BXO treatment... _{Page 20 of 20}

Okay boys I have been seeing a dermatologist for 2 months now and he thinks it’s ls. I wish I never started the tea tree oil treatment because I think it further damaged my skin. I was seeing huge progress and then my skin started peeling and I have another lesion that formed. It’s not exactly a lesion lot or less a deep patch of skin that ripped off. It’s been two weeks and it won’t heal. I was having high hopes the creams he prescribed were making fresh skin come back but in the more stubborn white skin areas nothing would happen I think the dmso combo killed the skin in so depressed over this. Now I have this “lesion” and he told me to keep putting colbatesol on it. Has anyone had experience with skin peeling? Lesions? I feel like I’ll need plastic surgery to fix the appearance if I can ever cure myself of this. I’m so mad I waited years to address this, the skin that flaked off is about as thick as a nail. Please help I was trying ozonated olive oil but that wasn’t helping the derm said to do the colbatesol. I feel like for it to heal iff have to lay in bed naked all day lol. I would give all my money in the world to go back in time and force myself to go see a doctor because I fear I wil never get better and it will get worse. It’s even worse after the dermatologist help!

Longjon,

I'd stop applying Clobetasol and Ozonated Olive Oil. Let the tissue repair on its own.

Corticosteroids such as Clobetasol impede wound healing in studies. But if it seems like it gets worse without Clob, re-continue.
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The below 2 treatments have been found in new studies to cure LS (and many other skin conditions).

All patients whose LS doesn't improve within a few months of conventional treatment should contact their doctor and request their medical insurance cover either of these treatments:

1. Photodynamic therapy: https://github.com/LichenSclerosus/LS/wi...
2. Collagen injection:
https://github.com/LichenSclerosus/LS/wi...
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If your medical coverage won't cover it, see if you can find a dermatologist that will perform one of them for you. They might give a discount. (I don't know the cost.)

These studies are amazing news. Good luck!
[Edited by ScottSummers on 2021-01-10 21:24:14]

I recommend all LS patients order PDRN cream (a regenerative medicine Salmon sperm DNA molecule).
https://github.com/LichenSclerosus/LS/wi...

I bought it here: https://amzn.to/3ig5Mv3

PDRN can be ordered right away, where as Photodynamic Therapy and Collagen Injection require lengthy processes while seeing if health insurance will cover it (otherwise it will be hundreds of dollars), and then waiting for an appointment with a dermatologist.

(I'm actually also going to use the cream on my hairline as a preventative against hair loss. There's a study on that in the above link.)
[Edited by ScottSummers on 2021-01-17 03:22:37]

I also recommend all LS patients take a systemic anti-fungal/anti-candida.

I've come to believe Dr. Shallenberger is right that for many male and female patients, an aspect of the condition might be genital tissue responding abnormally to systemic fungal over-growth, such as candida (which is normally present at limited levels in the body).

More info here.
https://github.com/LichenSclerosus/LS/wi...

He recommends Terbinafine (Lamisil) as a prescription systemic anti-fungal.
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But if you're not going to be able to get that quickly, I'd start taking Goldenseal. It's valuable to save time with LS.

This is the Goldenseal I took 9 months ago that might have been one of the factors that put my condition into remission. It was prescribed to me by an alternative doctor.
https://amzn.to/3ijzBeu

More info:
https://github.com/LichenSclerosus/LS/wi...
[Edited by ScottSummers on 2021-01-15 15:59:44]

Hi, been following this for a couple of months now. I was diagnosed with LS about 3 months ago, been doing the TTO/DMSO oil for a month now maybe? Done about 4/5 applications usually 4/5 days on twice a day then 2-3 days recovery and repeat. Can't really tell how much difference it's made yet im currently in the recovery stage, also bought red clover as instructed took for a month don't think it did any difference though, not sure wether to buy another bottle and keep it up.

Anyone still reading this post and having luck with the tto/dmso mix with red clover? Or anything else worth trying

thanks

also i took clob for a month and i honestly think it did nothing for me, anyone else have issues with it?

Hi Everyone,

Was diagnosed with BXO in 2002. Had a few minor surgeries the last being in 2014. I've noticed the dreaded white appearing at the opening again. In the past I've had much success with the 50/50 mix of TTO/EMU oil. This time it doesn't seem to be working as well. Any thoughts or ideas? Thanks.

greaneyr I would like to read your blog if at all possible to see how you worked things out. Thanks.

Over a year ago now I had what I thought was a yeast infection with red itchiness and I was prescribed a steroid cream with an anti fungal by the doctor. This did get rid of the immediate itch and I thought I was OK. A couple of months passed by.

Then I noticed a mark appearing on my glans and my foreskin was getting tighter with the phimotic ring getting white and non-stretchy. I was prescribed more steroid creams. I don’t think they were really getting to the root of the issue whatsoever. I thought I had some form of late stage phimosis.

Again I returned to the doctor as things had gotten worse. My foreskin had tightened considerably and was not retracting fully over the glans when erect and sex was becoming painful and causing painful tears. The doctor said it looked like lichen sclerosis or balanitis xerotica obliterans (BXO) as it’s referred to on men and she prescribed a stronger steroid cream (clobetasol propionate) that’s often used on women and referred me to a urologist. She said the cure was circumcision. At this stage, the phimotic ring was very noticeable and white and the skin looked pale.

Onwards to the urologist who took a quick look at my penis and said “with that sclerosis you need a full circumcision” and handed me a booklet on all that’s involved in a full circumcision. Well, I’m quite fond of my foreskin and that’s when I started to seriously look at alternatives and came across the DFrance post on this thread.

