FAO David Kempston

ok -here goes:
1. What exactly happens?
For example, an evening meal with fruit or vegetables, I don’t feel full, or energised. A few hours later I develop a thirst, and sometimes hiccup. I start to feel tired maybe 4-5 hours later, then exhausted. Sometimes my vision blurs. My chest feels tight and I crave drinks – water, or diluted lemonade. After sleeping I wake exhausted feeling sick, thirsty and shaky – if I eat something – rice I’m ok, and drink plenty. I then may have diarrhoea/ constipation depending on how dehydrated I am. I use Andrews liver salts to try and combat the dehydration.
There is a time lapse with the food I eat. It can be up to 24 hours later. I find it hard to monitor as there is so much variation to food and to what demands I may have that day, but if i continually eat fruit and vegetable in meals for 3 days or more I become moody, constantly dehydrated, with a twisted feeling in my stomach, hungry all the time, headachy and exhausted. I will eat and eat and not feel full, drink and drink and constantly be distracted. This gets me down. Sometimes the headaches will turn into migraine style pains which will normally cause me to vomit.
The dehydration can be enough to cause a ‘pause’ in the flow of my periods - up to a day. It also makes it painful/ bloody to pass stools, by anal swelling. Its uncomfortable having the urgency to empty to gut but unable to from the swelling.
My urine is pale most of the time, but smell a bit like when asparagus is eaten, but I haven’t touched it in years. I have personal irritation, with a discharge. The irritation seems to increase more when I eat the problem foods, about 5-6 hours later. I’ve tried thrush treatments, but they don’t seem to be effective, I’m not sure that it is.
I fever. I find I’m sensitive to heat.
A lump in my throat swells, makes me cough sometimes

2. Describe all sensations and pains. Each pain or sensation should be described in such a way that allows us to imagine having the same pain.
If I keep the thirst in check, the headaches are slight, if not its like a hot poker normally going though the right eye, across my face. I shut my eyes and there is a small electrical storm to watch.
My blurred vision is slow to adjust to varying distances blurring when fixed on a distance, continuous movement helps with clarity. It feels closed in and as if someone has dimmed the lights. They are often dry – like being in an air con room without blinking for long time.
There is pain in my lower gut from wind, I can also feel the movement of wheat foods move through my gut as a painful prickly sensation- I avoid them. The gut is active and noisy, when I drink fluid, I can feel movement and it sounds like a distant train going by. Often if I’m active, it feels like squirming snakes and gives me stitch.
My veins constrict and ache in my upper arms. My arms tingle like pins and needs very easily, from being outstretched or under slight pressure.
My sides ache, feel like they are pinched, or cramp. My feet cramp a lot.
I have funny chilblains in cold weather which hurt to touch things and look like red spots or prick marks. They itch when my hands are warm and sweaty. I find it painful to hold a mug of tea or take something from the freezer, as if it was very much hotter or colder.
My chest constricts, feels tight, as if something is pushing down on it. Also like the sensation when a ‘joint needs to be clicked’
The lump in my throat doesn’t hurt, but feels a bit like something pushing against it. Sometimes it makes me cough to try and clear it- it swells along with the hydration –you could say its an early warning to what is to come.
My mouth is constantly dry, I feel my breath is not always pleasant. I have a coating on my tongue and teeth. I have a slightly metallic aftertaste. The enamel has been abraded . Too much sweet foods hurt my teeth – like biting metal.
My joins hurt, click loudly and are painful momentarily. I currently have ankles that will hurt on and off like a sprain.
My skin is dry and itchy. My face itches when I sweat - small raised itchy red spots that are painful to touch, like pin pricks. They come and go quickly, on my face.
The exhaustion; I am tired, but cannot sleep. My limbs are heavy as if I have run a distance, stopped and seized up. I find this happened the morning after the meal the night before.
Fever – rapid increase in body temperature whilst asleep, and profuse sweating which I wake to.
Heart palpitations – rapid thump in my chest which causes me to need to inhale deeply; like getting your breath back from a quick dash across a road when you don’t breathe.

