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Sudden Hearing Loss (Help Pls.)

Can anyone who has had this and done the steroid treatment (including shot in eardrum) and had it NOT work, please let me know what other things to try to improve this. I dont have too much ringing or noise in my ear, my ear feels blocked and makes me feel tired and depressed. I am afraid to excersize b/c I heard that you have to stay as still as possible in the first few weeks after it happens- in order to not make it worse. I have read about oxygen treatment possibly improving the blood flow in the inner ear, have not tried that yet. Have not had an MRI- wondering if anyone who had this found out they had Minears syndrome or other reasons behind it. Very lonely with this b/c most people do not understand how it effects you. They seem to feel that its not that bad b/c I still have hearing in other ear, but its changed my life and I cannot get back to the way I was before and am very depressed.
 
  damagato on 2005-10-02
This is just a forum. Assume posts are not from medical professionals.
damagato
I tried the hyperbaric oxygen and tried it for about 3 weeks (2 hrs a day)
I started a little late (45 days after onset)BUt it did not help. SHL is from what i have read and choose to believe can be caused by many different things (virus, autoimmune, blood vessel breaking)
My grandmother lost her hearing and a year later also came down with minnears. so i alos think SHL can be hereditary
I will email a clinic in Arizona where they do a lot of virus testing and can see iof this has nything to do with the hearing loss
Most ENT's (even my nutcase) ran 5-6 blod test to rule out diabetes,etc and also had an MRI done to rule out tumour which you SHOULD have done...its very rare that its a tumour but something that most ENT's will check
first off

I know what you mean that its hard as people do not understand how debilitating and depressing this is... Hang in there, Michael
 
micklog last decade
micklog,
thank you for your response. It is comforting to hear from people who have also gone through this. I am seeing ENT tomorrow and planning on insisting to have MRI / CT Scan- the stress of worrying about this being caused by something more serious is making me ill- sometimes I think the stress is worse than loss of hearing. You go online and read so many scary things. I will talk to him about oxygen as well. At this point I am willing to try anything! I have been taking Vitamin E regularly morning and night for the last week- I read that studies showed it assisted in this type of thing. My grandmother has minears as well- she got diagnosed very late in life- she is now in her late 90's- and has had hearing problems her entire life. My mother has 40% hearing in her left ear- but it was due to fungus infection in the inner ear which ate away at the bones and tissues....they only found out about it when they went in to do eardrum replacement. Who knows- I might have that. They dont seem to know enough about this and it is VERY frustrating!
 
damagato last decade
damagoto
try to get your ENT to refer you to a specialist; i was lucky and got referred to the head of ENT at UCSF;

right now i have maybe 20% hearing which the GOOD THING is i can benefit from hearing aid (DIVA) it is very good..do not buy a cheap one unless you have to. Also the hearinmg aid masks the tinnitus which is sometimes bad...DOI NOT get hearing aid
for at leats 3-4 months as your hearing may come back

Thats interesting about your grammas meniere...and your mother's hearing loss. I had a bad sinus and virus infection leading up to mey loss and the dopey ENT did not even do any virus work...there have been some studies that show acyclivir
(??spelling) may help in cojunction with steriods...suggest you try it

also the steriods can create yeast infection so be aware
but its the lesser of two eevils

Michael
 
micklog last decade
try kali-mur 6c, 12c or 30c. 2 or 3 times daily for 3 days.
hope it helps
 
erika last decade
I just had SHL a week ago, I want to know if anyone ever gain their hearing back? what did they tried. You are right about the frustrating part.
 
elischee last decade
I have menieres disease and have had it since i was a baby apparently. The final symptom to kick in was the hearing loss at age 12. I'm now 18 and have to wear hearing aides as i only have less than half of my original hearing. Unfortunately, mine my doctors have said is irreversible, and that i'm hearing impaired for life, BUT if somebody knows of any treatment that could help, it would be greatly appreciated. Six years doesn't make it any less frustrating. Although, given that length of time, i doubt my hearing can be helped any, but good luck to all of you who do have the disease with hearing loss (As far as any treatments you might try go).
 
LastOneStanding last decade
Finally found a cure - so I'm sharing with as many people as I can in the hopes it will help someone.

In 2006 I suffered a 60db single-sided sudden sensorineural hearing loss, followed later by vertigo attacks and a diagnosis of Meniere’s Disease. I have since made a *full* recovery after suffering for 3 years. In my case these symptoms were the result a food allergy (which I have also recovered from).

I created a web site to document my own experience since it appears most ENTs have little idea about simple allergies (e.g. food, environmental) as one possible cause of significant & sudden hearing loss. [I can't post the URL on this site directly, but my user profile has it]

It includes scans of my hearing tests & allergy results.

( the House Ear Clinic - is an example of a medical practice that acknowledges the connection between allergies and hearing disorders. )

Good Luck to all & get well soon!
 
jhorowi1 last decade

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