BXO treatment... Page 27 of 37
jomppa 4 years ago
I have been diagnosed BXO 1 year ago and have had the condition for around 5 years.
My foreskin was removed before i even got the diagnose(it was grown together since i can remember)
My BXO is on the penis shaft. The skin gets very dry and peels of. It cracks very easy and sex is not an aption.
A dermatologist gave me "Dermovat"(a steroid creme) and it helped for some time, but the skin got thiner and now im almost back to where i started, thin skin that is dry and weak.
My question is, can i use this treatment on the penis shaft ?
I feel so feel miserable and cant see any future for me...how can i ever create a family when sex is not an option..my girfreind is about to leave me because we cant have sex.
Im sorry for my poor spelling, english is not my native language.
[message edited by syregren on Mon, 22 Dec 2014 23:10:14 GMT]
[message edited by syregren on Mon, 22 Dec 2014 23:23:29 GMT]
syregren 4 years ago
BXO is probably a disease that is symptomatic of something else. That root cause varies from one person to another. In my case, it wasn't the dampness that 'caused' it, per se. But something deeper that caused either my skin or urine to react to the other when the two came into prolonged contact.
I'd be interested to see pictures of your BXO area. I'm a believer that the pattern and location of your BXO can help explain its cause. Is it on the bottom, top, or sides? Is it an area that's in contact with other skin most of the time?
I found the shaft skin heals much faster than the inner skin, so once you find your treatment, you should be healed much faster than those with it on their inner skin. The inner skin is also more sensitive than the shaft skin, so you can use any product on it that you'd use on the inner skin.
In short, yes, you can use the BXO/DMSO mixture, or anything else that has been mentioned here.
greaneyr 4 years ago
Update as far as my bxo, no white skin, no return of tightness. I still take red clover frequently although not everyday. I always have tto and dmso around too just in case. Haven't had any reoccurring problems though and plan to keep it that way.
dfrance 4 years ago
Also I have been taking whey protein shakes for the past year or so as I workout a lot and will stop, but I am thinking about buying soy protein as an alternative is this ideal?
Steve1997 4 years ago
Just remember, not every treatment works for everyone. There will be a combination that works for you, and it may or may not be the same as what worked for others. There are, however, some common themes that come up time and time again, both here and on other LS forums, which I'll try and summarise:
- Look at your diet. I think dropping whey protein is a great idea, as I and many others have discovered (via BXO) that we have dairy allergies. I avoid dairy where I can now, and my skin is far better for it. I can't comment on whether Soy is a good substitute or not.
- Keep the area dry. I don't know how achievable this is for you if your foreskin only opens 4mm wide. It's not a problem I had to contend with as I never had major retraction issues, but I'm sure there are things you can do to dry underneath. q-tips are supposedly effective at removing moisture. That said, TTO is good at drying, so you might get this effect from it anyway.
- When you start seeing peeling, don't force it. You will cause bleeding, pain, inflammation, and very high risk of infection (trust me on that last last one, as I had two infections since BXO took hold). Over time, you might get better at figuring out when you can and cannot remove the dead skin, but to begin with, just don't.
- Recovery is slow. Very slow. Excruciatingly slow. Diabolically slow. Expect it to take a very very very long time. And then, expect it to take even longer. Possibly even a little longer than that. I thought that all I needed to do was get it to peel, and that beneath the first layer of white skin lay perfectly healthy tissue. I was wrong. I've been on this journey now for just over 7 months, and still have very noticeable patches of white skin in the places where my BXO was the thickest. When I started, I was expecting a turnaround in a couple of weeks. Now, I'm expecting 12-18 months, which is still less time than the disease took to develop the way it did. Just remember the first point - western medicine doesn't have much of an answer for this condition. Don't get so caught up by the slow recovery and get so impatient that you go and see a urologist, because in all likelihood, all they will tell you is to get circumcised. The mantra I came to quote was "peeling equals healing". While I might notice little to no obvious progress, if I'm seeing peeling on my BXO skin, then it's healing. Peeling seems to be the most reliable indicator of progress.
Come here as often as you wish. Ask questions, share your story, whatever helps you along is a good thing.
greaneyr 4 years ago
thank you for your respons :)
Last week i had an appointment with a new doctor who my darmatologists says is a"specialist" on this field.