3. What causes the problem to get worse after it has started occurring?
Continuously eating fruit and veg, drinking fruit juices, not drinking enough fluids. Being very active, not having any reserve energy.
Dairy food makes night sweats worse, increases heart rate. Wheat and cereals hurts my gut, oats give me hiccups and fills me up. I can eat a flapjack in the morning and not want to eat until I feel terrible the next morning, I find it difficult to take on liquid with oats.
4. What creates some relief for the problem?
Drinking fluids – salts. Going to the toilet. Resting, eating sugars- chocolate.
Avoiding alcohol, caffeine, fruit, wheat oats and veg in meals.

5. What triggers the problem into occurring?
Eating, always, drinking fruit juice.

6. What time of the day or night does the problem occur?
Anytime, after a lag phase after eating.

7. When did the problem start? What was happening in your life at that time? Did some specific event or treatment take place just before the problem started?

2007 - I was training for a half marathon, found that I became dizzy and exhausted and slightly drunk after drinking sports drinks. I was very thirsty a lot of the time. Drank about 6 litres a day. It hurt my sides and gave me headaches if I didn’t drink every half hour. I was vegetarian and discovered eggs gave me diarrhoea. I ate a lot of rice, fruits cheese, yoghurt and seeds. Pasta was like eating air –it never filled me up. I played 5-a side 2x week, ran 5 miles 2x week cycled frequently, swam once a week and had a desk job. I previously had run a half marathon- which was ‘a bad run’ after a previous year of a good run.
I was trying to change jobs as I wasn’t fitting in and being bullied by a housemate. I had mood swings and my relationships weren’t very good. The triathlon wasn’t completed very well. I successfully changed jobs, moved counties (Oxford). I moved originally (Nottingham) to study further education and it wasn’t the easiest year.
Things got worse: I was bullied because I was tired and couldn’t do my job properly. I contacted a nutritionist by recommendation and tried to do less sport. I ate more to try to help.
The nutritionist helped with my kidney and liver function - it was struggling, she helped me understand I was lacking protein in my diet and convinced me to eat meat. There was an issue with yeast as I had a very sugary diet, so I agreed to starve it out. Slowly my volume of thirst decreased, along with painful kidneys and gut movement, improved concentration and less headaches.
I was made redundant whilst this was going on, (2009) which made things harder, also being followed about by an admirer which I found stressful and depressing. My landlady was giving me notice as well. I got to the point of reintroducing foods, and found there was a sticking point. I couldn’t find a reason – I was sensitive to peppers, tomatoes, potatoes, but then the list increased to beans, lentils, pears, coconut. Mayonnaise was like some kind of stimulant with a sickly comedown. Lamb, red meat, pumpkinseeds, avocados, blueberries, peas, sweet corn... wheat free foods, nothing seemed to be ok.
I moved cities (Bristol) and changed jobs, which I then lost – redundant for a third time. Not so worried about it anymore though. I currently have a job, but I don’t enjoy it much, but its paying the bills. I had rubbish time, quite lonely in a big new city and feel isolated, don’t have much transport to get around, to go exploring. I don’t have a best friend to go travelling about with, no soul mate, so I get quite down, especially I have a list of things I want to do. I tried to voluntary work to make friends, but its hard to keep up with people who have lots going on in their lives. I tried internet dating- found it too much of a meat market. I’m trying to find a club to join – not too sure what though.
I’m reasonably fit from cycling to work 5 days a week (10miles a day) – I find this quite a demand. I am vulnerable to colds though, especially in a stagnant office environment. I’m skinny but not gaunt (phew). I swim occasionally too. I want to do yoga as my joints ache from being chained to a desk as its call centre work.
I don’t seem to have many problems, except loneliness and not liking the work I do. I am looking into working for myself. My main social problem is I’m quiet and quietly spoken which causes people to be disinterested very quickly. I’m not particularly shy, quite friendly. I tend to find needy friends, which have tendency to use me, then walk over me before cutting me off. I seem to meet the same personality type.
-As well as this, please describe any traumatic incidents that have taken place in your life. Discuss anything that has had a lasting impact on you mentally, emotionally or physically.
My earliest memory was falling out of an inflatable boat at the beach and not being able to swim – the trauma and fear only happened when my mum was upset on finding me. I remember it being quite a melancholy moment, then something terrible. I was about 2yrs old.
I was in a car crash when I was 10 –no seat belt, and it was a slow collision. I don’t remember it being that bad, just a numbness of hitting the front passenger seat- I was very lucky.
At about his I time I watched the final disintegration of my grandmother in a home from dementia. She died around this time.
When I was 14 I fell out of an inflatable boat at a gravel pit with some friends and stayed under for longer than I was happy with. I had my eyes open, I had been kicked in the head. I was a strong swimmer, but they kept moving the upturned boat every time I tried to swim up – I panicked just before I broke the surface and lunged in desperation. Part of me thought I had a flashback to when I was 2, I not so sure today.
I never forget the intense loneliness of leaving home at 18.
I cant understand or get over bullying from people. I don’t understand and don’t see it at first. I have a seesaw response to trusting people. I have been bullied by a variety of work colleagues over the years due to their distain of my personality type.

