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Sudden Hearing loss Page 30 of 105

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Seattlestan - Sorry to get a bit off the SHL subject, but you say you have had cataract surgery. Me, too. Both eyes or just one? How do you deal with the night vision problem?
Nitrams2000 - You say you can deal with SHL better now that you have improved your diet. Can you please give some specifics? Thanks!
To anybody with a hearing aid - Is it my imagination or does the tinnitis seem much worse than it used to be? (I mean, after you take the hearing aid out for the night.)
cmaccart last decade

I had it in both eyes and after 3 years it seems that the night vision problem has improved. Plus, I don't go out much at night anyway, so that minimizes my experience somewhat.

Just to be clear, we are talking about the removal of my natural lens, replacing it with a manmade one, not Lasik.
seattlestan last decade
It is not that the Tinnitus is worse after you take out the HA. It is just that hearing aids mask Tinnitus to a great extend during the day while you wear them.
So the T. is the same, but you are not so much aware of it while the HAs are in your ears.
Good luck
Hope01 last decade
OK I dont want to jinx anything here and I am almost scared to mention it but last night I slpet with no fan and the night before the noise ringing in my ears stopped for about 3 hours before i went to bed. I woke yesterday morning and the ringing was back but ever so slight... then I went to a festival and a theme park. with no problems what so efver. The them park was rather lous so expected to hear ringing when i got home last night. BUT I DID NOT HEAR AND RING! its a miracle today has been very very peacefull. now I realize this is way to good to be true so I expect it to come bacvk sometime today. but man it sure has been nice to feel like a normal person again. if only for a short while. god bless us all.
nitrams2000 last decade
I was monitoring this forum but not from home yesterday and also this morning before going to church. I thought that I had jinkzed (spelling) the board as there was complete silence.
I am so glad to hear that you had so far a great weekend, feeling like a normal person.
That is your reward for being very perseverent in trying to find your cure for this SSHL and Tinnitus.
My T, was very bad yesterday, but I was a bad girl, we went to one of these places where they had all kind of fall festivities and I ate chocolate which I love and I paid for it later on in the evening.
Tomorrow, when I get home I will again go on a very strict diet and try to eliminate as much stress as possible.
Again glad to hear that you are doing quite well. Hope some others on this board can soon report the same.
Take care and remain well.
Hope01 last decade
Hope you are corrct. Exercise makes hte world of diffference, diet is very important, vitamins help to, also stress is a big one too. but with gods help we shall make it. I think about you all the time and hope you are dong well. :)
nitrams2000 last decade
Hi all, yes it was quiet on the weekend, I don't know about anyone else but I felt like my old self again and got real busy with things around the house and family. My hearing seems to be improving over these past 6 weeks and go for another test this week. Just finishing my second lot of prednisone.
Will get back on here after my test.

I too find diet will determine my degree of tinnitus its so hard to be strict with it.

Nitrams good on you, u have done so well with the persevaring.
Mertie last decade
new found information

ok uplate reading... I foound out a very important test that is $20 that may help us all. the test is called. C-Reactive protien blood test.

they draw blood from you and this tells you is you have a High Protien count. This is very important because if you do then the likelyhood of you having a Autoimmune disease is very high. This should be the first test you take and ear doctors should make this mandatory.

Now heres the link. Between SSNHL and the test... A year ago I wanted life Insurance and so I got a blood test and it said my Protien count was very high. I dont remember what it was at the time but it was high. I rmember the guy saying that. If I would have known back then how important the test was and what it ment then I could have got on it right away. My body was telling me there was something wrong then but I didnt know to listen.

Now it just so happens with all the blood test that have recently take this test again and it shows to be a reading of 0.5 which according to what I read on the net,,, that the rating i got is good and now there is no inflammatory infection.

If you have SSNHL then the liklehood that it is vascular or due to inflamation is very very high. in the 90% 'what does all this mean to you? ' Simple . take the test. if you have a high return then bingo yours is inflamatory and no you may not know the culprate but it narrows it down bigtime.

everyone her needs to take this test. if you dont your crazy. and if you score 4.9 or greater your in trouble
nitrams2000 last decade
c-reactive protein

heres som links. make sure to read. this is a important link guys.

