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BXO help needed 38bxo - bxp 2bxo my son 10 yrs old. 1Alternative Medicine & Holistic Treatment of Phimosis, Paraphimosis, and BXO (Balanitis Xerotica Obliterans), Swolen, Closed or Sleightly Tight Prepuce, Unable to Retract... Use Homeopathy. 1bxo (balanitis xerotica obliterans) 2Balanitis Xerotica obliterans-BXO 1

 

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BXO treatment... Page 13 of 18

This is just a forum. Assume posts are not from medical professionals.
dragonreborn, I don't think there's any definite point at which it's right to stop, and the answer to that will vary from one person to the next. Stop when it feels intuitively like it's the right thing for you to do. It sounds like you've made some great progress. That can make it seem like you're almost healed when you're actually still a long way from it. I'd say keep doing what you're doing until you stop noticing peeling.

jomppa, I have read similar accounts from some people using prescription treatments too - treat, then do nothing for a few days to give the skin a chance to heal. I'm personally noticing real progress again after a long time of seeing very little obvious peeling, and all i've been using is creme complete at night with nothing at all during the day other than keeping the area dry.

bob0499, dragonreborn may have some useful advice to offer you as he had a similar experience. A caveat, however, is that I found no treatment penetrated through to the bottom of the BXO. With me, the layers gradually peeled away one by one. If I were you, I'd stop hoping for the whole thing to just peel away magically and instead, enjoy any peeling you see. That said, pain and blood are not great things to have. Perhaps try a lighter application of TTO, and ditch the DMSO. I found a heavy application of TTO was painful after a while, but a lighter application was painless and still very effective.
 
greaneyr 5 years ago
Perhaps you're right greaneyr. I'll keep on going with the applications. Thanks - good point.

Hi bob0499, I have not had blistering but plenty of redness and tenderness on my penis head and also regular splits in my frenulum. As greaneyr mentioned, you may need to use less 50/50. Just put on a small amount and immediately follow it with emu oil and then follow that with creme complete. No promises, as I am not a doctor, but it may make it easier to take. Also, the DMSO may help absorb more of the healing properties of the emu oil and creme complete.
I had a lot of bxo on my frenulum so despite the fact the 50/50 causes it to be tender and split, I continue anyway because I know the peeling needs to happen. The stinging is worth the end result as far as I'm concerned. Creme complete and the stronger Perrins Blend may be something to start with - see if it starts the peeling process and if so hold off on the 50/50.

This is an individual learning experience and you'll likely have to tailor your own applications to suit you.
 
dragonreborn 5 years ago
Has anyone here actually eliminated the tight ring in the foreskin?
 
wantfsf 4 years ago
wantfsf, I never had the ring, just white skin mostly on my frenulum (which had widened and grown further attached to the head) and the underside area of the corona. I have made great progress - lots of peeling and my frenulum has been narrowing and detaching from my head in the areas where it shouldn't have been attached - but still have some to go.
 
dragonreborn 4 years ago
wantfsf - yes, I have. Well, all but eliminated it. All BXO skin is tight, and the thicker it is, the tighter it is. The ring is, for many at least, the thickest skin and therefore, the place where tightness is most apparent.

I still have BXO skin where the ring was, but there's practically zero indentation now.
 
greaneyr 4 years ago
I have a slight indent where ring was but skin staying healthy as long as I stay to diet! Apply TT/DMSO monthly but taking 600-800 mg of Red Clover daily!
 
bartmh 4 years ago
bartmh, are you keeping the area dry too? If so, is that something new for you and something you believe has contributed to your recovery?
 
greaneyr 4 years ago
Unfortunately greaneyr I let them mutilate me before I found this forum! I now only get the phimotal skin where the circumcision was stitched! I do keep him dry, I wash after ejaculating as the protein seams a trigger. Also, avoid any food with whey content. I had thought I was cured until I tried eating a yogurt rich diet! Bad move, it came back with a vengeance! Another observation, if I try to cut back on the amount of Red Clover I ingest daily I get slight returns! As of this writing I apply TT/DMSO monthly or if I feel constriction coming on. Good luck to you all! This disease is surely HELL
 
bartmh 4 years ago
Hi Everyone,

Well the 50/50 mix of DMSO and Tea Tree Oil has been working well. With me the problem was just inside the opening of the urethra. Much has peeled away with only a little bit to go. The problem is the other uninfected tissue is redder and slightly inflamed. No pain but I need to know what mixture I can use that will still work on what's left without damaging the healthy tissue. Thanks.
 