-Discuss the way that you manage or deal with your problems, or any problems that occur in your life.
Any issues or problems tend to be a rapid response of anger, denial, justification. I have realised this is the first response and to do nothing and to gain the facts and give it time. I then to try and be more rational. I prefer confrontation, but it doesn’t seem to win any favours. I like honesty, but no-ones shares this opinion. It depends what the issue is. I will take time to take stock of a situation and if in doubt, not respond. I don’t share many of my problems, and I tend to ‘deal with it’ – which means carry or bottle it.

-Discuss any patterns you have noticed in your behaviour especially concerning your disease.
It doesn’t relate to stressful situations, like IBS would. I find I have mild apprehensions to eating out and food choice; I look for damage limitation. When I have been confident all is ok, I discover it isn’t, simply from the time delay. It seems unrelenting and there is no exceptions. I’m ranging from depressed, despairing to wishing to ‘stop’.

-Discuss any part of your life where you feel stuck or unable to change and grow, especially where this occurred around the beginning of your disease, or as the disease evolved.
I felt I have always had to be a bit careful about what I ate, from being a vegetarian to avoiding problem foods. Part of me wishes I hadn’t been vegetarian –simply for the good it didn’t do.
I currently feel stuck. I am at an age where it is unusual to be single, my friends have married and had children, I have been single for a fair while, partly because I felt so ill. Now that I have taken the time to get better, I am out of the loop to find company. I feel I cant grow as I’m in a new city, have to make new friends and join new social circles. Not smoking, being religious, drinking or eating normally cuts me out a lot of social interaction on a general level. I have interests but haven’t found a way to use them yet.

-Describe your childhood and the kind of environment you grew up in, with reference to your relationships with your family, your school experiences, and any serious childhood diseases.

I had a serious childhood, being the youngest, I wasn’t played with much. I have ‘older’ parents.My brother was suffering early stages of diabetes when I was born. I remember waiting rooms and hospital wards. I was bullied, or used as a vice to bullying of my other brother. I spent a lot of time on my own, or in the company of older people, I loved being outside. I am a fidget, but not hyperactive.
My father was very sick and had heart attacks when I was 14-15. He was angry all the time and suffered from chronic asthma. He had major heart surgery soon after the heart attacks. He was sexist and nasty to my mother and they would row a lot. I was distant to my brothers, being the youngest and not a boy.
School was interesting I liked learning, but I didn’t get on with others very well. I had one or two friends, but never a best friend. I had to undo the nastiness I learnt from my dad. It was a difficult learning curve of how to treat people from what I learnt to what is acceptable. Mum never seemed to stop long, always busy.
I didn’t live in a community until I left home at 18. I lived in an old farm workers house just up the road from a village (lots of fields). My circle of people I knew was small as I never met my grandparents and we lived away from close relatives. We had a few neighbours.
I wasn’t particularly ill as a child. I had chicken pox, which I don’t remember and whooping cough which I do – aged 8. Mostly colds and sniffles apart from that. I did have a wave of nosebleeds and started to get hayfever at the age of about 12.

If your earlier discussions have not mentioned these already, please describe:

1. The specific foods that you crave (not just like) or hate
Crave: Avocado, tomatoes, pink grapefruit, purple sprouting, chickpeas
Hate: prawns, sprouts, waterchestnuts, rocket.

