Sudden Hearing loss _{Page 24 of 105}

Hi, Has anyone been read this-(on Google)
'Transtympanic steroids as a salvage therapy in sudden hearing loss:preliminary results' 2006 Journal for Oto-Rhino- laryngology. I have only read the abstract on Google- and am unable to get into the full article- but it looks interesting.

18withSHL
Justine, I am not at home but have access to a PC where I am and just looked at this forum.
Your doctor followed the same pattern as my first one and my second one. And I saw the third one (the famous one) more than three months later. So too late.
You are so right, the public at large needs to know about this. I am also trying to get this sudden deafness info out to the public, I even told the famous doctor that the public at large needs to know about sudden deafness and he agreed. Thanks for putting the info on myspace.
Also, somebody on this forum wrote to the Oprah show, I hope and pray that he/she gets to go there and talk about sudden deafness.
I heard that one in 5000 gets that affliction every year.
By getting the info out, we might be able to put more pressure on these doctors to do ALL they can for us.
To all have a good weekend.

rosetta here is the link you are reffering too. its something doctors are working on that seems like it is not available yet but may be soon.

http://users.aol.com/inventmd/perfuse.html

also it seems that this would still be a treament only for those who act fast or catch it in its early stages. this would be very hard to do because you have to find someone to do this and quick... but i love the idea. alos there are a ton of articles on this if you go here.

http://www.google.com/search?as_q=&num=10&hl=en&btnG=Google Search&as_epq=Transtympanic steroids&safe=images

[moderated - url trimmed to the essentials as it was distorting the page!]

they sorta already do this with the ear shot... the ear shot is decadron. that stuff works great. it cured me on my left side and plan on doing the right first shot manday.

check this out.

Transtympanic Steroids as a Salvage Therapy in Sudden Hearing Loss: Preliminary Results


To understand the real efficacy of transtympanic steroid therapy for sudden sensorineural hearing loss (SSHL) in patients in whom traditional therapies have failed. Procedures: A prospective study was designed in order to evaluate hearing improvement in SSHL patients treated with transtympanic therapy. A solution of methyl-prednisolone (MP) and sodium bicarbonate was administered via a transtympanic injection to 8 patients. Hearing level was evaluated before therapy and at days 1, 7 and 30. Results: Hearing improvement was obtained in 75% of the patients. The patients in this category are usually considered untreatable. Conclusion: Transtympanic steroid therapy is an efficacious solution for patients affected by SSHL in whom traditional therapies have failed. Further studies will be required to identify the most favourable dosage, route of administration and type of steroid. Transtympanic steroid application is safe, inexpensive, easy to perform and efficacious in cases of SSHL not responsive to traditional therapy.


this sounds like a good one but unforuntitly you gotta be in a worse case problem and this article was from italy so I dont even know if they do it in the staes but this should not be a worse ccase thing.. this should be the first thing they do....

ok this is what i got back from a doctor that did a study and has seen results from using Transtympanic Steroids. the good news is it seems to work . the bad news is if you have hed this over 2 to 3 weeks then dont expect much. the do gets results but the chances are much much less.

----- Original Message -----
From: iacopodallan
To: nitrams2000
Sent: Sunday, October 15, 2006 11:21 AM
Subject: Re: Transtympanic Steroids


in USA there are many centers in which transtympanic therapy with steroids is performed for SSHL. But remember that the therapy can be effective only in the first 10 (max15) days after the onset of SSHL. After this period the possibilities of a clinical success are few.

Iacopo Dallan
----- Original Message -----
From: nitrams2000
To: iacopodallan tiscali.it
Sent: Sunday, October 15, 2006 4:06 AM
Subject: Transtympanic Steroids


i was reading the aticle you wrote. may I please ask if the do this in the states. USA.

here is the link.

http://content.karger.com/ProdukteDB/produkte.asp?Doi=93093



Transtympanic Steroids as a Salvage Therapy in Sudden Hearing Loss: Preliminary Results
Iacopo Dallana, Luca Bruschinia, Andrea Naccib, Paolo Bruschinia, Claudio Trainoc, Ferdinando Rogninia, Bruno Fattorib

aSecond ENT Unit,
bDepartment of Neurosciences, Third ENT Unit, and
cHealth Physics Unit, Medical Physics Section, Pisa University Hospital, Pisa, Italy


Address of Corresponding Author

Purpose: To understand the real efficacy of transtympanic steroid therapy for sudden sensorineural hearing loss (SSHL) in patients in whom traditional therapies have failed. Procedures: A prospective study was designed in order to evaluate hearing improvement in SSHL patients treated with transtympanic therapy. A solution of methyl-prednisolone (MP) and sodium bicarbonate was administered via a transtympanic injection to 8 patients. Hearing level was evaluated before therapy and at days 1, 7 and 30. Results: Hearing improvement was obtained in 75% of the patients. The patients in this category are usually considered untreatable. Conclusion: Transtympanic steroid therapy is an efficacious solution for patients affected by SSHL in whom traditional therapies have failed. Further studies will be required to identify the most favourable dosage, route of administration and type of steroid. Transtympanic steroid application is safe, inexpensive, easy to perform and efficacious in cases of SSHL not responsive to traditional therapy.