Jersey57 4 years ago
I would try the Emu and TT mixture without DSMO. You realize you can mix the TT oil light but use it several times a day.
 
bartmh 4 years ago
Just posting here that im clear of bxo, but will still keep using mixture for a while.

This Treatment worked for me and all i can say thanks to this forum and Dfrance. You've saved me from going to surgery table to get my foreskin removed.
 
jomppa 4 years ago
jomppa, I know it's difficult to describe, but how bad was your BXO before you began treatment?


I have a bit of an update to bring to the forum. I suffered my first setback since I started treating myself recently. It began as a slight itch around the BXO skin, which I initially wrote off as being the skin healing. But it never really went away, and eventually got worse. The area became red and inflamed. I'd try a different treatment and it would work initially, then stop working within a few days. I tried literally every treatment I've used in the past, and none appeared to do much more than ease the itch for a little while. Manuka Honey, for the record, was the most relieving. But ultimately, it alone didn't cure the itch.

The cure for the itch was actually for me to sleep. It's the end of the year and I'm very tired after a long and stressful year. It's not helped by the fact I'm dealing with a few stressful situations at work at the moment. I had been staying up too late most nights, and wasn't getting the sleep I needed. I guess that caught up with me, and presumably my immune system has been compromised.

After getting enough sleep, I have only brief periods where I feel any itch whatsoever, and even that only hits when I am slightly damp and need to dry myself.

I believe this shows the 'overall health' component in BXO. If you are going to endure stress or anxiety in any form, you need to ensure you get plenty of sleep. I had obviously gotten my body into such a run down state that the disease was grabbing a hold of things again. Fortunately, I now look and feel exactly like I used to before the flare up.
 
greaneyr 4 years ago
greaneyr, i think i noticed the bxo quite early, only the tip of the foreskin was affected by it, no glans or anything and i think around 40% of the skin was white.
 
jomppa 4 years ago
Hi

I have been diagnosed BXO 1 year ago and have had the condition for around 5 years.

My foreskin was removed before i even got the diagnose(it was grown together since i can remember)

My BXO is on the penis shaft. The skin gets very dry and peels of. It cracks very easy and sex is not an aption.

A dermatologist gave me "Dermovat"(a steroid creme) and it helped for some time, but the skin got thiner and now im almost back to where i started, thin skin that is dry and weak.

My question is, can i use this treatment on the penis shaft ?

I feel so feel miserable and cant see any future for me...how can i ever create a family when sex is not an option..my girfreind is about to leave me because we cant have sex.
Im sorry for my poor spelling, english is not my native language.
[message edited by syregren on Mon, 22 Dec 2014 23:10:14 GMT]
[message edited by syregren on Mon, 22 Dec 2014 23:23:29 GMT]
 
syregren 4 years ago
Interesting that you've gotten BXO on the shaft skin after being circumcised. I'm now almost certain (is anything ever 100% certain?) that mine was caused by dampness under the foreskin, as I've experienced continuing progress since I started treating it. I've tried a range of treatments, and the only one that remains the same is to keep the area dry.

BXO is probably a disease that is symptomatic of something else. That root cause varies from one person to another. In my case, it wasn't the dampness that 'caused' it, per se. But something deeper that caused either my skin or urine to react to the other when the two came into prolonged contact.

I'd be interested to see pictures of your BXO area. I'm a believer that the pattern and location of your BXO can help explain its cause. Is it on the bottom, top, or sides? Is it an area that's in contact with other skin most of the time?

I found the shaft skin heals much faster than the inner skin, so once you find your treatment, you should be healed much faster than those with it on their inner skin. The inner skin is also more sensitive than the shaft skin, so you can use any product on it that you'd use on the inner skin.

In short, yes, you can use the BXO/DMSO mixture, or anything else that has been mentioned here.
 
greaneyr 4 years ago
Glad to hear many of you are doing well! Just a reminder that I wouldn't ignore the red clover and try to half ass this whole thing and cut corners. And don't eat/drink dairy/whey.

Update as far as my bxo, no white skin, no return of tightness. I still take red clover frequently although not everyday. I always have tto and dmso around too just in case. Haven't had any reoccurring problems though and plan to keep it that way.
 
dfrance 4 years ago
Just found this forum and I have ordered all of the stuff. I have had bxo for the past few years now with also a very tight foreskin opening about 4mm wide when retracted. So when this treatment starts to minimise the white areas hopefully my foreskin will become much looser and I can then start stretching techniques.
Also I have been taking whey protein shakes for the past year or so as I workout a lot and will stop, but I am thinking about buying soy protein as an alternative is this ideal?
 