He gave me protopic. Been using this once per day on my penis shaft skin(an area 2cm in width around the penis shaft). Results so far is good! I experience the skin has gotten thicker and stronger and seems to be healing. I had sex the sex the other day and was very worried that the skin would crack as it often do/did....but it did not, it didn't even get soor or red as it did before. So far im extremly happy for this improvment, it has been better than the dermowat steroid creme i was using 5 month ago.
A portion of the well known side effects of protopic are increased sensitivity and a burning sensation. I get thoose. Sex feels a bit different, not sure if its less "good" yet. I also notice the increased sensitivity when taking a shower, hot water feel very hot on the area i use protopic on. I also feel a slight burn/warmness on the area after applying protopic.
I have herpess and therefore my dermatologist would not give me protopic as it can result in herpess outbreak on the area and worsen my situation. The "specialist" said we had to try it out and if a herpess outbreak comes i could take pills daily to controll and keep down the herpes.
Surgerey is not an option for me as i have it on the shaft skin(my forskin was removed 14 years ago,was all grown together from since i can remember). I dont understand why more in here simply get the forskin removed..if i "only" had it on the forskin i would do this asap and be done with it(hopefully).
I undrstand that protopic is not good and not a cure..i been very depressed for 6 month and considered suicide cause i could not see a way out of this...whats the point if sex is not possible, girlfreinds, family...not possible. Im very relieved that finally something helps.
Sorry for this long post, i felt the need to share this.
im still very open to try this treatment suggested in this tread, but does it makes sense when using protopic at the same time ? Im afraid of stopping the protopic treatment.
[message edited by syregren on Mon, 19 Jan 2015 07:50:34 GMT]
[message edited by syregren on Mon, 19 Jan 2015 07:52:27 GMT]
[message edited by syregren on Mon, 19 Jan 2015 07:53:48 GMT]
syregren 4 years ago
Steve1997 4 years ago
A quick update on my progress. I'm about 90% healed now. I'm expecting it to take about a year from when I started treatment before the BXO is undetectable.
My sexual function is fully back to normal now, and I have hardly any effects from it anymore. It's now mostly just patches of white skin where it was obviously at its thickest that is bothering me. There's a small part on the inner skin where there's still quite a bit of white skin, which is tighter than the surrounding skin, and the underside of the head has a reasonably thick patch too. But by and large, I look normal now.
I know that, if I were to view my skin under a magnifying glass, I'd see a lot more bxo skin, as I notice more white areas when the skin has been wet for a little while (I can see it by the end of a shower). However, my recovery is continuing to progress steadily and I am in no doubt I will eventually be rid of this.
It's a fabulous victory to be able to have a normal sex life again, and will be even better when it looks normal and loses the last tight patch.
I'm continuing to post on my Obliterating BXO Naturally blog, and will keep coming back here to give updates. For those who don't want to search through the post history, the treatments I found effective are:
3% Hydrogen Peroxide (encourages peeling)
Talcum Powder with Zinc Oxide (keeps the area dry)
Tea Tree Oil (attacks the disease)
Manuka Honey (heals the white ring and helps loosen it)
Topical Comfrey Infusion (heals and encourages peeling)
Perrin Creme Complete (helps restore the original look and function of skin that was once covered in white skin)
But more important than anything else:
KEEP THE AREA DRY AND CLEAR OF URINE AND SEXUAL FLUIDS AT ALL TIMES!!!!!!!!
[message edited by greaneyr on Wed, 18 Feb 2015 06:49:40 GMT]
greaneyr 4 years ago
I took a short break in my treatment because I was getting married and I was so close to being clear - everything is completely functional and nobody without previous knowledge would know any different. My wife knows about my condition and I've just started treatment again but a lot less frequently so I can still have a normal sex life. So far it's still going very well and I think by summer I will be free of it completely. Like you I will continue to do periodic treatments and take red clover among other supplements. I'm trying to keep my stress low and my body active - I feel great and confident!
I hope others are encouraged by our success and relief!
Keep at it everyone!
dragonreborn 4 years ago
bw123 4 years ago
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