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Pseudotumor Cerebri issues

Seeking remedy for pseudotumor cerebri/fluid imbalance/headaches. I have been suffering from these conditions since late 2012 and had symptoms every day until some time in 2014. After that time and since then have only had 4-5 'flare ups' and the worst being last Thursday (4-12-2018) where I ended up going to the hospital as symptoms were that bad.

Earlier that week I noticed a type of 'vibration' in my (left?) ear that lasted a few seconds. The days following, starting on Monday, I had a constant, 'strong pressure' headache that was not relieved by much of anything. Driving to work on Thursday (4-12) I noticed a blind spot in my vision (left eye) when cars were entering my lane in front of me. Within 15 min after realizing vision impairment, I arrived at work and felt very physically weak and exhausted/tired. I rested in car for a few minutes before walking in to work. I could not log in to my computer at work as I could not focus, my speech was very slow and weak. My thoughts were not coming together and I felt very disoriented. After urinating felt very dizzy and nauseous. My right hand (from wrist down) went. Feeling in my hand returned within 5 minutes. I felt as if I was going to pass out. Neck and shoulders were hurting.

Was taken to ER and had CT scan as well as bloodwork, all returned with normal results. Toes went numb after laying down, lasted about 15 min. Was given Lasix, morphine, benadryl, Reglan and IV steroid. Slept on and off rest of day, head still hurt.
Friday-did not take any medications. Symptoms were the same but much less severe.
Saturday-symptoms worse than Friday but not as bad as Thursday.

I am familiar with cell salts/remedies and have never liked taking conventional medicine, and would like to have my body and mind back in balance. All help is greatly appreciated.

Here is a questionnaire I have found on the forums before.

1. Describe your main suffering?

Psuedotumor cerebri

2. What other physical sufferings do you have in your body?

Headaches (generally only during cerebri flare up), stomach ulcer, heartburn, tension (neck and shoulders), fatigue, loss of appetite, easily bruised, get cold easy (stay cold), fluid retention, dizziness, nausea, vision impairment (double vision, blind spots in vision), increased salivation, vertigo, breakouts on chest and chin (sporadic), flushed face (during stressful times, sexual excitement, anger, crying)

3. What mental sufferings / feelings do you have associated with your physical sufferings?

Brain fog, exhaustion, lethargic, confusion, lack of focus, forgetfulness (these are during cerebri flare up)

4. What exactly do you feel when you are at your worst?

Head/neck/shoulder pain and tension, feel wiped out to the point cannot function, eyes cannot focus, sometimes left eye can hurt (dull ache), nausea, dizzy, pain from left temple to back of left ear, vertigo, extremely tired to point of wanting to just sleep

5. When did it all start? Can you connect it to any past event or disease?

Started within 3 months of removal of Mirena IUD (October 2012)

6. Which time of the day you are worst?

Mornings and/or Evenings

7. What are the things which aggravate your suffering and which are those which ameliorate the same?

Aggravations: High sodium and fatty foods, alcohol, laying down too much, leaning forward (during flare ups), straining (physical), excess caffeine
Ameliorations: massage of head/neck, eating healthy foods, exercise (over time, will aggravate at first), losing weight

8. Do you think your sufferings have relation to any external stimuli (like, change of place) or any internal.

Sharp scents (can trigger headaches)

9. When do you feel better, during hot weather or cold weather, humid or dry weather?

Cold weather


10. Describe your general mental set up? Are you Moody, Arrogant, Mild, Agreeable Changeable, Nervous, Suspicious, easily offended, Quiet, Arguing, Irritating, Lazy etc.

Outgoing, bossy, optimistic overall, blunt, comical, friendly, respectful, ambitious, busy, focused, confident overall, social, can be easily irritated,

- How do you feel before or during a thunderstorm?

Relaxed

- Do you like being consoled during your tough times?

Yes, but don't like people feeling sorry

- Are you sensitive to external stimuli like smell, noise, light etc?

Smells (florals, perfumes/candles, cottons/linens, artificial cedar, birchwood, cleaners)

- Do you have any typical habit or gesture like nail biting, causeless

'restles leg', rubbing thighs with both hands if anxious or nervous, rubbing eyebrows, picking (at hands, face, chest, arms), rubbing feet together

- How do you feel about your friends, family, your children and especially your husband / wife?