2. The specific drinks that you crave or hate
Hate: milk, whisky
Crave: fruit juices, pineapple and coconut in particular.

3. What your sleep is like
Instant, not heavy. I tend to sleep but not really feel refreshed. I cant sleep in. I tend to sleep for about 7-8 hours, sometimes waking.

4. How the weather and the temperature affects you
I enjoy a good thunderstorm, love walking in warm rain. I enjoy most of the weather apart from constant drizzle. Daylight through a window is never as uplifting as being outside. Too much sun, don’t enjoy. I like shade and the suns warmth, but not high noon in early August in the UK. I can tolerate a sauna, but don’t like heat and stuffyness makes me feel lethargic.

5. What kinds of things in the environment you are particularly sensitive to
Sounds, smells, light. crowded places

6. What your general level of energy is like
Fluctuating, mostly lethargic, occasionally energetic.

7. What your level of sexual energy or desire is like
Rare, occasional.
8. Describe your menstrual cycle
Irratic, normally early, 22-26 days. Goes in a rough 6 month pattern from light, to very heavy and painful, back to light again.

9. Also give these details

a) Body type and build - small, petite, miniature – in proportion. slim.
b) Skin colour and texture - white, light, freckly, celtic
c) Areas of the body tends to perspire on – most. Always armpits and hands
d) Odour of sweat –metallic, salty
Body- uncertain, salty
Stool- salty, similar to flatus
Flatus – like burnt toast
urine – similar to the effect of eating asparagus- strong wheatgrass type of smell.
e) Colour of stool – pale wood. Urine- light to orangey yellow, depending on time of day and state of hydration. sweat- not obvious in colour

10. Give any reactions to vaccines or medical drugs.
None known.

I hope that paints a picture.
I look forward to your response.
kind regards.
Tuppence

hi, any thoughts, distillations?
I've tried causticum and calc phos.
in its simplest form, I get diarrhoea from any fruit or vegetables.

sorry I missed the notification email. Describe more on:

Twisted - constricted.

Hot poker - dull pain, continuous with a warm sensation

Electrical storm – flashing lights

Closed in – very much like dimming of lights, reduction of periphery vision

Squirming snakes – movement of a very active gut with constrictions

Something pushing down – not sure I wrote about this, see heavy.

Heavy – invisible force making movement hard, ever tried running in a swimming pool?

As if I have run a distance exhausted even before I have begun.

Also describe more on the experience of the following :

Being bullied – low self worth, anger at their assumptions, judgements

Being followed by an admirer – constantly being watched

Losing jobs – devalued, unrecognised.

Feeling isolated – as if there is an invisible barrier other people have the knowhow to get through.

The meat market – cold, very much a shopping spree for very shallow values. I’m lucky enough to be found fairly attractive, with very little effort. I would like a bit of conversation with my suitor.

Being used and walked over – people take what they want from me but don’t give back in the same way, sometimes malicious from their own insecurities. Sometimes can be manipulated by misuse of trust.

Disintegration of your grandmother – a person changing from how I knew them to a person I didn’t know, couldn’t understand the dementia.

Seesaw response to trusting people – fell comfortable with them, they behave unexpectedly , I distrust and put distance on them until they surprise me with some kind of personal recognition.

Unrelenting – doesn’t stop, no way of cheating the response, wishing for a ‘day off’

Cut out of social circles- eating and drinking is the centre point of life, and especially social events. Avoiding these situations avoids a lot of social contact, although I obviously still eat, away from questions and opinions.

Without doubt I am a fairly sensitive person.
Thanks

ok, sorry thanks for explaining. I hope this is better:

So out of what you did give me, describe more on

Invisible force – feeling trapped, defenceless out of my control, draining fatigue but unsure of where it is coming from ,no freedom.

Invisible barrier – a feeling of being left out, restricted, trapped.

Revisit these words to give me description of what the sensation is like.

Squirming snakes – very much an alien feeling of something in my body out of control. An action/movement I am unable to control , knowing it is a response to a mechanism. Pain and anxiety as I’ll need the toilet or to drink or both. Frustration of not being able to stray far from the toilet. If doing sport, will have to stop. A forecast for discomfort. Unhappiness.

