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nephrotic syndrome

Hello, my name's Chiara, I'm writing from Italy, and I have a daughter, aged 7 with nephrotic syndrome since 4 years.
She took first steroids, but she has 12 relapses/year, very long (till 60days with ++++) and she needed albumin infusions 3 times a week. Then she took levamisolum, but it was no good. So she took ciclosporine for 20 months, for one year she had no relapses, but then again, so we add steroids and everything went better...but she can't stay with that much corticosteroid so long...sothat her doctor change therapy one again since 4 months.
She's now taking mycophenolate mofetil (1000mg/day) and tacrolimus (3mg/day). She's taking so much corticorsterids now...because she's frequently ill...she had pneumonia 5 times during the last year.
She's very fat (39kg), she eats a lot, and prefer salted foods.
Here in Italy, omeophatic doctors told me that they can't do anything for her...and I'm so sad about it.
He has often headhache, high blood pression (arrive at 130/100), and bellyache.
I found you over internet, and I'd like to know if you can do something for her.
I hope you'll answer me soon.
Thanks a lot!!!
All the best

Chiara Milani
 
  dolceki on 2010-11-18
This is just a forum. Assume posts are not from medical professionals.

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