Overall very positive and supportive, caring

11. What are your fears and do you dream of any situation repeatedly?

Failure, losing job, losing people I care about, harm to my child, being alone (around men).
Repetitive dreams: having children, torture (sexual assault by someone)

12. What do you crave for in food items and what are your aversions?

Craves: Carbs, sweets, cheese.
Aversions: gluten, sausages, processed meats, red meats, celery,

13. How is your thirst: Less, Normal or Excessive?

Excessive (mostly for water)

14. How if your hunger: Less, Normal or Excessive?

Less (normally eating 2 meals a day, sometimes 3) and light meals

15. Is there any kind of food which your body cant stand?

Anything with gluten, red meats, sugar

16. Is your sweat normal or less or more? Where does it sweat more: Head, Trunk or Limbs?

More. Mostly head but all over

17. How is your bowel movement and stool type?

Either daily or every other day. Solid//Normal.

18. How well do you sleep? Do you have a particular posture of sleeping?

Generally very well. I tend to fall asleep fast but 1-2 nights a week may have trouble sleeping. Back and sides, usually with one leg up (in all positions)

19. Do you think you are able to satisfy your sexual desires in general?

Yes, excessively.

20. How do you think you are different from others, if at all?

I feel more thoughtful, caring and sensitive. More outspoken. Also I think my metabolism is not normal for the little amount of food I consume and the level of physical activity is in excess of others.

21. What medications have been taken earlier by you to treat the diseases and do you have any particular symptom surfacing after the medication?

Diamox-dehydration, fatigue, frequent urination, one side of face excessively hot (alternates but mostly left). (not since 2013 or 2014)-was taking for year.
Lasix-same symptoms as Diamox. (one dose on 4-12-2018).
Spinal tap-felt like overall condition worsened after. (last done maybe 2013).
Effexor-for general depression/anxiety (diagnosed with mod depression and severe anxiety) (last taken first week of April 2018).
Xanax-for anxiety (only taken 3-4 times in life) (last taken in March 2018).
Celexa-for depression. (2012).

22. What major diseases run in your family?

Diabetes, C a n c e r (prostate/breast)

23. Describe, how do you look like? Describe your overall appearance

5’4â€Â, 215lb. (‘average height’) chubby (mostly torso, neck, back, upper arms), pear shaped, small limbs (forearms, hands, feet, ankles, face). Muscular legs, thick, dark circles/puffy eyes, curly/wavy hair, healthy finger/toe nails, healthy hair, rosy cheeks, good complexion,

24. - Are the periods early, regular or late in general? How long do they last?

They are either early or late. They are generally never very regular. Usually they are towards the end of the month. The last usually no more than 5 days.

- Do you suffer from any kind of physical or mental discomfort before, during or after the periods?

Fluid retention, pseudotumor cerebri flare ups.

- Is the flow scanty, normal or excessive?

Mostly very light

- Is the blood thick bright red or pale watery?

Bright red.

- Do you notice any clots in the flow?

Very very rarely.

=-=-=-=-ADDITIONAL INFO-=-=-=-=--=-=

Symptoms/flare up generally starts with ‘woosh’ sounds (tinnitus) on one or both ears that is seems to be in sync with pulse (also seems more in left ear)

I do have night terrors on occasion.

Have dropped 30lb+ and few pants/shirt sizes within the last 3 months.
 
  bsparks on 2018-04-15
This is just a forum. Assume posts are not from medical professionals.
Please take Sepia 30c, twice a day for 10 days and see how you feel after that.
[Edited by Tui on 2018-04-16 05:31:20]
 
Tui 3 years ago
Is this supposed to be taken as directed on bottle (4 pellets)?
 
superdave972 3 years ago
Just take 2 pellets as 1 dose and if you are very sensitive to a homeopathic remedy, put just 1 pellet in half a glass of water, mix it well then take 1 teaspoon ( 1 dose) from there.
 
Tui 3 years ago
Thank you!
 
bsparks 3 years ago
I have taken the Sepia for 10 days now. Here is how it has been doing.

Night 1 (Sunday) Woke up Sunday night to pee. This isn't normal.

Monday - felt bad all day but slightly better overall- current weight 212.(Down from 218 previous Sunday)

Tuesday - felt bad all day, headaches, pressure, neck and shoulder pain and fatigue

Wednesday- felt good, higher energy, no pressure or headache until 2pm. Felt better again around 6 pm. Higher appetite

Thursday- felt good, higher energy, appetite and no headache. Some pressure. Eye doctor says optic nerve is looking great. I'm prone to ear aches when it's cool and windy. I had one today on my right ear while at field day.

Friday - Felt great all day. No headaches, high energy and appetite

Saturday - Felt great about 3/4 of the day. Some neck tension and headache. Happy all week.