Electrical storm – flashing lights when I close my eyes, with pulses of pain as part of the painful headache, an experience signal to being unwell, unhappy and in pain.

Twisted - feeling of tension, pressure, discomfort indicator of not feeling right, knowing that the food I have eaten is not ’good’ despite the initial pleasure of consuming it. Feeling of fatigue of’ here we go again’.

Revisit these experiences so I can understand the impact on you.

Being bullied – feeling of helplessness to preventing people from behaving a certain way. Feel defensive to being the way I am. Angry at the person for thinking they can be a certain way and it being acceptable. Desire to reprimand and to defend and return the unkindness. At the time of being bullied – confusion, distress, injustice.

Losing jobs being undervalued, feeling unwanted, unrecognised for my skills. Unappreciated and unsupported. I tend to be very involved and entrenched in what i do, I care about it, unable to let go easily.

Being manipulated and used - misunderstand a persons intentions, the way they are. Feel stupid and cheated, an ego damaged. Drained of energy from effort put in assuming it would be returned.


THanks

ok. I guess its a case of cracking open the door:

Describe more on Trapped- I feel quite detached, stuck in a body i cant seem to help

Describe more on Freedom – being able to let go, have no caution , or doubt, no-one spoiling the moment being happy.

Describe more on being Left out- not being fully part of something, as an outsider, lonely in my experience, no solidarity.

Describe more on being Out of Control – i have no idea on how this feels, I don’t get drunk when I drink, from when I wake until I fall asleep I am aware of what I do and have different levels of being awake. Being beyond my control would be a helplessness that these symptoms make me feel. Being out of control would relate to a type of freedom, but going against known boundaries, being in conflict, being rebellious, standing out, being different, standing by your opinions, against judgements made by others, self gratifying only, possibly hurting others depending how it is expressed.

Describe more on Constricted – suffocated, isolated, panic and unhappy discomfort. Depression and pointlessness

So the electrical storm is more like a light show, not an actual electrical storm, is that right? More like being in a night club or something? Yeas a silent nightclub with black and white lighting.

How does it come about that you are able to be bullied? What does the bully have that allows them to do that to you? What do you do when you are bullied?
My personality draws out a bully. I have a quiet persona – give the impression of being meek and mild mannered. I am un reactive and show few emotions. I am aware it annoys people, which pushes them to attempt a harsher provocation as they had no satisfaction of a reaction. I will get blamed for peoples mistakes because they ‘didn’t hear me’ I am softly spoken but communication has never been an issue unless some is looking for a scape goat. I have never needed to shout or raise my voice to get a message across, I feel that if they didn’t hear me that they were listening anyway. People who give me their attention or need my attention have never had a problem.
I don’t see the point in talking about myself, I have spoken to people who talk endlessly about themselves and are quite uninteresting. I am a watcher and a listener –this also makes people distrust me. I know this because I have pulled people up on it. I have been accused of being secretive and sly. Hence the bullying attacks. I am a target in the high street for a group of young people looking for a laugh. I am petite, but not outlandish in appearance – don’t really stand out except for my height. I am a target for homeless people as I ‘seem approachable’.
I taught myself not to react as I am sensitive and emotional and put up a guard to the bullying nature form early in life by older siblings and family members.
My bully defence can vary –sometimes I confront, sometimes I wait, depending on who and what it is. I don’t find a confrontation much of a problem.
How does it come about that you are manipulated and used? What allows them to do that to you? What do you do when you are manipulated or used? Getting to know some one, you exchange interests, ideas and feelings. Manipulators cash in on this information to persuade compliance. my last partner would use this tack to get me to do what he wanted. A variety of people who have had crushes or were intimidated by me also did this.

I get angry and find it frustrating that they think they can do this, I don’t really know how to respond to this, it is confusing as I am repressing my feelings.
what is an example of an Invisible Force? What are its qualities?
The force is a bit like the wind – you cant see it, but you can feel it when it is strong, but it is never something you can touch. I guess the force is a feeling more than something you can hold or point to.