Steve1997 4 years ago
Hi Steve, and welcome to the forums. This is one of the best places for BXO/LS sufferers to get information on the healing process, which treatments work and which ones don't. Western medicine will only take you so far when it comes to this relatively uncommon disease. This isn't a case of "western treatments are strong and bad for you, natural ones are better". I can tell you in my experience at least, that western treatments simply don't work as well as natural ones.

Just remember, not every treatment works for everyone. There will be a combination that works for you, and it may or may not be the same as what worked for others. There are, however, some common themes that come up time and time again, both here and on other LS forums, which I'll try and summarise:

- Look at your diet. I think dropping whey protein is a great idea, as I and many others have discovered (via BXO) that we have dairy allergies. I avoid dairy where I can now, and my skin is far better for it. I can't comment on whether Soy is a good substitute or not.

- Keep the area dry. I don't know how achievable this is for you if your foreskin only opens 4mm wide. It's not a problem I had to contend with as I never had major retraction issues, but I'm sure there are things you can do to dry underneath. q-tips are supposedly effective at removing moisture. That said, TTO is good at drying, so you might get this effect from it anyway.

- When you start seeing peeling, don't force it. You will cause bleeding, pain, inflammation, and very high risk of infection (trust me on that last last one, as I had two infections since BXO took hold). Over time, you might get better at figuring out when you can and cannot remove the dead skin, but to begin with, just don't.

- Recovery is slow. Very slow. Excruciatingly slow. Diabolically slow. Expect it to take a very very very long time. And then, expect it to take even longer. Possibly even a little longer than that. I thought that all I needed to do was get it to peel, and that beneath the first layer of white skin lay perfectly healthy tissue. I was wrong. I've been on this journey now for just over 7 months, and still have very noticeable patches of white skin in the places where my BXO was the thickest. When I started, I was expecting a turnaround in a couple of weeks. Now, I'm expecting 12-18 months, which is still less time than the disease took to develop the way it did. Just remember the first point - western medicine doesn't have much of an answer for this condition. Don't get so caught up by the slow recovery and get so impatient that you go and see a urologist, because in all likelihood, all they will tell you is to get circumcised. The mantra I came to quote was "peeling equals healing". While I might notice little to no obvious progress, if I'm seeing peeling on my BXO skin, then it's healing. Peeling seems to be the most reliable indicator of progress.

Come here as often as you wish. Ask questions, share your story, whatever helps you along is a good thing.
 
greaneyr 4 years ago
Hi greaneyr

thank you for your respons :)

Last week i had an appointment with a new doctor who my darmatologists says is a"specialist" on this field.

He gave me protopic. Been using this once per day on my penis shaft skin(an area 2cm in width around the penis shaft). Results so far is good! I experience the skin has gotten thicker and stronger and seems to be healing. I had sex the sex the other day and was very worried that the skin would crack as it often do/did....but it did not, it didn't even get soor or red as it did before. So far im extremly happy for this improvment, it has been better than the dermowat steroid creme i was using 5 month ago.

A portion of the well known side effects of protopic are increased sensitivity and a burning sensation. I get thoose. Sex feels a bit different, not sure if its less "good" yet. I also notice the increased sensitivity when taking a shower, hot water feel very hot on the area i use protopic on. I also feel a slight burn/warmness on the area after applying protopic.

I have herpess and therefore my dermatologist would not give me protopic as it can result in herpess outbreak on the area and worsen my situation. The "specialist" said we had to try it out and if a herpess outbreak comes i could take pills daily to controll and keep down the herpes.

Surgerey is not an option for me as i have it on the shaft skin(my forskin was removed 14 years ago,was all grown together from since i can remember). I dont understand why more in here simply get the forskin removed..if i "only" had it on the forskin i would do this asap and be done with it(hopefully).

I undrstand that protopic is not good and not a cure..i been very depressed for 6 month and considered suicide cause i could not see a way out of this...whats the point if sex is not possible, girlfreinds, family...not possible. Im very relieved that finally something helps.

Sorry for this long post, i felt the need to share this.

im still very open to try this treatment suggested in this tread, but does it makes sense when using protopic at the same time ? Im afraid of stopping the protopic treatment.
[message edited by syregren on Mon, 19 Jan 2015 07:50:34 GMT]
[message edited by syregren on Mon, 19 Jan 2015 07:52:27 GMT]
[message edited by syregren on Mon, 19 Jan 2015 07:53:48 GMT]
 
syregren 4 years ago
Hi, I was just wondering how do you apply the mixture when it is mixed up in a bottle?
 