1. http://arthritis.about.com/cs/diagnostic/a/crp.htm


3. to order product and do test at home you can go here but its very expensive and you can do test with doctor for $20 go to doctor. http://www.shopqas.com/ProductCart/pc/viewPrd.asp?idproduct=164&idaffiliate=45
nitrams2000 last decade
if you have SSNHL and a high protien count then you most likly have one of these.

Urinary tract infection.
Bacterial meningitis.
Pelvic inflammatory disease (PID).
Whole-body infection (sepsis).
Polymyalgia rheumatica.
Inflammatory bowel disease.
Temporal arteritis.
Rheumatoid arthritis.
Reiter's syndrome.
Crohn's disease.
Acute pancreatitis.
Hodgkin's lymphoma.
nitrams2000 last decade
Nitrams- you have found something here which I can relate to. I suffer from Fibromyalgia which is a connective tissue type disorder, particularly in my shoulders, back and neck, which is why I've suspected my SSNHL could be vascular. There is always inflammation present when I have a flare up of it, due to stress & diet. I have been able to keep it under control most of the time but prior to my sshl my stress and diet were not good and my neck was seizing up on the same side as the sshl. Going to the osteopath and acupuncture has releived it some what as well as paying attention to my diet. but I do feel there was a connection there, I may ask for the C-Reactive protein test, although being on the sterids may give an innacurate result.

Good work though, its amazing how there are so many connections with this didease we have.
Mertie last decade
READ THIS IT MAKES GREAT SENSE!!! now looking in the right direction.

When we get SSNHL people run to the ear doctor but the ear doctor does not what to do. Is this unusual. Not in the least. Heres why.

in most cases it is one of two thingds. Noise related. 'Nothing he can do to help you' or autoimmune related. 'also nothing he can do to help you' heres the problem. We are at the wrong doctor. Neurotology
Subspecialty: We can get some temporary relif from going to a ear doctor. or Neurotologist but the real truth is we belong at Immunologist

Immunologist is where they seek for disturbance in your immunity. thats US. wether it be vascular, immunity, or health heard related, even sinuses.... this is where each one of should go.

Why is that not mentioned in todays medical field. simple. ear doctors think your cured once you walk out the door. BIG MISTAKE. your body is saying to you that there is a problem here people.

I'm on my next quest to see someone that might actually want to know what wrong with me. a Immunologist
nitrams2000 last decade
To Nitrams2000 - Thank you so much for sharing all these findings with the board. You are terrific and persistent.
All the best to you and again
Hope01 last decade
engelchen i have to ask out of curiousity.

do you or have you ever had a feeling in your head or back neck or around the jaw of a pressure feeling. almost like it was a headache but not really. sorta like a pressure or jittery feeling. I sometime get that. I used to think it was hte steroids but now im off the steroids and i still get it. a friend of mine thought it was sinuses but i think he is crazy. I cant figure out what it is. i dont always get it but i do get it once in a while. I used to think it was because i never had my upper wisdom teeth removed but now considering what has happened i tihnk it is something more but i cant figure it out.

chance are i have some vascular problem or small disease problem. cant figure it out but I will.
nitrams2000 last decade
Engelchen and Nitrams2000 - you should also have a test to see that you do not have TMJ. Maybe your jaw bones are misaligned?
This happen to a lot of people and in many cases they need jaw surgery to rectify that.
Just a thought
Be well
Hope01 last decade
Hope01 your right it could be that. its so hard . there is so many things it could be but i just want to make sure im covering everything so it dont comeback. something caused it. so hard to find this dang thing
nitrams2000 last decade
Hi all Tinnitus sufferers
I just read about this Tinnitool that is supposed to be a remedy for Tinnitus?

http://www.sensorcom.com/prodtype.asp?PT ID=339
I am not endorsing this, just letting you know that this is on the Internet, will check into it.

Hope we all have a good day
Hope01 last decade
Me again, before I am leaving for the day I would say this:
As we all know, a word of caution is in order with this Tinnitool.
The more I read about it, the more skeptical I get.
If this would really regenerate the hear cells as they proclaim, why would our best doctors here in the US not know about it?
Either this is BS or it is ignorance on the part of our doctors......
The more one looks at the Internet, the more one gets confused since there is a lot of trash out there and so much contradiction.
Hope01 last decade
To engelchen,
The symptons I have are mainly in my neck and shoulders, but it migrates around the body and can change from day to day ranging from pain and tenderness in the muscles and connective tissues to stiffness and tender points in the affected area. My lower back and arms can be a problem too. I also get really tired with it and chills.

