vision where these are available pl inform.
akshaymohl last decade
Pl. send me e-mail
PANKAJ VARMA last decade
i have heard about tetnotis for retnitis pigmentosa is it right medicine.
suniltinku112 last decade

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