Copyright © 2006 S. Karger AG, Basel

Hi. I first became aware of SSHL August 2005 (at age 60). I took a call at work and could barely make out the voice. 3 days later, a shrieking noise in my left ear at midnight and went to the ER. They could do nothing-suggested I see an ENT. I ended up with almost total deafness when I woke up the next morning. Web searches led me to SSHL. Took 10 days to get into an ENT. Started on Prednisone, 60mg/day for 2 weeks, then 1 week of tapering. Got back 80-90% of hearing, coming back a great deal after 24-48 hours of Prednisone.

My ENT could not tell me what to do to prevent this again, as she was not sure what had caused it. I had had an MRI to rule out a tumor. I was left with tinnitus, which I could live with.

Fast forward 14 months: A couple of weeks ago the tinnitus became louder, then I got a feeling of fullness in my left ear and yesterday I noticed my hearing declining over the course of the day to the point I was at 14 months ago. Fortunately I had a bottle of Prednisone, confirmed with an on-call MD, and started with the old regimen again. In my conversation with this MD (who practices in a holistic medicine clinic with ND's on staff)she mentioned having read recently about some successes with Aldosterone, since it may be that low levels of this naturally occurring hormone can cause potassium levels in the ear to be out of balance. Has anyone come across references to Aldosterone?

I have never heard of. Aldosterone but I also had a theory on potassium. recently I was taking Red Yeast Rice in very very high levels. almost 8 pills a day. this helps your choelestral but what I didnt know that I found out later that it makes your potassium levels go really high in your body and if you take niacin it makes it even worse. which I was taking niacin. i truly beleive that if you have very high potassium in your body that this may attribute to this, but so will noise, disease, genetics, tumors, virus, just about anything. take your pic. but you maybe right on potassium. thats for sure.

seattlestan

If I am correct on my theory then the drug you mentioned would work very very well and makes since. yes get this drug... im going to get it to. if you want to read up on it here is the link.


http://en.wikipedia.org/wiki/Aldosterone


second theory I have is a bad one to hear but I beleive it to be true ..... if you have this problem reoccuring then that means what ever was wrong with you the first time is still wrong with you today. you see you fixed the symptom not the problem. you got your hearing back but you never found what was wrong. something caused your hearing problem and if you want to fix it then you go to find what it is.

I just reviewed this message board after a month or so - boy, talk about epidemics! Universally, we all have seen many doctors who each give us a different opinion. And (being doctors) each is convinced he/she is right. So take all the advice with a grain of salt (but not a diuretic). Also universally, no matter what treatments we try, SHL seems to get somewhat better eventually. My current theory is that TIME is what's making it better, not treatments. Problem is, it just takes a lot of time - and in the meantime the tinnitis is driving us crazy, so it's very hard to be patient. Since April, my SHL has improved considerably (at least testing-wise, although not functionally), but the tinnitis is still tear-your-head-off awful. As my most recent 'treatment try' I purchased a hearing aid. (One ENT had previously said a hearing aid wouldn't help; later his own partner said it would - so I decided to try one.) It's also by Savia. I noticed that a few others on this message board have purchased that brand. Expensive, but includes a 45 day 100% money-back-if-you-don't-like-it guarantee, good warranty and free batteries (hearing aids do suck up the batteries!). First I tried a 'behind the ear' type but it didn't fit well with my reading glasses, which I put on & take off all day. So this week I'm going to try an 'in the ear' type. Anyway, with the hearing aid the sounds are clearer (you know, s's don't sound like z's anymore). The increased clarity helps distract my attention from the tinnitis, which is still there every day; some days worse than others.

Nitrams2000

You are right about the underlying problem needing to be discovered and treated. Hence the possibility that Aldosterone might be an approach. Also, I may have TMJ (my left jaw pops when I eat or yawn). I have also started cranio-sacaral therapy and have been taking Gingko Biloba for several weeks to see if I can mitigate the tinnitus. Since this has re-occurred, I am more adamant about pushing on the allopathic medicine folks for more work on their part as to the root cause, as well as delving into alternative folks, like Dr. Wright and others. Nothing to lose. Thanks for responding. I have an appointment with my primary care physician today and have printed some of the information from this forum to discuss with him and get moving forward (along with staying with the Prednisone I started a couple of days ago). You might try a search on James Howenstine and sudden hearing loss for more on Aldosterone and Jonathan Wright of Renton, WA. I tried to add the URL but it was rejected.

it is my opinion that ginko doesnt do much of anything. They say to try Ginko because they have nothing else. They figure Ginko cant hurt and atleast they know that ginko will help your attitude because it operates like St. Johns wart. May it make you feel better. Maybe. Will it help your condition or will it go away. no. not from Ginko.

cmaccart I think that time is the culprate. you only have so long to knock it out of your stuck with it. Also I see many many cases where if the got some results and it got better then a year or two down the road it got worse agin. The doctor I go to says 1 in 3 got it back but i think it much much higher then that,

It seems to get better with time because people seem to learn to tolerate it somehow. but i know virtually know no one that got this thing fixed that was past 2 or 3 months of having it. there is no one on this board that can honestly say they have had it a year know or 2 years and now its gone or finally going away. in my book time is the culprate and we are guilty of not finding the underlying problem.