I use diet and supplements
to control it, no sugar, potatoes, white flour,coffee tea or Alcohol and make fresh anti inflammitory juices of carrot, lebanese cucumber,celery,ginger & pineapple.
The suplements are msm (glucosamine Sulphate,& ultramuscleze ( magnesium & potassium sulphate compound).
I have a very good alternative doctor over here who beleived in Fibromyalgia and diagnosed me with blood tests.
But this is the interesting part, the causes can be
Immune dysfunction
Autoimmune dideases
Post viral syndrome
Hormonal imbalances
deficiencies of magnesium and Selenium.

Its a dysfunction in the muscle cells, causing a loss of magnesium and potassium and an accumulation of calcium.
The calcium excess causes the small fibres of muscle to contract, forming nodules or fibrous bands in the muscles, with an increase in lactic acid causing pain.

So you can imagine with this happening in the neck area on the side of the SSHL it could may well cause an interuption in the blood flow, who knows.

I did have a sore neck when I got my SSHL and when it occured i remember running hot water on my neck form the shower thinking it was that.
Hope this helps just make sure you get a good doctor who believes in it.
Mertie last decade
Hello all from Mexico

My hearing has continued to hold at a level I had before this second onset on Oct. 14. The tinnitus has remained too. Hats off to all the work Nitrams2000 is doing. I have to agree that the discipline to deal with this-beyond trying to bring back as much hearing as possible with ENT & otologists-lies with a holistic approach and our bodies immune system, allergies, etc. I do not believe that all the medical stuff I have summarized in earlier notes are all discrete and un-related events, even though that is the contention of my otologist. I will continue to check in every few days that I am vacationing.

I met someone who is 36 and vacationing with her husband, who asked me how my 1st day went here in Zihuatanejo. I told her I was taking care of myself, relaxing, etc. after a medical experience. When I told her I had gone deaf in my left ear, she almost fell out of her chair. She went deaf in her right ear, overnight, 1.5 years ago and has never met anybody else that has happened to. Needless to say, we spent an hour during happy hour sharing our stories. It is amazing what happens when you share your stories and someone else no longer feels alone in the world. Hasta Luego amigos.
seattlestan last decade
Well, here I am again. I went for my visit to my ENT last week, and he informed me that my tests did not show anything. I said to him ' Do I have SHL? ' and he said well to have that you have to have lost your hearing suddenly.
I just about exploded at him and said ' I went to my GP the day after I lost my hearing in my right ear which happened overnight, and he set up this referral to you and I was told I had to wait 2 months to get into see you. I said I ended up crying on the phone to his nurse and they put me on the cancellation list and it took me 3 weeks to get into see you. I asked him to tell his staff that if they have someone calling for this problem they should get them in immediatley. He just looked at me. I said ' Don't you know this is a medical emercency , I should have got into see you right away and been put on predistone. He told me not to get so stressed out as I was not helping myself, and he also said Well it could be worse, you could be blind. I couldn't believe it. I said to him That if it meant I didn't have to live in this hell I have in my head all the time Maybe I would rather be blind.
He put me on 15 course of predistone, 5days each of 30, 20, and 10 mg, but said he didnt think it would do any good as so long has elapsed.
I started my Shl Sept 5th.
As you can imagine I am not a happy camper right now. Its halloween and the door bell keeps ringing , my dog keeps barking and I am ready to climb the walls.
I am still getting these sweats, and I notice a lot of tingling in my right arm , same side as my ear. I am really wondering if its some sort of nerve damage, as I have never had this tingling, and sweats before the onset.
Well, I guess this is enough of feeling sorry for myself.
Happy Halloween everyone!!!!
hopebc last decade

I prayed for you today. I know it doesnt mean much coming from me but I want to let you know I have been where your at and you are stronger then me. So many times I wanted to end it. I thought of different ways to do it because I just felt I was not strong enough inside to handle this but here you are..... you have it worse then I did, you still have it god bless you because you continue on.

