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15 week old with silent reflux

My daughter is 15 weeks and has silent reflux which I suspect she's suffered since early on, possibly from birth. We had troubles nursing, was never diagnosed with tongue tie but I suspect upper lip tie. she failed to gain birth weight at 4 weeks so I started pumping and and bottle feeding, but had low milk supply and supplemented with donor breastmilk (that was dairy, soy, gluten free) but I suspected something was irritating her tummy with the donor milk. I am also dairy, gluten, soy and nightshade free.

She was extremely overfed when we started bottle feeding as our instruction was feed until full but unknowingly she was "never full" because sucking at the bottle was soothing to her reflux.

Once the donor milk ran out I started supplementing two bottles a day ( 6 oz total) of raw goat milk formula (around 12.5 weeks).

At around 13.5 weeks I started Nat Phos 6x, first just half tablet in second half of bottle a couple bottles a day, then every other, and then every bottle totaling between 5-6 tabs in 24 hours. This was over the course of 9 days and did not see much improvement. I noticed what I thought weee side effects of Nat Phos but unsure they could be from the goat milk change up. Withdrawn and unfocused play time, more twitching and back arching, extremely drowsy but restless. Bigger gulping of what was coming up.
Positive effects were less irritable night sleeps and feedings. Less overall time to put down for naps. Less spontaneous crying in awake, nap or sleep.
I also took her to the Chiro around 12.5 weeks and I thought it flared worse, maybe emotionally unready for it- or it could have been the new addition of goat milk.
About her:
Seems worse between 4-8PM and 2-6AM especially around 3-4AM
She will not close her eyes to sleep unless they are covered or has a blanket over her eyes or on the rare occasion I stroke my hand forehead to nose for 20+ minutes.
Does make a chirp sound when sleeping. Heavy sleep is purring/gargly.
Dry stuffed nose prone to whistling.
She is unable to connect sleep cycles so sleeps mostly 30 min naps unless I babysit and get her back to sleep.
She likes to be soothed with walking, swaying, singing, firm hold, empathetic moans/hum. Cannot be still, sitting or just in rocking chair.
She also has cradle cap and suffered eczema until about 7-8 weeks. Still has cradle cap and eczema spits will pop up with too much skin to skin (heat/sweat) contact.
Reflux worse 1.5-2 hours after feeding.
Chubby thighs, slender shoulders. She likes when I massage belly, legs, feet but has aversion to touching head, neck and shoulders.
Prolonged active labor (I have prolapse) naturAl pregnancy and bith birth no IV st all, only exception after birth I had localized numbing and she was at the breast.
Born with a bruise on the top her head.
She is struggling at the bottle but hungry
She has more of pink toned skin, strawberry light brown hair, light blue eyes.
Gorgeous chubby cheeks
She does not take a paci, most of the time she makes a gag noise with is, if at night she has a bad reflux episode she will let me hold it for her while she quickly vigorously sucks then let's it out.
A little over 14 lbs now and over 23 inches.
Prone to cold clammy hands and feet.
Loves a warm bath... relaxes her but massage attends to stimulate her and make her playful unless it's just her feet
We had tried nighttime gripe water for better sleep and it helped but had rebound effects on her during the day.
Right now currently at 24 hours no remedy but thinking I need to get her bAck on Nat Phos for now, unsure this is the best remedy for her. Desperate for something to relieve her. However we are not keen on starting any PPI's or prescription for her overall long term health and wellness. Is there a better remedy? Also a possible remedy for low milk supply, alcohol free?
[Edited by PrairieND on 2017-12-07 17:16:11]
 
  PrairieND on 2017-12-07
This is just a forum. Assume posts are not from medical professionals.
After 24 hours off Nat Phos she is back to her talkative bright eyes self, but also harder to settle for naps. More spit up during feeding and more restless during feeding. Maybe a half tab for the two
Formula bottles may work?
[Edited by PrairieND on 2017-12-07 17:22:10]
 
PrairieND 2 years ago
Hi,

Folks can only give views on your case if you reply in time REGULARLY.

(save your case page link and refresh the page daily for updates / replies at the bottom . Login first then paste the link)
PLEASE CLEARLY MENTION THE PROBLEM FOR WHICH YOUR ARE HERE .. THE PRIMARY / MAIN ROBLEM FIRST ..

you can click any ones name for email to remind them.
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ANSWER EVERY SINGLE QUESTION .. DON'T MISS ANYONE.
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Patient name, age, from ? profession, how long patient got married, if married how many children, patient daily routine ? Any sleep disorders or foul breath now ? Any thick yellow discharges , boils , open infections .. now ? how long patient suffering from this problem ? Any fever or coughing now ? what kind of pain (symptoms, sensations) patient have ? Any cold or congestion feeling in head, watery discharges, Sun sensitivity or cold sores now ?? When symptoms / suffering / pains etc aggravates and when ameliorates ? do you have swollen hands or feet , foul smelling gasses ? Any light sensitivity ? Sweaty hands or feet ? Do you feel pronounced weakness in body ?? Thick yellow discharges, changing symptoms now ?

