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I Suffering From Narcolepsy. 1Narcolepsy with cataplexy and sleep paralysis 5Narcolepsy and daytime sleepiness 5narcolepsy 3


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I was diagnosed years ago with the markers for narcolepsy...in the last few years I've notice that the "symptoms" have gotten worse. I am now falling asleep while driving, which is the last straw in my opinion.

Before I go back to the doctor and they put me back on Ritalin, is there anything else I can do? I started taking Sublingual Vitamin B12 a month or so ago to no avail.

Any input would be much appreciated. Thanks.

  Speedylittleme on 2005-10-31
This is just a forum. Assume posts are not from medical professionals.
The problems of narcolepsy are --

main characteristic of narcolepsy is overwhelming excessive daytime sleepiness (EDS), even after adequate nighttime sleep. A person with narcolepsy is likely to become drowsy or to fall asleep, often at inappropriate times and places. Daytime sleep attacks may occur with or without warning and may be irresistible. These attacks can occur repeatedly in a single day. Drowsiness may persist for prolonged periods of time. In addition, nighttime sleep may be fragmented with frequent wakenings.

Three other classic symptoms of narcolepsy, which may not occur in all patients, are:

Cataplexy: sudden episodes of loss of muscle function, ranging from slight weakness (such as limpness at the neck or knees, sagging facial muscles, or inability to speak clearly) to complete body collapse. Attacks may be triggered by sudden emotional reactions such as laughter, anger, surprise, or fear, and may last from a few seconds to several minutes. The person remains conscious throughout the episode.
A narcoleptic teenager after an attack of CataplexySleep paralysis: temporary inability to talk or move when falling asleep or waking up. It may last a few seconds to minutes.
Hypnagogic hallucinations: vivid, often frightening, dream-like experiences that occur while dozing, falling asleep and/or while awakening.
Daytime sleepiness, cataplexy, sleep paralysis, and hypnagogic hallucinations also occur in people who do not have narcolepsy, more frequently in people who are suffering from extreme lack of sleep.

In most cases, the first symptom of narcolepsy to appear is excessive and overwhelming daytime sleepiness. The other symptoms may begin alone or in combination months or years after the onset of the daytime sleep attacks. There are wide variations in the development, severity, and order of appearance of cataplexy, sleep paralysis, and hypnagogic hallucinations in individuals. Only about 20 to 25 percent of people with narcolepsy experience all four symptoms. The excessive daytime sleepiness generally persists throughout life, but sleep paralysis and hypnagogic hallucinations may not.

The symptoms of narcolepsy, especially the excessive daytime sleepiness and cataplexy, often become severe enough to cause serious disruptions in a person's social, personal, and professional lives and severely limit activities.

As far as I can see the remedy Physostigma is the closest to matching the condition .

Alloxan from O. Julians work mentions it but the conditions of that are not a matc h for your condition.
walkin last decade
Brittany, Please describe more about your symptoms. The diagnosis of narcolepsy isn't helpful homeopathically. Describe the overpowering sleepiness as it affects you...besides when driving.

I am very interested in this subject as my husband's family has some sort of sleep disorder with overpowering daytime sleepiness but it doesn't fit the medical description of narcolepsy.

Have you had an overnight sleep study?

ruth45 last decade
You can try NUX MOSCHATA 30 c ,5 drops thrice daily for a week and post the result,it is not difficult to cure but needs time since removal of causation is essential.
sajjadakram635 last decade

A few years ago I had the sleep study. I don't rememember everything the doctor said except that I had no sleep apnea and I went into REM sleep extremely fast. After the full night sleep they had me take naps every 2 hours I think and I was able to go into REM sleep each time. He said that isn't really normal. At the time he didn't diagnose me with it, he just said I had the markers for it and to be careful and be on the lookout for it.

Well since then I have to say the daytime sleepiness has gotten much worse. It used to be that I couldnt take naps during the day because I wouldnt be able to sleep at night. That is not the case anymore. Now I can get home from work, take a couple hour nap and then go back to sleep 2 hours later and sleep fine. I don't wake up during the night. I sleep all night long. I have very vivid dreams (although I think that is a side effect of a RX I am on)

They had put me on Ritalin a few years ago and I would really just rather not go back on that if there was something else that I could do. I figured a homeopathic remedy for this problem might not be likely, but was willing to ask anyway.
Speedylittleme last decade
Walkin, Have you had results with the Physostigma? I had heard of Nux Mosh. and Opium for narcolepsy but not Physostigma.

I looked it up in my book and it does seem to fit the sleepiness but not other things like chronic constipation. Do you think it would still work on alleviating the overpowering daytime sleepiness?

How can I go about getting more information on this? I would be most grateful for your help as my 16 year old daughter is failing two classes because she can't stay awake. And as I said earlier, it is some sort of genetic sleeping disorder because it affects my husband and his father and his father's siblings as well.
Thank you, Ruth
ruth45 last decade
Dear Speedylittleme,
How interesting that you did go into the REM sleep very rapidly. Yes, that is an indication of narcolepsy from what I have read.

My husband and daughter both have overpowering sleepines but their sleep studies did not show them going quickly into REM sleep. That is why I can't say they are true narcoleptics.

However, overpowering sleepiness is quite a problem no matter what you call it. There are remedies though. Nux Moschata is the main remedy but it has to fit your symptoms or it won't work.