You may not know it but you are a inspirtion to us all. You succeed where I would fail. God bless you.

the prednisone he gave you was not enough. you need 60mg a day for 2 weeks. but he may be right about it being solong. also never give up hope. thats your nick for a reason. you are full of hope and god will reward you. stay strong, never give up, see more doctors, keep reading up on latest technology. keep bugging the right people. be in thier face at all times and there will be a light at the end of your tunnel. God doesnt not let such bravery go unrewarded. that I know.
nitrams2000 last decade

I also have the sweats. I get them at night when i sleep. i dont get them all the time. but i must admit i where covers even if it is a little hot. we keep room temp. at 74 or 75 degrees. and I where covers at night. i thought it was my wieght. but then again i can remember sweating at night for many years now. i think i remeber doing that even when i was a kid. but im not sure ... also i still get that pressure sensation in my head like something hurts up there a little but not as bad as a actual headache. does anyone else get this or am I just turning crazy. I feel there is something wrong with me but i cant pin point it and its so hard because with every test i do and every docotr i see people are begining to think ive gone crazy and they maybe right.
nitrams2000 last decade
For those people with fibromyalgia and possible immune disorders/diseases, you may want to read the article on yeast and its possible contribution in worsening FM symptoms.
The website is:

nvega last decade
ok need some help here. this is a list of antiinflammatory drugs. I was told that these would be good in help keep inflamation down and it may help me or any of us but I dont want to take any ototoxic drugs so if anyone could please look at this list and tell me if they see any in here that are not ototxic. it seems like allot of them are.

Salsalate (Amigesic)
Diflunisal (Dolobid)
Ibuprofen (Motrin)
Ketoprofen (Orudis)
Nabumetone (Relafen)
Piroxicam (Feldene)
Naproxen (Aleve, Naprosyn)
Diclofenac (Voltaren)
Indomethacin (Indocin)
Sulindac (Clinoril)
Tolmetin (Tolectin)
Etodolac (Lodine)
Ketorolac (Toradol)
Oxaprozin (Daypro)
Celecoxib (Celebrex)

any help anyone can provide would be much appreciated.
nitrams2000 last decade
To Hopebc
Not sure what it is but for several days I was actually able to sleep through the night. Today I woke up again at 4:300AM. One step forward, two backwards.....
Now about you...I am utterly outraged reading your story..I cannot believe the jerks you have been dealing with. I am not one to go to court, but believe me some people in this country would sue that doctor. Does he not know that there is a narrow window of treatment when it comes to SSHL. And his attitude leaves me speechless.
Hopefully the Prednisone he finally gave you will restore your hearing. I came across a Lady in a Super Market a few weeks ago who told me that her Friend got her hearing back after 7 weeks. So there still is hope. That was good news. But I am so outraged for you..
When I think back at the time when I had lung cancer, I belonged to some HMO health insurance where I could only see certain doctors. Had a slight consistent cough, went to see the assigned doctor, he sent me back home telling me it was all nerves, stress at work etc. did not even order an Xray. I changed insurance as Janvier arrived where I had a chance to change insurance at work. My cough persisted and one day, my boss told me to see a doctor.
I laughed it off since I felt great and jogged 2 3 times a week and so on. I reminded him that the doctor had said nerves and stress... The blessing came that I got pneumonia while in Europe and got very sick on the SwissAir Zurich-Boston flight back. I went to the ER that same evening; they took an Xray at once and saw that I had not only pneumonia but also a malignant tumor the size of a half dollar and they gave me 6 to 8 months to live.
Had the first 'jerk' that I saw ordered an Xray, he would have seen that a tumor was growing on my lung....
I am still here because of my positive attitude at the time and the many prayers that were said for me and also that I had found a very good thoracic surgeon .
The reason I brought this up is that there are stupid doctors in any country. Please do as Nitrams2000 told you in the above post, remain in this doctor's face.
I am sure everybody on this forum is as outraged as I am and we are all praying for your recovery from SSHL
We all wish you the best. Please remember that some of us like me did not recover, and might need a cochlear implant. It is great to live in this day and age and to be able to benefit from the latest technology.
But it is not great to live in this day and age for what goes on around us, so many innocent people dying every day..
God have mercy on us all.
Hope01 last decade

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