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BXO help needed

Ive been diagnosed with this and the remedy is - circumcision - which I am not looking forward to at all!
Does anyone have any thoughts on what might be suitable for this?
As you might imagine, all help will be gratefully received.
  john 65000 on 2003-11-12
This is just a forum. Assume posts are not from medical professionals.
ulceration? urethra affected (yet)?lumps?
post particular characteristics of the complaint???

John Stanton
John Stanton last decade
i also have bxo i,ve had since iwas thirteen and i am now twenty eight.
through sheer enmbarresment after i was circumsised i did not take any follow up treatment.
just under a year ago i had to have a FIRST STAGE URETHROPLASTY with BUCCAL MUCOSAL, (sound painful and it was)they cut your penis from the underneath along the urethra and cut all the way back to where the bxo stops and in my case that was past the scrotum.they then take a skin graft out of the walls of the inside of your mouth to graft on the cut part of the penis where the urethra was.then six to nine months later they close it all back up and leave a catheter in four about three months (which is what i'm having in FEB 2004) then its back in to have the catheter remover and hopefully thats it and its just checkups from then but they say there is a 15% of the graft failing (and that happend to me) but the whole treatment will only last upto about ten years.
so if you have just been diagnosed with bxo use homeopathy as well as doing what the doctor says'.stewartie777
hoymail.com contact me if you need more info.
stewy777 last decade
Hi, I've gone through stage 1 and stage 2 surgery for BXO now and can honestly say I wished I had got over my embarrassment quicker and done something about it sooner. It's 6 months on now and I feel great and hey I can pee without either sitting down or hitting the ceiling. It's not a nice process to go through but it looks worse than it feels and as long as you have an understanding partner things still work OK. My surgeon has not stated that it only lasts for 10 years - the process is new and they do not have enough history to say it doesnt last after that time. Not enough people know about this disease and it scares me to think of all the blokes (and women for that matter) who have swept it under the carpet and have suffered unnecessarily.
ChrisR last decade
Wash under the foreskin with peroxide often. Believe it or not cheap hair shampoo is good for the skin. Better than bar soap.

Take several doses of:
ECHINACEA (4 X daily for 3 days)200x or 1M
HYPERICUM (2 X daily the 3 days)

Wait a week and take another dose of the ECHINACEA. This must be Homeopathic Echinacea, not the liquid herb over the counter.

I would like to know the progress.
Sabra sabra
sabra last decade

Last Tuesday I was diagnosed with BXO. The practitioner is a specialist in penile issues, and reckoned that my example was one of the earliest cases he’s seen (I hope he was telling the truth).

The Dr examined my urethra and reckons it has not spread there yet. He seems to be confident that circumcision will not be needed and steroids should clear it up. Personally, from what I’ve read about BXO, circumcision looks a small price to pay considering its potential long-term damage. Having said that, from the stats I’ve seen circumcision only seems to be effective in the majority of cases, but BXO can recur in some people as Stewy has outlined.

Stewy, may I ask, if you had followed up after your initial circumcision aged 13, would it not have got to the stage where you needed extra surgery? How could they have prevented it getting that far? Could they have detected its return and given you less radical treatment?

Chris and John, how are things now? Was surgery successful?

I have copied a note from the Dr I saw which he has sent to a urologist for background info: "Have you any
faith/experience of the non circumcision treatments. i.e. local or
intralesional application of strong steroids or laser ablation ? I have just
seen a 33 yr old man with a 6 month history of a change in his foreskin with
mild irritation. He notes that it always improves temporarily with the
application of a Betnovate preparation. O.E. His foreskin is easily
retractable and as the ridged band reaches half way over the glans a thin
band of white slightly rough tissue extends all the way round the foreskin.
See jpgs/ His frenulum was torn years ago , and he has some penile pearly
papules. He is very alarmed that I think this may be early BXO. Do you think
I may be right ?"

This condition strikes me as quite a worrying diagnosis, and I would be very grateful for any tips from other sufferers.

Thanks in advance,
norman6386 last decade
I have just had stage 1 surgery, urethroplasty and buccal mucosa graft. In on the 9th December, out on the 12th and a bit sore since. I had about 3 centimetres of urethra removed. Apart from being uncomfortable - especially at night because of erections - the most painful bit was a sore throat.
I would highly recommend taking drugs to stop the erections and follow instructions from the consultant to the letter.
As far as I know, BXO survives in nice warm, moist conditions ie under the foreskin. That has gone as well. I will keep you informed as to the outcome.
Leeroy last decade
Sabra - looks like no one is interested in homeopathy on this one. If so why come to this site?.
passkey last decade
what is bxo?
bandarbabu2000 last decade
My question is why this posting is showing up again after several months???

sabra last decade

How is going now, all sorted?

Was it the GP or a consultant who advised that surgery was not required. How long have you known something was wrong?
vic73 last decade
As it has showed up let me just say -- what I always say about antibiotics --


They drive things in even deeper than antibiotics --- very very dangerous.
passkey last decade
Thanks for your concern Vic.

I haven't had the time off work to go for circumcision yet, but Betnovate keeps it at bay (I try and use it only when needed).

The BXO cleared up when I first used Betnovate, but I've noticed it sneak back very slowly and every few days I have to put a dab of Betnovate to keep it from growing.

Fortunately it is virtually unnoticeable, and I can pull the foreskin back no prob without pain.

I went to see a specialist penile surgeon (they do exist!) who has over 1,000 BXO patients on his books. He felt the infection was so mild that he discharged me, and stated that circumcision would be my choice, but he wouldn't push it on me unless I wanted it.

As soon as I can find time off work it's circumcision for me I'm afraid. From the research I've done it doesn't seem like a big deal, and as I said before, it's small price to pay if you bear in mind that there is a link between BXO and SCC...

From trawling the Internet it does seem that there is a lot of sensationalist rubbish propagated about the condition. Yes, there is a statistical link with SCC (less than 3% verified by numerous professional sources), but it is not nearly as worrying as some would have you believe.

My advice to anyone diagnosed would be to get circumcised ASAP, before it spreads.

Everyone I've consulted (I went straight for the specialists - 4 in total) reckoned I was fortunate to seek treatment so early, and the last dermatologist I saw told me that he thinks there are many undiagnosed cases out there.

One surgeon told me that he sees fathers and sons with the condition.

To summarise - I use a small amount of Betnovate if it becomes visually noticeable, and intend to be circumcised in the next 3 months. So far I've used less than 30mg since diagnosis, and it cleared the infection 90%+.

Unless you get diagnosed late in the condition (it takes months or even years to fully develop as a previous member stated in the thread) I would advise anyone to use any treatment that works, until they get circumcised.

I'll keep you posted if any developments occur, but circumcision looks the way to go - even if you find a treatment (homeopathic or otherwise) that works, it's likely to come back without foreskin removal.

One Dermatologist told me that they have numerous clients using Dermovate once a week to keep BXO at bay, but circumcision is the option for me as I'd rather get rid of the condition.

Passkey: Can you provide some scientific facts that support your stance against steroid? Frequent use causes atrophication, and many side-effects, but in the majority of occasional users I have yet to read of serious issues arising, they only tend to rear their head on long-term heavy users.
norman6386 last decade

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