Sunday through Now - Felt good about 3/4 of the day. Quite a bit of neck tension headaches off and on. (Started my cycle Friday and I usually flare up right before)Still around 212. Craved sweets and carbs for the first time in a while. I was generally sad and very stressed this week but there were some external factors for that. Sex drive has still been high.
 
bsparks 3 years ago
Please stop taking Sepia 30c for now and see how you feel in a week.
 
Tui 3 years ago
Hello,

Sorry for the late response. So I stopped the Sepia as requested 3 weeks ago. The first week I felt great. I had energy and no neck tension, no headaches, no ears ringing.

The second week I had head pressure 2-3 days. Still no headache or neck pain and slight fatigue.

The third week I have had increased pressure, some tinnitus and much more fatigue. I am due to start my menstrual cycle in about a week and my psudotumor symptoms typically flare up before and during this time significantly.

Thank you.
 
bsparks 3 years ago
Please take Sepia 200c, once a day for 3 days and see how you feel after that.

1 dose is 2 pellets.
 
Tui 3 years ago
I took the sepia for 3 days as suggested. I think it helped a bit. I am still having headache, tension, fatigue, and tinnitus.
 
bsparks 3 years ago
Please describe the headache, tension, fatigue and tinnitus in detail, including exact location, sensation, what makes you feel better or worse during the headache or fatigue or tinnitus.
 
Tui 3 years ago
The headache is pressure that hits the back of my head and radiates down my neck into my shoulders. It is often pounding into my temples. The tension is at the base of my skull down to my shoulders especially on the left side. The fatigue, I feel completely exhausted to the point I lose train of thought and when I come home from work in the evening it's hard just to cook dinner and clean the house. The tinnitus is usually in my left ear or sometimes both. It is a swooshing sound that only stops when I apply pressure to my neck just under my jaw. Neck and head rubs help a little with the tension and headache. My hands also tend to feel very swollen during the flare ups.
 
bsparks 3 years ago
Please take Spigelia 30c, twice a day for 3 days.
[Edited by Tui on 2018-05-28 23:14:57]
 
Tui 3 years ago
I will order it. When it arrives I will start it. Thank you.
 
bsparks 3 years ago
How many pellets per dose will this be?
 
superdave972 3 years ago
I haven't got the spigelia in the mail yet. My flare up has continued to worsen. I'm extremely fatigued, my ears are both swooshing non stop worse on my left. My face feels hot. My head hurts ND feels full of fluid and pressure. My neck hurts. Today is the 4th day of my menstrual cycle. I feel very thirsty and my hands are swollen. My face has also been breaking out. Last night I took 3 doses of Natrum Muricum 6X 4 pellets per dose 15 min apart. Im still feeling really bad
 
bsparks 3 years ago
China officinalis 30c, three times a day for a few days.

If it doesn't work, take Sulphur 30c, twice a day for a few days and see how you feel after that.
[Edited by Tui on 2018-06-03 06:33:59]
 
Tui 3 years ago
How many pellets of Spigelia?
 
bsparks 3 years ago
1 dose is 2 pellets.
 
Tui 3 years ago
I took the spigelia for 3 days. I didn't notice any change of symptoms. Yesterday morning I woke up feeling very bad. My hands were swollen, my ears were having severe swooshing, my equilibrium felt off, my face was very hot and red, worse on the left side. I felt completely fatigued like exhausted, weak, and achy. I also weighed 6lbs more than i did on friday. I took 3 doses of chelidonium 30X 4 pellets 15 min apart for 3 doses. Later I took Nat Mur 6X 4 pellets for 2 does especially 15 min apart. Then I took bioplasma 12X 4 pellets for 3 does especially 15 min apart. I took one final dose of bioplasma 4 pellets before bed. This morning the symptoms are slightly less severe but I still have all of them. I am taking bioplasma right now 4 pellets for 3 dones again. This morning I weigh 2lbS less than yesterday
 
bsparks 3 years ago
Belladonna 200c.

Dissolve 3 pellets in 100 ml spring water and take 1 tablespoon every hour until you feel improvement.
 
Tui 3 years ago
I don't have the belladonna. It seems the first round of Sepia helped the most. Is that an option?
 
bsparks 3 years ago
Yes
 
Tui 3 years ago
Okay. How many doses , how often, and for how many days?
 
bsparks 3 years ago
If you have Sepia 200c, take twice a day until you feel improvement.
If you only have 30c, take up to 4 times a day until you feel better.
 
Tui 3 years ago
I have felt significant improvement. Should I stop taking the Sepia now?
 
bsparks 3 years ago

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