What is an example of an invisible barrier? What are the qualities of such a barrier?
Something that could be overcome, if I could see it, like playing a game in the pub, but walking in part way though and trying to guess the rules. Or automatic doors not responding to my presence when I walk up to the sensor and not letting me in.
( Am shorter than average, which this actually does happen)
thanks
Tess

ok, good I'm glad.

Give me images for Trapped - not yourself or your own life, other things apart from you.
People committing themselves to things they cannot see they are able to undo –unhappy marriage.
Car breaking down in the middle of nowhere in the dark with no phone reception and no food or drink, knowing predators are active at that time.
Being born into a family of drug use and abuse.
Being an endangered creature, with lost habitat, unable to evolve quickly to new surrounds.

Give me images for Freedom - same as above.
Flying like a bird, swimming deep like a fish, running continuously for days. Trotting the globe, living eating, sleeping at the opportunity. Living like the animal of choosing, seeing, feeling and experiencing their life. Moving like an electron through a leaf in a plant when the sun wakes it in the morning. Growing like a crystal in the rock, moving like a cloud in the sky. Burning like a shooting star.

If you were to imagine the most Free situation possible, what would it be? It does not have to be realistic.
To move like the wind and flow like water

If you were to imagine the most Trapped situation possible, what would it be? Scuba diving in a dark cavern where the oxygen has run out.

If you were to imagine a situation that would be the most 'Stuck', what would it be.
Being surrounded by a rising tide, on a sandbank with quicksand, standing on one foot to the only solid thing there was – a treestump.

was that too off the wall, or were you quite busy?
you do seem to have a lot of cases.
any thoughts?

tess

thankyou for your remedy suggestion. I 'm siorry to hear you are unwell, but thankyou for your time.

I have tried 200c and 1M

sadly I didnt find any response, I'm disappointed as it seem to fit my personality.

am I at the end of the road on this?

Thanks

Tess

Ok. Without guidance, I made an assumption from advice from previous recommended remedies. Sorry in the delay in getting back to you, I’m recently very tired.
How do I feel currently, I feel a lot worse. I am more tired, more dehydrated, more distracted. . I have short energy bursts and then waves of exhaustion. I am going through a wave ‘unable to eat’ mainly from social events and the consequences. I feel more easily angered, my patience is short and I’m listless. I’m moody and feel low. This months cycle was terrible and the symptoms were worse. The lump in my throat is more noticeable, especially when I cycle to work, and have headachy feelings of thirst constantly. I’ve been trying to hydrate using sport electrolyte drinks but it didn’t stave off a nasty headache and fever with vomiting. This lasted about 2 days. My vision blurred and my co-ordination is off. I feel more emotional, or the are closer to the surface than usual.
I’m struggling to stay awake past 10 in the evening and cant easily focus on much. I just about read a few pages in a book. I don’t think I sleep any more, just have the need to sleep suddenly. Going to the toilet is uncomfortable and painful. I’m constipated and bleed. I’m constantly hungry and crave all foods. Cold metal is painful to touch and I get ‘dead toes’ where the circulation in my feet doesn’t happen, I feel an increased sensation of being cold, more dislikeble than an accepted temperature change.
My muscles ache when I push them to run or cycle. My joints seem to be the same, click and hurt occasionally. My skin is the same, dry and itchy.
When I had the headache, I went through feelings of despair and a kind of helplessness of not knowing what to do to try and fix it. I had mood swings and cried a lot even though that makes the headache a lot worse, normally I try not to and succeed. I felt I had to wait, and was quite restless.

In short:
Thirst: much worse. 100%
tired: exhausted.
vision blurs: more frequent
chest feels tight: not so noticeable.
After sleeping I wake exhausted feeling sick, thirsty and shaky: more often
constipation: daily
moody: alternate days.
a ‘pause’ in the flow of my periods - up to a day. Same, but very heavy before.
Urine is pale, smells: much darker, stronger smell.
I have personal irritation: same
I feve: not so often, sensitive to the cold..
A lump in my throat swells, makes me cough sometimes: almost constantly.

it is worse since the remedy, I dont think it was ongoing, in the general cycle of things, I think I'm stuck in a repetitive loop.

I've not taken any remedy since - about 5-6 weeks ago.

ok, thanks.