What you like in food and what not ? Do you feel thirsty mostly ?? or do you like water ? Or mostly thirst less ?? Any cramping, shooting pains, hiccough, spasms now ? Choose one condition. Either thirsty or towards more thirst less ?? Acne blackheads, greasy or brittle hairs ? Do you feel cold in body ? or hot ? Choose one condition .. Do you like to be warped in a blanket even in summer ? Or feel hot in body mostly and dislike hot weather etc .. no normal words etc .. what you like in food The most = sweets or salts ? Do you have any other problem beside these ? Describe in details.
E-mail me any reports .. Click my name for email. Tell doctors opinion regarding your problem as well ..

What medicines you used in the past ? Name and potency ? Are you dibetic or suffering from high blood pressure ? Or any other chronic disease .. ??
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ANSWER EVERY QUESTION DON'T MISS ANYONE. LOGIN DAILY ..
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Forum rules .. any advice etc on the forum can't be considered as a clinical advice or treatment or etc .
[Edited by healer21 on 2017-12-08 23:53:43]
 
healer21 2 years ago
I will do my best to answer your questions, as the primary reason and patient is my 15 week old daughter and her silent reflux. The second reason is myself, low milk supply and prolapse pelvic floor. I will answer for Thea as (she/her) and for myself as (I).

Please grant me grace on your time frame for reply, I rarely have time to check in.

Patient name, age, from ? I have emailed you these details but will keep them anonymous on the forum please.

From USA

profession: agriculture

how long patient got married, if married how many children: I, her mother married 10 years, 1 child

patient daily routine ?
7-8 AM wake up. Eat, activity, sleep cycle every 2 hours. 6-8PM bedtime
I pump breastmilk every 3 hours.

Any sleep disorders or foul breath now ? Reflux interrupts her sleep, she has not connected her sleep cycles yet. Some sour breath from reflux but not always

Any thick yellow discharges , boils , open infections .. now ? No

how long patient suffering from this problem ? Unsure I suspect either from birth or shortly after? I have prolapse from labor and low milk supply from early anxiety/stresss and nursing problems

Any fever or coughing now ? She has No fever, she does a dry cough sometimes- not sure from reflux or trying to get attention but does not seem like a sickness, it seems more expressive . She occasionally has a clammy forehead.

what kind of pain (symptoms, sensations) patient have ? I believe she has pain, burning or discomfort during episodes. Wakes up from reflux with cries.

Any cold or congestion feeling in head, watery discharges: No she has some dry nose congestion

Sun sensitivity or cold sores now ? No
When symptoms / suffering / pains etc aggravates and when ameliorates ? Bothers her Laying flat, tight clothing and cueing nap time. Alleviates or comforts her is movement, walking singing, empathetic moans/Hums, bath and back rub.
do you have swollen hands or feet: no

foul smelling gasses ? She has Sometimes but not often, usually before her bowel

Any light sensitivity ? No, she likes looking at lights

Sweaty hands or feet ? She has Clammy but cold

Do you feel pronounced weakness in body ?? Unsure for her, I tend too feel weak and drained.

Thick yellow discharges, changing symptoms now ? She has none. After being off of Nat Phos 6x she is back to her alert happy self but can tell she has more pain. She seemed suppressed on Nat Phos.

What you like in food and what not ? I like all kinds of foods, but I have a lot of food restrictions and allergies. I avoid nightshades, most grains/gluten, dairy, soy, fermented and smoked/aged meats.
I enjoy apples, cooked squashes and sweet potatoes, chicken. I cannot have high histamine foods or any alcohol.

Do you feel thirsty mostly ?? or do you like water ? Yes I am thirsty mostly and enjoy mostly just water or occasional coconut water or herbal tea.
She seems to thirst or crave bottle for soothing
Or mostly thirst less ??
Any cramping, shooting pains, hiccough, spasms now ?
Thea does have spasms/back arching and twitches and does have hiccups multiple times a day.
Choose one condition.
Either thirsty or towards more thirst less ?? More: thirst more
Acneblackheads, greasy or brittle hairs ? For her not. I have long dry brittle hairs with an oilier scalp, no acnes but have blackheads mostly on noseS
Do you feel cold in body ? or hot ? Choose one condition ..: usually cold for me, I think same for Thea
Do you like to be warped in a blanket even in summer ? Me yes
Or feel hot in body mostly and dislike hot weather etc .. no normal words etc ..
what you like in food The most = sweets or salts ? I like Equally maybe salty more
Do you have any other problem beside these ? No
 
PrairieND 2 years ago
Hi,
Patient means patient not her mother or any other relatives or relation etc. . It seems you (mother) are also looking for some remedy suggestion etc ..

Nat.sulph 30c for child only .. 2 drops twice a day only for two days only.
 
healer21 2 years ago

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