Steve1997 4 years ago
Steve1997, I've used my fingertip or Q-tips.
 
jomppa 4 years ago
Hi all

A quick update on my progress. I'm about 90% healed now. I'm expecting it to take about a year from when I started treatment before the BXO is undetectable.

My sexual function is fully back to normal now, and I have hardly any effects from it anymore. It's now mostly just patches of white skin where it was obviously at its thickest that is bothering me. There's a small part on the inner skin where there's still quite a bit of white skin, which is tighter than the surrounding skin, and the underside of the head has a reasonably thick patch too. But by and large, I look normal now.

I know that, if I were to view my skin under a magnifying glass, I'd see a lot more bxo skin, as I notice more white areas when the skin has been wet for a little while (I can see it by the end of a shower). However, my recovery is continuing to progress steadily and I am in no doubt I will eventually be rid of this.

It's a fabulous victory to be able to have a normal sex life again, and will be even better when it looks normal and loses the last tight patch.

I'm continuing to post on my Obliterating BXO Naturally blog, and will keep coming back here to give updates. For those who don't want to search through the post history, the treatments I found effective are:

3% Hydrogen Peroxide (encourages peeling)
Talcum Powder with Zinc Oxide (keeps the area dry)
Tea Tree Oil (attacks the disease)
Manuka Honey (heals the white ring and helps loosen it)
Topical Comfrey Infusion (heals and encourages peeling)
Perrin Creme Complete (helps restore the original look and function of skin that was once covered in white skin)

But more important than anything else:

KEEP THE AREA DRY AND CLEAR OF URINE AND SEXUAL FLUIDS AT ALL TIMES!!!!!!!!
[message edited by greaneyr on Wed, 18 Feb 2015 06:49:40 GMT]
 
greaneyr 4 years ago
That's so great to hear greanyr! And thanks for checking in again dfrance.

I took a short break in my treatment because I was getting married and I was so close to being clear - everything is completely functional and nobody without previous knowledge would know any different. My wife knows about my condition and I've just started treatment again but a lot less frequently so I can still have a normal sex life. So far it's still going very well and I think by summer I will be free of it completely. Like you I will continue to do periodic treatments and take red clover among other supplements. I'm trying to keep my stress low and my body active - I feel great and confident!
I hope others are encouraged by our success and relief!
Keep at it everyone!
 
dragonreborn 4 years ago
greanyr, how bad was your bxo before you started your treatment? was it in the form of white swollen skin around the urethra? pls help thankyou
 
bw123 4 years ago
bw123

My entire glans was covered in it, but my urethra wasn't heavily affected. All I mean by that is that it wasn't affected any more than the rest of the glans. My inner skin was also affected to the same extent, and I had the beginnings of a tight phimotic ring.
 
greaneyr 4 years ago
Hello Greaneyr

After a long time I return to the forum. I've carefree myself with everyday problems and my disease continued to progress. It really gives me hope to see your blogspot and photos as I am almost like you The glans covered by BXO in January 2014. The foreskin same with white patches. But the progress of your disease in a year is impressive.

I started in June 2014 but was not constant. And I had no red clover because here in Argentina does not exist. But I got in Brazil. I will start as you have done following your steps. I will read your blog for details.

Just a few questions:

1- The TTO and DMSO what you mixed in a container and you apply it from there or do you applied the DMSO and then the TTO.
2- I take much sweetener. Your what you suppressed. You know ... diet coke ... etc
3- When you say nothing proteins, means no eggs, no cream cheese, no meat ... please spread out in this.
4- The zinc powder when you apply, and the TTO / DMSO when you apply?.
5- I drink alcohol. I think a little more than usual. You drank? You stopped drinking?

Also I will read your full blog.

Thanks in advance
 
astor 4 years ago

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Information given in this forum is given by way of exchange of views only, and those views are not necessarily those of ABC Homeopathy. It is not to be treated as a medical diagnosis or prescription, and should not be used as a substitute for a consultation with a qualified homeopath or physician. It is possible that advice given here may be dangerous, and you should make your own checks that it is safe. If symptoms persist, seek professional medical attention. Bear in mind that even minor symptoms can be a sign of a more serious underlying condition, and a timely diagnosis by your doctor could save your life.