Would you mind telling me what your experience with Ritalin was? It would be a last resort but I may have to put my daughter on some drug to keep her awake or she will flunk out of school.

ruth45 last decade
From what I understood Ritalin has different effects on adolescents and adults. My results were ok...I didn't notice a huge change and I really didn't want to be on it so I took myself off it. Maybe I shouldn't have.

I was 23 at the time I was put on it. How old is your daughter?

Speedylittleme last decade
My daughter is 16 1/2 but she is 5'7" and overweight as well so as far that goes, I would think she's closer to adult.

My husband has taken Ritalin before but he also said he didn't notice much improvement. I know my father-in-law has a prescription for it but only takes it when he has to drive long distances.

Neither of them has had too much to say about Ritalin when I've asked, but like I said, I almost feel like we have to try something or my daughter will flunk out.

My husband copes with his sleepiness without drugs but he has the kind of job where he's up and moving around all the time. That's what seems to be the problem -- sitting. Of course there's not much you can do about that in school.

Thanks for sharing your story.

I do believe in homeopathy and I believe there is a remedy but so far we haven't found the right one.

I would encourage you to pursue it though. I'm not giving up.

ruth45 last decade
I understand you wanting to try anything at this point. What does the doctor say about putting your daughter on Ritalin? I'm just nervous that it would have the opposite effect on her.

Speedylittleme last decade
Oh, because Ritalin is given to children who are hyperactive and it slows them down?

You may have a point there but I really don't think it would affect her that way because obviously her symptoms are the opposite of hyperactivity.
ruth45 last decade
My honey has both narcolepsy and ADHD, for which he has been taking adderol. Recently he found he can often avoid taking any by the right combination of coffee. It took some experimenting to find what worked for him.

I'm not a homeopath, but have been trying to read a lot. I think he may be Phosphorus constitutionally.
Daisy43 last decade
Daisy, What do you mean by the right combination of coffee? Drinking coffee keeps him awake? What kind of sleepiness does he have?

My husband could drink a whole pot of coffee and fall right back asleep.
ruth45 last decade
Oh, because Ritalin is given to children who are hyperactive and it slows them down?

Yes, that is kind of what I was thinking...although what do I know? I'm no doctor. :):):)
Speedylittleme last decade
Ruth, sorry to not reply sooner.

Honey says to avoid arabica bean content, because it tends to come at the expense of the amount of caffeine.

I found this on google which might explain it: "A coffee can in the supermarket often contains a blend of Arabica and robusta beans while most coffee houses sell only arabica beans. Arabica beans are usually flavour rich, while robusta beans have more caffeine, less flavour and are cheaper to produce."

So, I guess he is trying to increase his caffeine load. There should be other ways to do it besides coffee, but it does seem to have helped him immensely.
Daisy43 last decade
Generally AVOID pharmaceutical drugs - they suppress and depress.
walkin last decade
Walkin, Generally avoid pharmaceutical drugs??????????? GENERALLY AVOID PHARMACEUTICAL DRUGS???????????? My 16 year old daughter has had virtually no pharmaceutical drugs in her entire lifetime and no immunizations and has had nothing but homeopathy and I've taken her to four professional homeopaths in her lifetime and am currently consulting with one over the internet and still no one has come up with a remedy for her abnormal daytime sleepiness.

Thanks for the advice. It was really helpful.

ruth45 last decade
I am new to homeopathy. My wife has narcolepsy, and has for about five years. It is becoming apparent that she is getting worse, and the prescriptions are getting stronger, so I am eagerly seeking alternative treatments.

Initally, it took about two years to get the correct diagnosis. After two sleep studies with different physicians, both have said she has narcolepsy.

She suffers extreme daytime sleepiness, even though she can sleep as much as 18 hours a night (when not medicated), as well as cataplexy, hallucinations, sleep walking, and vivid/disturbing dreams.

Her cataplexy is rare, and in random (not associated with emotional change).

Since Ritalin and Provigil have not helped alertness, and sleep aids have not helped quality of sleep, she now takes Amphetamines in daytime (just changed presciprtion from Aderall to DextroAmphetamine), and GHB (Sodium Oxybate, trade name Xyrem) for nighttime.

She seems better with medication, but still is not normal. And neither of us likes the idea of taking amphetamines and date-rape drugs indefinitely.

She also has two seemingly unrelated health problems: cold hands and feet, and dietary intolerance of dairy and wheat.

I mention the cold hands and feet because they are always cold, profoundly cold, in any weather, yet she does not feel cold.

And the food sensitivity is unusual. I say sensitivity because she has tested negative for food allergies. If she eats dairy or wheat, about 12 hours later she gets extreme gastric distress, gas, bloating, diarreah, occasionally vomiting. She then gets whole body soreness, and retains a great deal of water in all her tissues for about 48 hours.

The diet can be controlled; the sleep disorder, however, is often debilitating, so it is our primary area of concern.

Any thoughts on where I can find additional material on homeopathy and narcolepsy?
ericjourney last decade

Find a homeopath who has a knowledge of Miasmatics
walkin last decade
I was diagnosed with narcolepsy about 12 years ago. My doctor prescribed Ritalin for me. I took it for years, but never noticed any consistent results. I took myself off of it about 5 years ago and managed to gain 60 pounds over the first 4 years that I was off Ritalin, without any change in my diet or activity level. I have since been told that Ritalin is a drug that settles in your fat cells, and causes them to expand when you stop taking it. Has anyone else heard this? Is there a way to get the Ritalin out of my (many)fat cells? Is there an effective way to treat narcolpesy, I will not go back on Ritalin or any other drug. Any input will be appreciated.
small-fry last decade

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