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Looking for help for my 34 mth old

Hi There,
My 34 mth old daughter was born with hypotonia(low muscle tone). We have had many tests from Genetics, metaboblics, cardio, NTE specialites, brain scans, muscle tests, blood work. They all come back normal! My daughter was born 5 pounds 14 oz.Then went down to 5 pounds. She had no strength to feed orally, She was on ng tube. Doctors said she would not feed until a year. My husband and I had her feeding by 4 mths! She is very bright and interactive. Has a soft voice and even though she talks all day long she has a hard time pronouncing some words again due to her hypotonia. This does not get in the way of her strong will. She is a gentle soul sensitive and needs lots of attention. Always eagar to please. Is very aware of her disabilty but still wants to go play with other children eventhough she does not have strength to run, jump, do stairs, can not stand up from sitting on floor or squating. She needs assitance all day but still says she wants to do it on her own! Sleeps from 9pm to 8-9am. Protested for naps all the time so we have stopped naps 4 wks now. She is only 21 pounds. Is way below the growth charts and has always been. We feed her very fat diet but she doesn't gain weight. All the calories she burns because it takes so much energy for everything she does. She eats slowly and has hard time chewing hard foods like crusty bread, meat. Loves music and tries to dance. Loves to play the drums to music, color, make pictures. Is very sweet and kind to her 11 mth brother. Never shown feelings of jealousy to him but has to friends who pay him more attention. She becomes very quiet. Sometimes when she sleeps she snores or chokes on her saliva even has moments of apnea. Use to be alot worse is getting better. Has her mouth open most of the time. Drools alot. When she crawls she locks her elbows and she looks double jointed. Sometimes it looks like her arm is going to snap. She has very petite frame. Still wears 24 mth old tops. Her height is normal for her height but next to children 1 yr younger she seems short to me. Her father is 6'2' and I am 5'5'. So we aren't small people. She wsa born with bright red birth marks down her forehead, tip of nose and across eyes. Looked like a cross. Also behind neck. Has fayded but still noticeable on forehead. Under eyes has red veins as if skin is tranparent. Eveyone always comments how she looks tired but it's because of the red veins under eyes. Sometimes wakes up with bags under eyes. We took dairy out of diet because was tested with sensitivity. Have not noticed any change. Luckily none of this has affected her intellegence. I am always searching for anything that may help her with increasing her muscle mass/and or strength. Would really appreciate any advice or ideas of remedies that may help her. Thank you Ana
 
  anavicente on 2008-08-26
This is just a forum. Assume posts are not from medical professionals.
Hello,

This is as clear a case of the Tubercular miasm as there can be.

Remedies like Pulsatilla, Silicea, Phosphorus or Calcarea Carb might be indicated.

However, her inclination to dance and make pictures is pointing to Phosphorus or Silica more than the other 2 remedies.

Tell me more about her, I need more info to narrow down further.

Sameer
 
sameervermani last decade
When she was born she stopped breathing and had to have oxygen. She has a high palate. Sometimes loses her balance when walking and when you place her on the ground have to give her a moment to get her balance before letting go. Can be easily knocked down. When walks locks her knees. Has hard time putting arms straight up in the air. Let me clarify that when she draws it's just scribbles. Her pharyngeal muscles are weak. She walks with ankles inward due to weak foot ankle muscles. Her brother exhibites some hypotonia as well but ot nearly as severe. Yet DNA tests show nothing. Sometimes looks as if she has problems with eye movements. Has weak grip. Is picky eatter. Eats small meals through out day because has never been big eatter. Hates food with mushy textures like yogurt, bananas, cereal. Was tested for high levels of aluminum and lead but we are doing a metal detox on her now. Has sensitivity to light. Is prone to eye styes. She has a very strong will. Sometimes whe she is trying to do a task gets frustrated and starts to groin and says 'I can't do it!' We aways tell her 'don't ever give up, just keep trying it's ok. And if you need help just ask no need to get upset.' Has slow reflexes. Doctors say she has no reflexes. When she falls tends to land on head because takes too long to put out hands and sometimes not strong enough to hold up fall. Loves to watch movies especially musicals. If we go out to see music concert loves it but gets scared if too loud or if it's dark out.
 
anavicente last decade
The new information tilts the case in favour of Calcarea Carb.

Give her 3 doses of Calcarea Carb 30c potency on a single day, and then update me in 10 days after the 3 doses.

No eating/drinking for 1 hr on either side of the doses.
 
sameervermani last decade
Thank you Sameer. I will give it to my daughter and get back to you in 10 days.
Ana
 
anavicente last decade
Ana,

How is your daughter doing now ?
 
sameervermani last decade
Hi Sameer,
Have to say we haven't seen any difference in her but we are still continuing to give her the Calcarea Carb. I started to give it two days after you gave me the info. I had to pick it up at the store. I think perhaps because of the severity of her condition it might take longer before you see any results, sometimes months. So we will continue on and I will keep you posted. Thank you so much for your help.
Ana
 
anavicente last decade
Hey Ana,

You should not give it continuously. Stop the medicine immediately. You are not giving her body any time to respond to the medicine.

The medicine was to be given for 1 day ONLY. Please read above.

These medicines are energy medicines which just stimulate the body in the direction of cure. Once the body starts responding further doses of the same potency are useless, and too much repetition can be very harmful.

Let me know in 2 weeks after you stop the doses.
 
sameervermani last decade

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