I ordered tea tree oil and the purest DMSO (Dimethyl sulfoxide) I could find on Amazon. Also EMU oil. I emptied out half the tea tree oil and filled the bottle with the DMSO. DMSO is weird stuff, it freezes at 18 degrees so looks like ice in the bottle. It should also be kept in a glass bottle as it will leach chemicals from non-medical grade plastic. It’s actually a solvent but causes anything it’s in contact with to penetrate the cell barrier so helps deliver the tea tree oil to the infection. Make sure the bottle is closed tightly or it will evaporate quickly. For a fascinating insight into this substance read “The Persecuted Drug: the Story of DMSO by Pat McGrady.

Anyway, desperate not to require a circumcision, I gritted my teeth and soaked a cotton bud with the tea tree/DMSO mixture and covered the phimotic ring and glans with the mixture. It did sting like hell. The instructions were to keep it on the area needed only but that’s pretty impossible. My foreskin does slide back to cover the glans also with the mixture on it so pretty much everything gets covered.

Well, literally in 24 hours my penis had transformed into something else completely. Jeez - what on earth had I done?. Amidst the red sore skin, the pale pinky skin that was infected had turned completely snow white and looked like thick rubbery sunburnt skin. I kept at the treatment for a week or so and also added some emu oil as the tea tree oil and DMSO alone is fairly drying. As I started this treatment I should say I was not applying any other steroid creams. They just seemed to have masked the issue for months and were ineffective.

Then I also read about Perrins Blend Ointment. perrinnaturals dot com/product/perrins-blend
It’s a mixture of various oils and honey and apparently had some success with Lichen Sclerosis. I ordered a jar of the stuff and put some on one night before bed. It looks like and has the consistency of red sticky Marmite. Well, in the morning another transformation. The red Perrin’s Blend had penetrated the white skin and my penis looked like I’d had a circumcision during the night. But amazingly, big strips of the diseased white skin began to peel off. This looked absolutely awful but I was glad to see healthy flesh re-appear. I have photos of this transformation but they’re pretty gruesome and not sure if they’d be accepted here.

If you try this, be careful not to try and hasten things by pulling bits of skin off before they’re quite ready. Tiny little tears in the foreskin hurt like crazy when covered in tea tree oil and will stall your progress. After a few weeks I felt that progress had slowed somewhat but I persisted and started to put on the Tea Tree/DMSO mixture and straight afterwards pasted on some Perrin’s Blend Ointment. I surmised that the DMSO could help make the Perrin’s more effective and it definitely felt as if blood flow increased dramatically to the penis.

The area on my glans was the most stubborn and with the tea tree / DMSO / Perrins mixture being applied looked like white crocodile skin. I was surprised just how thick it was. Lichen Sclerosis looks like lichen on a rock and has that rough feel. But slowly this thick white skin started to naturally peel away at the edges. Underneath I was worried as to what would eventually appear but the new skin emerging was beautifully pink and incredibly sensitive, almost too much to bear to touch.

Also, constant layers of white skin started to peel off my phimotic ring and that started to loosen. I’m convinced that the phimosis was due to the underlying lichen sclerosis. I also used another Perrin’s product - Cream Complete to moisturise rather than just the EMU Oil and my foreskin began to feel supple and soft again. The Perrin’s Complete is more of a moisturiser and less harsh than the Perrin’s Blend. Using both together seems to work nicely.

Altogether it took about two months of constant application to get to a point where I felt rid of this scourge. And I still have my foreskin!

Now, with my penis functioning perfectly and looking healthy with a supple foreskin, it’s hard to believe what a trial all this was and I can hardly bear to look at the photos from that time. The medical profession are one-tracked to surgery on this issue. I never could fathom how circumcision would cure the glans issue.

I hope this can help someone else as DFrance’s posts definitely helped me. Thanks and good luck.
[Edited by Ed021 on 2021-05-16 18:54:45]

Hello everyone,

I tried years ago, I found this forum in 2014 and used DMSO and TTO but it was always a temporary fix and always very painful. Since then I have watched my diet closely but seen it flareup when I drink alcohol or eat a lot of processed food.

Recently I started water fasting and, it has gone away almost completely. I think it has everything to do with diet, and if you can cut out alcohol, coffee, sugar and processed foods I think you will notice a great improvement.

If you really want it to go away, try a 3 or 4 or 7 day water fast and see what happens! your body goes into Autophagy and starts getting rid of dead cells, viruses and parasites.

Everything is connected! Start with diet first. Let food by thy medicine.

Fasting works! Best of luck.

I might as well be patient X here since I’ve been doing this treatment for around 5 years, I can attest that it works, but very very slowly, my process, dmso/tto 50/50 mix, 15 applications on Sunday, rest the following days until it peels which it usually occurs 4 days later before the weekend, which is mentally soothing as I am single and can go out without physiological issues, it terms of appearance it literally looks like it’s gone, woman don’t notice, but I know it’s still there, closer inspection via phone light, if I stop application for two weeks as the skin heals I can still see the tiny white raised lines forming and possibly growing, wickmans strae? I believe it’s called, this is around the outside of my urethra meatus which is why I’m so consistent with this process, last thing I want is this going down into urethra, over the years I can say it looks 95% better, the only issue I have is knowing when to stop, which tbh looks relatively soon, I say this now but I’m sure I’ll be at it another year until it looks completely gone. Trust the process guys and make sure your not putting this on healthily skin! Be very careful with application use a cotton paper qtip, not the ones with a plastic stem.considering I noticed this skin growing and raising for years and thought it was normal, I’m fully expecting to go the whole fking way and kill this thing, idc how long it takes. God Bless and hang in there, I was a wreck years ago and know where some on you are,