So many people have said I fixed it and now im going on with my life, but this problem comes back because it is here to remind us that there is a problem , its the problems way of saying HEY!! i'm still here buddy. remember me!!!

The doctors, you and I, everybody is guilty. Of trying to find away to treat the symptoms and not finding the problem. SOrry. JM

by they way. I pop Ginko like it was M&M's. since sept 17th. no difference that i can see. other things have worked for me but honestly thats not one of them.

Nitrams2000

Remind me of the other things that have worked for you. Thanks

1.Shots to the ear of decadron,
2.Prednisone pills 60mg for 2 weeks. but I know a new study with a lady that was actuallty prescribed prednisone on a long term where she did 60mg for two weeks then tapered down to 30 mg for several months. and a very strong antiviral, this lady has had the best results that I can find on paper today.

3. accupuncture does seem to help too but not in leapps in bounds but the theory with accunpuncture is to stimulate the blood flow to reduce inflamation. my accupuncture guy is considering toaking me to the next level and adding electricity to the accupuncture needles. that autta be wierd.


some how a theory that my potassium is to high and the theory that my body temptature has been to low. my body tempature was hovering around 96.5 or lower which is sorta low. when ever i got my body tempature up it seems to help. so i hang out in the jaccuzzi. ring in right ear is there. sometimes worse on days then others and the left ear that i lost all my hearing in seems to be just fine with just the faintest of rings. so i got back my left hearing and right hearing which was perfect now has the ringing. I feel that it is all in vain and the fighting I do may gain me back sometime but my guess is I will be back on this board in a year to do it all over again with worse results. up hill battle to eventaully loose the war.

To EVERYONE RE: SHL

Starting on Page 25 of the threads, my format has expanded beyond my computer screen. It has changed significantly from all the other pages. Does everyone else have this problem?

Joyce Martino

yup joyce mine does the same thing too. its probably me. i probably have missed up the board with all the posting i do. sorry if its to much. JM

Why would all your postings CHANGE THE FORMAT of the lines? I don't understand that.

joyce

Joyce Martino

Not having been on this forum for very long, I don't know what it was like before but it does not wrap and I have to slide the page to read it.

Check the previous pages and you'll see what has happened. Just go to Page 24, it all started on page 25.

I've notified the ABC people and see what they come back with...maybe you could also do that if you don't understand all this change.

joyce

It seems that so much of this POST does not have much to do with homeopathy anymore.

Just an input.

I know this is a tragic health issue that so many are dealing with, I with my own daughter, but......just thinking out loud.

I don't want anyone to think that I am unsympathic to what is/has happened to 'their' hearing. I have not said much at all recently about my 43 yr old daughter's total hearing loss last May.

She does have 1 cochlear implant but the stress is still there, maybe not 1000% but 800%.

Right now she has entered a detox/rehab program at one of our local hospitals, since it's FINALLY come to a head that she has an addiction to prescription drugs, mainly painkillers.
She has temporarily lost her children to her husband's court monitored family, but this is temporary. She will HEAL herself thru this program and her loving family and friends, and admitting the TRUTH.

TRUTH is the greatest HEALER.

She has been in a 12 yr very stressful marriage, had a 8-mo still born baby in 1998 which turned her life upside down and her 'controlling' husband would not allow to her to get therapy to deal with this tremendous loss. She has suffered in much silence and the pills were her 'friends'...

So her hearing loss is medication/stress and who knows what else.

It's been a crisis/frantic life her for and me as her mother. Her children also. Her husband has his own addictions, not pills but other substances....it's been frantic for him.

All this WILL CHANGE, FINALLY!!

So, I'm on my way to the hospital to see her and do some errands for her.

When I saw the 'messed' up postings, I kinda lost it. I've had so much stress going thru this but I'm an older lady, 68, and pretty much in control of my LIFE. Know what I can do and what I can't do for myself and the world.

Peace and Blessings and Healings to you ALL.

joyce

Joyce Martino

Looks like they took action, because the format is now readable. Thanks for doing this.

On your personal journey, I can relate only to well, having had to overcome a 30 year substance abuse problem. It's been 9 years now. I am lucky, so when something like SSHL hits, I keep the perspective.

Joyce Martino,

Your daughter will remain in my prayers. I hope that the cochlear implant will work for her as she gets used to it.
As for worries of a mother I know where you are coming from. My daughter had severe health problems around 1996 and I was and still am there for her when she needs me.
Thanks for alerting the webmaster of this forum, I had not seen it disorted as I only came home a while ago.
Take care and be well

Nitrams2000 - Did you got a shot into your good ear?
and if so, what did your doctor say and how was your audiogram if he gave you one?
I believe that if I had received a treatment of Prednisone for more than 6 days, my hearing would have returned because it came back distorted, but then a few weeks later, I lost all of it again in that ear.
It makes me mad that I had no access to more steroids. Unless, as I said before these two doctors did not want to give me more Prednisone because of the 4 meds that I have to take all the time.
Take care